Cybersecurity and Privacy Policy
This Cybersecurity and Privacy Policy governs the manner in which The Hemophilia Alliance collects, uses, maintains and discloses information collected from users (each, a “User”) of the https://hemoalliance.org website (“Site”).
Cybersecurity Statement
At Hemophilia Alliance, we take the privacy and security of our digital systems, data, and the information of our stakeholders very seriously. As a nonprofit organization, we are committed to maintaining a secure and trustworthy environment for all who interact with us online, including members, community partners, and the communities we serve.
To safeguard sensitive information, we follow industry best practices for cybersecurity, including encryption, regular security audits, and secure access protocols. Our team is trained to recognize and respond to potential threats, and we work with trusted security experts to ensure that our systems remain up-to-date and protected against emerging risks.
We understand that the digital landscape is constantly evolving, and we are committed to adapting our cybersecurity measures to meet new challenges. This includes implementing safeguards to prevent unauthorized access, data breaches, and other cyber threats. In addition, we prioritize transparency and will promptly notify our stakeholders in the event of a security incident that may affect their information.
Our dedication to cybersecurity is part of our broader commitment to accountability, integrity, and the responsible use of technology in support of our mission. We value the trust placed in us and will continue to work diligently to maintain the highest standards of security.
Personal identification information
We may collect personal identification information from Users in a variety of ways, including, but not limited to, when Users visit our site, register on the site, fill out a form, and in connection with other activities, services, features or resources we make available on our Site. Users may be asked for, as appropriate, name, email address. Users may, however, visit our Site anonymously. We will collect personal identification information from Users only if they voluntarily submit such information to us. Users can always refuse to supply personally identification information, except that it may prevent them from engaging in certain Site related activities.
Non-personal identification information
We may collect non-personal identification information about Users whenever they interact with our Site. Non-personal identification information may include the browser name, the type of computer and technical information about Users means of connection to our Site, such as the operating system and the Internet service providers utilized and other similar information.
Web browser cookies
Our Site may use “cookies” to enhance User experience. User’s web browser places cookies on their hard drive for record-keeping purposes and sometimes to track information about them. User may choose to set their web browser to refuse cookies, or to alert you when cookies are being sent. If they do so, note that some parts of the Site may not function properly.
How we use collected information
The Hemophilia Alliance may collect and use Users personal information for the following purposes:
- To run and operate our Site
We may need your information display content on the Site correctly. - To improve customer service
Information you provide helps us respond to your customer service requests and support needs more efficiently. - To personalize user experience
We may use information in the aggregate to understand how our Users as a group use the services and resources provided on our Site. - To improve our Site
We may use feedback you provide to improve our products and services. - To send periodic emails
We may use the email address to send User information and updates pertaining to their order. It may also be used to respond to their inquiries, questions, and/or other requests.
How we protect your information
We adopt appropriate data collection, storage and processing practices and security measures to protect against unauthorized access, alteration, disclosure or destruction of your personal information, username, password, transaction information and data stored on our Site.
Sharing your personal information
We do not sell, trade, or rent Users personal identification information to others. We may share generic aggregated demographic information not linked to any personal identification information regarding visitors and users with our business partners, trusted affiliates and advertisers for the purposes outlined above. We may use third party service providers to help us operate our business and the Site or administer activities on our behalf, such as sending out newsletters or surveys. We may share your information with these third parties for those limited purposes provided that you have given us your permission.
Electronic newsletters
If User decides to opt-in to our mailing list, they will receive emails that may include company news, updates, related product or service information, etc. We may use third party service providers to help us operate our business and the Site or administer activities on our behalf, such as sending out newsletters or surveys. We may share your information with these third parties for those limited purposes provided that you have given us your permission.
Third party websites
Users may find advertising or other content on our Site that link to the sites and services of our partners, suppliers, advertisers, sponsors, licensors and other third parties. We do not control the content or links that appear on these sites and are not responsible for the practices employed by websites linked to or from our Site. In addition, these sites or services, including their content and links, may be constantly changing. These sites and services may have their own privacy policies and customer service policies. Browsing and interaction on any other website, including websites which have a link to our Site, is subject to that website’s own terms and policies.
Changes to this privacy policy
The Hemophilia Alliance has the discretion to update this privacy policy at any time. When we do, we will post a notification on the main page of our Site. We encourage Users to frequently check this page for any changes to stay informed about how we are helping to protect the personal information we collect. You acknowledge and agree that it is your responsibility to review this privacy policy periodically and become aware of modifications.
Your acceptance of these terms
By using this Site, you signify your acceptance of this policy. If you do not agree to this policy, please do not use our Site. Your continued use of the Site following the posting of changes to this policy will be deemed your acceptance of those changes.
Contacting us
If you have any questions or concerns regarding our cybersecurity practices and/or privacy policy, please feel free to contact us.
This document was last updated on January 1, 2025
