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X-WR-CALDESC:Events for Hemophilia Alliance
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DTSTART;TZID=America/New_York:20250513T130000
DTEND;TZID=America/New_York:20250513T140000
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SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from BioMarin - A Collaborative Journey - ROCTAVIAN Patient & Provider Perspectives
DESCRIPTION:Date: Tuesday\, May 13th\, 2025\nTime: 1:00pm – 2:00pm ET \n  \n \n  \n  \n \nWEBINAR TOPIC: \nA Collaborative Journey – ROCTAVIAN Patient & Provider Perspectives \nOBJECTIVE: \nJoin us for an insightful webinar exploring the real-world experiences of patients and providers with ROCTAVIAN. Hear firsthand accounts of the treatment journey\, from initial consultations and administration to outcomes and quality of life changes. Discover how collaborative partnerships between patients and healthcare professionals are shaping the future of Hemophilia A patients. Learn about practical considerations\, clinical insights\, and the empowering potential of ROCTAVIAN. \nAUDIENCE: \nProviders and decision makers \nSPEAKERS: \n\nAndrea Buxton\, APNP\, Family Nurse Practitioner\nA patient with severe hemophilia A who has been treated with ROCTAVIAN\n\nAndrea began working as a Nurse Coordinator at the Hemophilia Outreach Center (HOC) in 2014\, and in January 2023\, she began serving as HOC’s first Family Nurse Practitioner. Since starting at HOC\, she has led several initiatives including the administration of gene therapy (both Hemgenix and Roctavian). She currently sits on the Region V-West Regional Council and Regional Gene Therapy Working Group and has served as the ATHN Community of Practice Regional Chair. Prior to her time at HOC\, she worked as an ICU nurse and hospital supervisor at St. Mary’s Hospital in Green Bay\, WI.
URL:https://hemoalliance.org/alliance-events/a-webinar-from-biomarin-a-collaborative-journey-roctavian-patient-provider-perspectives/
CATEGORIES:Members Only,Webinar
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