Benefits

Having you as a member of the Hemophilia Alliance is very important to us. We recognize that the more members we have, the more we are able to share experiences, develop expertise and become a stronger organization.

Through your membership and the fees generated by the utilization of Alliance group purchasing contracts, the Alliance gives you a national voice in Washington, D.C.


Additionally, you secure access to the expertise of our staff and consultants and general support in issues affecting federally funded HTCs:

  • Group Purchasing Services discounts
  • Legal & compliance advice
  • Payer contracting & relations expertise
  • Reimbursement expertise
  • Medicare & State Medicaid policy & billing expertise
  • Alliance Benefits the Bleeding Disorders Community
  • Hemophilia Alliance Network Services (HANS) HTC PPO Network
  • Management experience
  • Advocacy in Washington, DC
  • Development of HTC Policies and Procedures
  • Assistance in setting up a pharmacy program & promoting awareness
  • Participation in Federal Regulatory Process
  • Customized outreach materials
  • Lab services
  • Interpretation services

You will also have access to the following resources and events:

  • Monthly newsletter
  • CE Programs for Members
  • Job board
  • Webinars & virtual meetings
  • Access to our website with large libraries of information
  • Marketing support at Chapter events

Member Testimonials

HTC directors share the benefits of their Hemophilia Alliance memberships:

The Hemophilia Alliance, as cliché as this may sound, is your “one stop shop” for all things Hemophilia Treatment Centers (HTC’s). Comprised of an elite team of experts with over 322 years of experience, the Hemophilia Alliance’s sole purpose is to advocate for their member HTC’s who participate in or desire to participate in the federally funded 340B program. Using the descriptive “advocate” is truly an understatement as this group of consummate experts and professionals become an extended part of your HTC team. Their unwavering mission to “ensure that member HTC’s have the expertise, resources and public support to sustain integrated clinical and pharmacy services for individuals with bleeding and clotting disorders” is second to none. Their extensive knowledge in operations, regulatory compliance, payer relations and all things pharmacy is unmatched. As with all HTC’s, the patient is at the center of all that we do. Similarly, for the Hemophilia Alliance, the HTC is at the center of all that they do.

Partnering with the Hemophilia Alliance is a game changer and, in this continually changing landscape, having a partner that is aware of these timely and impactful changes is crucial but having a partner that actually sits at the table to advocate and make change for HTC’s is priceless. Thank you Hemophilia Alliance for all that you do!

Louise M. Baca, MSN, RN

Senior Director, Oncology – Maine Bleeding Disorders Center

The Hemophilia Alliance has been a huge support to our HTC. Their collective knowledge of guidances, regulations and policies that impact the HTC and bleeding disorder community serves as a wonderful resource. The experts at the Hemophilia Alliance have a unique national and regional perspective of the HTC community which I leverage routinely to grow our program. The Hemophilia Alliance also offers individualized services to support and identify new opportunities for our HTC. Finally, membership with the Hemophilia Alliance has resulted in significant savings that well exceed the cost of membership.

I have been attending Hemophilia Alliance meetings and interacting with the HA team for over 10 years and have learned so much! I highly recommend that those who care for patients with bleeding disorders join this wonderful community!

Dr. Susan Kearney

Medical Director, Cancer & Blood Disorders Program – Children’s Minnesota

Membership Categories

The Alliance groups members into 3 categories based on the size of the factor program: start-up, medium and large.

Start-up/Small:

HTCs that have not yet sold factor but are setting up a program.

HTCs that have sold less than 5 million units of factor in the past 12 months.

Medium:

HTCs that have sold more than 5 million units and less than 10 million units of factor in the past 12 months.

Large:

HTCs that have sold more than 10 million units of factor in the past 12 months.

Dues

The amount of Dues depends on your HTC category.

Start-up/Small:

$1,200 per year

Medium:

$6,000 per year

Large:

$10,800 per year

If you would like to become a member of the Hemophilia Alliance, please contact Joe Pugliese at joe@hemoalliance.org.