Advocacy and Legal Update
Senate 340B Bipartisan Working Group Announces New Members
by Issie Karan, Legal Counsel
In late March, the Senate 340B bipartisan working group, commonly referred to as the Gang of Six, announced three new members. Joining Senators Jerry Moran (R-Kan.), Shelley Moore Capito (R-W.V.) and Tammy Baldwin (D-Wis.) will be Senators Markwayne Mullin (R-Okla.), John Hickenlooper (D-Colo.) and Tim Kaine (D-Va.).
Last Congress, this bi-partisan group collaborated on draft legislation, titled the “SUSTAIN 340B Act.” Included in the draft bill were detailed reforms to some areas of the 340B Program, such as contract pharmacies, transparency, and program integrity. After much dialogue with stakeholders and changes to the discussion draft, many expected the bill to be formally introduced at the end of last year. However, this did not happen amid reports of disagreements over final language.
The Hemophilia Alliance engaged with the Gang of Six extensively last Congress, providing feedback on its request for input and meeting with them following the release of the draft legislation. With the announcement of its new members, we expect to reignite our conversations with this group to ensure the HTC perspective is considered in any 340B reform proposals.
Closely Watching Medicaid on the Federal and State Levels
by Miriam Goldstein, Artemis Policy Group
Cuts to Medicaid are under active consideration by federal and state lawmakers in 2025. Because Medicaid is an important source of coverage for children and adults with bleeding disorders, insuring about 1/3 of our patient community, the Hemophilia Alliance is closely monitoring policy changes that could impact access to coverage and care. Federal and State Medicaid Highlights can be found here.
Please contact your MCR Team member or George Oestreich at george@hemoalliance.org if you have any questions on the state bills and Miriam Goldstein on the federal issues at mgoldstein@artemispolicygroup.com.
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Also In This Issue…
Jeff Weighs In
Notes From The Community
- Celebrate World Hemophilia Day – Access for All
- 5th Annual HTC Unite for Bleeding Disorders National Walk Challenge
Member and Community Relations Update
- Linda Gammage Social Work Conference a Success
- Apply to Serve on Linda Gammage Social Worker Conference Planning Committee
Administration and Operations Update
- Hot Topics at the Spring Member Meeting – What’s your HTC elevator speech?
- Exclusively for Medical Providers and Business Administrators – Save The Date for the Next MP/BA Meeting January 11-13th, 2026
- 2025 & 2026 Meeting Schedules