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The Hemophilia Alliance is a not-for-profit organization that comprises hemophilia treatment centers (HTCs) that either have, or are seeking to have, factor delivery programs under Section 340B of the Public Health Service Act. The purpose of the Alliance is to promote the common interests of these HTCs. The Alliance began in December 2004, and was incorporated as a 501(c)(3) organization in March 2005.
The Alliance’s Mission
The Hemophilia Alliance works to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders.
The Alliance’s Vision
Through the work of the Hemophilia Alliance, the clinical and pharmacy programs of the Hemophilia Treatment Centers are integrated, stable and sustainable within a changing healthcare environment. They are trusted and respected as the preferred way to provide people with hemophilia and other bleeding disorders access to the full range of care they need.
Joining the Alliance
Having you as a member of the Hemophilia Alliance is very important to us. We recognize that the more members we have, the more we are able to share experiences, develop expertise and become a stronger organization.
Categories of Membership
The Alliance groups members into 3 categories based on the size of the factor program: start-up, medium and large.
- Start-up/Small: Those HTCs that have not yet sold factor but are setting up a program. HTCs that have sold less than 5 million units of factor in the past 12 months.
- Medium: HTCs that have sold more than 5 million units and less than 10 million units of factor in the past 12 months.
- Large: HTCs that have sold more than 10 million units of factor in the past 12 months.
The amount of Dues depends on your HTC category.
- Start-up: $1,200 per year
- Medium: $6,000 per year
- Large: $10,800 per year
If you would like to become a member of the Hemophilia Alliance,
please contact Joe Pugliese at firstname.lastname@example.org.
Alliance Membership Benefits
Through your membership and the fees generated by the utilization of Alliance group purchasing contracts, the Alliance gives you a national voice in Washington, DC and the expertise of the Alliance consultants which include:
Some of the Alliance’s Achievements to Date
- A Medicaid Carve out clarification
- Proposed grant requirement changed to a grant statement.
- Various responses to Federal Register notices, letters and testimony to federal agencies and committees
- Information sharing
- Hemophilia Alliance Foundation
Some of the Alliance’s relationship building
- Office of Pharmacy Affairs has allowed the Alliance to contribute to its report to Congress
- Maternal and Child Health Bureau consults the Alliance on all major §340B issues
- Manufacturers have supplied the Alliance with data and information around product supply
- The Government Accountability Office consulted with the Alliance on a recent report to Congress
Contacting the Alliance
To learn more about the Hemophilia Alliance, feel free to contact us at email@example.com.