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METHOD:PUBLISH
X-ORIGINAL-URL:https://hemoalliance.org
X-WR-CALDESC:Events for Hemophilia Alliance
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TZID:America/New_York
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DTSTART:20230312T070000
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DTSTART:20231105T060000
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DTSTART:20240310T070000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231127T130000
DTEND;TZID=America/New_York:20231127T140000
DTSTAMP:20260403T190453
CREATED:20231031T175111Z
LAST-MODIFIED:20231031T175452Z
UID:45934-1701090000-1701093600@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from HEMA Biologics - A different treatment option for Inhibitor patients
DESCRIPTION:Date: Monday\, November 27\, 2023\nTime: 1:00pm – 2:00pm ET \n\n \nTITLE:\nA different treatment option for Inhibitor patients \nOBJECTIVE:\nThis presentation will provide an overview of inhibitors and explore the efficacy\, safety\, tolerability\, clinical development\, and reasons to consider a different treatment option. \nTARGET AUDIENCE:\nAll HTC Staff \nSPEAKER:\n\nGuy Young\, MD. \nDirector\, Hemostasis and Thrombosis Center\nDirector\, Clinical Coagulation Laboratory Cancer and Blood Disorders Institute Children’s Hospital Los Angeles\nProfessor of Pediatrics\, University of Southern California Keck School of Medicine
URL:https://hemoalliance.org/alliance-events/a-webinar-from-hemabiologics-a-different-treatment-option-for-inhibitor-patients/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231129T130000
DTEND;TZID=America/New_York:20231129T140000
DTSTAMP:20260403T190453
CREATED:20231121T163230Z
LAST-MODIFIED:20231121T163230Z
UID:46010-1701262800-1701266400@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from Takeda - Overview of Adzynma (rADAMTS13) Prescribing Information
DESCRIPTION:Date: Wednesday\, November 29\, 2023\nTime: 1:00pm – 2:00pm ET \n\n \nTITLE:\nOverview of Adzynma (rADAMTS13) Prescribing Information \nOBJECTIVE:\nInform on the new approval and prescribing information of Adzynma indicated for prophylactic and on-demand use for patients with congenital TTP. \nTARGET AUDIENCE:\nHematologists\, NPs\, nurses\, pharmacists \nSPEAKER:\n\nAli Mokdad\, MD\, PhD\, MBA\, Medical Director\, Takeda
URL:https://hemoalliance.org/alliance-events/a-webinar-from-takeda-overview-of-adzynma-radamts13-prescribing-information/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231209
DTEND;VALUE=DATE:20231213
DTSTAMP:20260403T190453
CREATED:20230227T161438Z
LAST-MODIFIED:20230320T213737Z
UID:41637-1702080000-1702425599@hemoalliance.org
SUMMARY:🟦 Non-Member Event : ASH Annual Meeting
DESCRIPTION:Date: December 9th – 12th (San Diego\, CA & Virtual)\nClick here for info.
URL:https://hemoalliance.org/alliance-events/non-member-event-ash-annual-meeting/
CATEGORIES:Non Members
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240107
DTEND;VALUE=DATE:20240110
DTSTAMP:20260403T190453
CREATED:20230616T175846Z
LAST-MODIFIED:20231018T140536Z
UID:43726-1704585600-1704844799@hemoalliance.org
SUMMARY:🟥 Member Event : 2024 Hemophilia Alliance Board Retreat
DESCRIPTION:Date: January 7 – 9\nLocation: Dallas\, TX
URL:https://hemoalliance.org/alliance-events/2024-hemophilia-alliance-board-retreat/
CATEGORIES:Members Only
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240123T130000
DTEND;TZID=America/New_York:20240123T140000
DTSTAMP:20260403T190453
CREATED:20231127T162517Z
LAST-MODIFIED:20231127T162517Z
UID:65964-1706014800-1706018400@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from Takeda - Real-world Characterization of Female Hemophilia A Carriers in the US
DESCRIPTION:Date: Tuesday\, January 23\, 2024\nTime: 1:00pm – 2:00pm ET \n\n \nTITLE:\nReal-world Characterization of Female Hemophilia A Carriers in the US \nOBJECTIVE:\nSummarize recently published real-world data on Female Hemophilia A Carriers in the US\, including clinical and healthcare resource utilization information. \nTARGET AUDIENCE:\nHematologists\, NPs\, nurses\, pharmacists \nSPEAKER:\n\nJorge Caicedo\, MD\,  Sr. Medical Director\, Takeda
URL:https://hemoalliance.org/alliance-events/a-webinar-from-takeda-real-world-characterization-of-female-hemophilia-a-carriers-in-the-us/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240124
DTEND;VALUE=DATE:20240127
DTSTAMP:20260403T190453
CREATED:20230616T180047Z
LAST-MODIFIED:20231101T124311Z
UID:43728-1706054400-1706313599@hemoalliance.org
SUMMARY:🟥 Member Event : 2024 Pharmacist CE Conference
DESCRIPTION:Date: January 24 – 26\nLocation: Charleston\, South Carolina \n\nPlease contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.
URL:https://hemoalliance.org/alliance-events/2024-pharmacist-ce-conference/
LOCATION:The Limited Hotel\, 425 Meeting Street\, Charleston\, SC\, 29403\, United States
CATEGORIES:Members Only
ORGANIZER;CN="Mark Plencner":MAILTO:mark@hemoalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240228
DTEND;VALUE=DATE:20240302
DTSTAMP:20260403T190453
CREATED:20230616T180253Z
LAST-MODIFIED:20240203T000455Z
UID:43730-1709078400-1709337599@hemoalliance.org
SUMMARY:🟥 Member Event : 2024 Linda Gammage Social Worker Conference
DESCRIPTION:Date: Febuary 28 – March 1\nLocation: New Orleans\, LA \n\nPlease contact Jeff Amond with any questions regarding this registration at amond@hemoalliance.org or 608-206-3132.
URL:https://hemoalliance.org/alliance-events/2024-linda-gammage-social-worker-conference/
LOCATION:Renaissance New Orleans Arts Warehouse District Hotel\, 700 Tchoupitoulas Street\, New Orleans\, LA\, 70130\, United States
CATEGORIES:Members Only
ORGANIZER;CN="Jeff Amond":MAILTO:amond@hemoalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240305T130000
DTEND;TZID=America/New_York:20240305T140000
DTSTAMP:20260403T190453
CREATED:20240223T163743Z
LAST-MODIFIED:20240223T163743Z
UID:46363-1709643600-1709647200@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from BD SUMHAC - Advocating for Access to Behavioral Health Treatment for the Bleeding Disorders Community
DESCRIPTION:Date: Tuesday\, March 5\, 2024\nTime: 1:00pm – 2:00pm ET \n\n \nTITLE:\nAdvocating for Access to Behavioral Health Treatment for the Bleeding Disorders Community \nWEBINAR OBJECTIVE:\nThis presentation will educate HTC providers about the barriers to access to inpatient and residential mental health and substance use treatment facilities for people with bleeding disorders. It will provide tools that HTC providers can use to facilitate access to behavioral health treatment for their patients and resources for responding to denials. Finally\, it will briefly introduce the federal and state advocacy work of the Bleeding Disorders Substance Use and Mental Health Access Coalition\, and share opportunities for provider involvement. \nSPEAKERS:\n \n\nKate Bazinsky\, MPH – Chair\, Bleeding Disorders Substance Use and Mental Health Access Coalition\nEmily Wheat\, PhD – Psychologist\, University of Colorado Hemophilia Treatment Center\nJen Feldman\, RN\, MSN – Nurse Coordinator\, University of Massachusetts Memorial Hemophilia Treatment Center \nLucy Ramirez\, LCSW – Social Worker\, Rush University Medical Center Hemophilia Treatment Center
URL:https://hemoalliance.org/alliance-events/a-webinar-from-bd-sumhac-advocating-for-access-to-behavioral-health-treatment-for-the-bleeding-disorders-community/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240314T130000
DTEND;TZID=America/New_York:20240314T140000
DTSTAMP:20260403T190453
CREATED:20240220T134949Z
LAST-MODIFIED:20240220T134949Z
UID:46343-1710421200-1710424800@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from Pfizer - Exploring the Science and Possibilities of Gene Therapy in Hemophilia
DESCRIPTION:Date: Thursday\, March 14\, 2024\nTime: 1:00pm – 2:00pm ET \n\n \nTITLE:\nExploring the Science and Possibilities of Gene Therapy in Hemophilia \nWEBINAR OVERVIEW:\nBy attending this webinar\, you will discover the scientific approach of gene therapy\, understand gene therapy objectives for patients with hemophilia\, and explore the shared decision-making process to accompany your patients in their decision journey. \nSPEAKER:\n\nNathan T. Connell\, MD\, MPH\, \nBoston Hemophilia Center\nBrigham and Women’s Hospital and Harvard Medical School \nDr. Nathan Connell is Chief of Medicine at Brigham and Women’s Faulkner Hospital\, Vice Chair of Medicine at Brigham and Women’s Hospital\, Associate Director of the Boston Hemophilia Center\, and Associate Professor of Medicine at Harvard Medical School. In addition to his work defining the field of systems-based hematology\, he co-chaired the ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of von Willebrand disease.
URL:https://hemoalliance.org/alliance-events/a-webinar-from-pfizer-exploring-the-science-and-possibilities-of-gene-therapy-in-hemophilia/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240325
DTEND;VALUE=DATE:20240328
DTSTAMP:20260403T190453
CREATED:20230616T180428Z
LAST-MODIFIED:20230921T164156Z
UID:43732-1711324800-1711583999@hemoalliance.org
SUMMARY:🟥 Member Event : 2024 New HTC Staff Orientation
DESCRIPTION:Date: March 25 – 27\nLocation: TBD \nPLEASE NOTE REGISTRATION FOR THIS MEETING WILL CLOSE ON FEBRUARY 9\, 2024. \n\nPlease contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.
URL:https://hemoalliance.org/alliance-events/2024-new-htc-staff-orientation/
CATEGORIES:Members Only
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240403
DTEND;VALUE=DATE:20240407
DTSTAMP:20260403T190453
CREATED:20230828T153649Z
LAST-MODIFIED:20230830T215730Z
UID:45205-1712102400-1712447999@hemoalliance.org
SUMMARY:🟦 Non-Member Event : THSNA 2024 Thrombosis & Hemostasis Summit of North America
DESCRIPTION:Date: April 3rd (Pre-Summit Workshops)\nDate: April 4th – 6th (Chicago\, IL & Virtual)\nClick here for info.
URL:https://hemoalliance.org/alliance-events/thsna-2024-thrombosis-hemostasis-summit-of-north-america/
CATEGORIES:Non Members
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240415
DTEND;VALUE=DATE:20240419
DTSTAMP:20260403T190453
CREATED:20230616T180726Z
LAST-MODIFIED:20231117T154833Z
UID:43734-1713139200-1713484799@hemoalliance.org
SUMMARY:🟥 Member Event : 2024 Spring Members Meeting & Hemophilia Alliance Hill Day
DESCRIPTION:Date: April 15 – 18\nLocation: Washington\, DC \n\nMonday 4/15 – Welcome Reception\nTuesday 4/16 – Spring Members Meeting\nWednesday 4/17 – Spring Members Meeting\, Hill Day Training and Joe’s Retirement Party\nThursday 4/18 – Hemophilia Alliance Hill Day\n\n\nPlease contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.
URL:https://hemoalliance.org/alliance-events/2024-spring-members-meeting-hemophilia-alliance-hill-day/
CATEGORIES:Members Only
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240507T140000
DTEND;TZID=America/New_York:20240507T150000
DTSTAMP:20260403T190453
CREATED:20240311T173328Z
LAST-MODIFIED:20240311T173328Z
UID:46401-1715090400-1715094000@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from Genentech - Reinforcing 10+ years of clinical trial experience with a subcutaneous prophylaxis treatment
DESCRIPTION:Date: Tuesday\, May 7\, 2024\nTime: 2:00pm – 3:00pm ET \n\n \nTITLE:\nReinforcing 10+ years of clinical trial experience with a subcutaneous prophylaxis treatment\, including the latest data in infants \nWEBINAR OBJECTIVE:\nDr. Mike Silvey will share his perspective on managing patients with hemophilia A using a subcutaneous prophylactic treatment. The presentation will include the pivotal efficacy and safety data that is the foundation of the ongoing clinical trial program in patients with and without FVIII inhibitors\, including an overview of real-world experience. Dr. Silvey will share updates from the latest trial in infants and previously untreated patients. The webinar will feature brain teasers\, and showcase social media that’s engaging the hemophilia community and polls. Q&A session will follow the program.  \nSPEAKER:\n\nMichael Silvey\, DO\nHTC Director – Children’s Mercy HTC\, Kansas City\, MO.\nAssociate Professor of Pediatrics – University of Missouri-Kansas City School of Medicine. \nSPEAKER’S BIO:\nMichael Silvey\, DO\, is an Associate Professor of Pediatrics at the University of Missouri-Kansas City School of Medicine and the Associate Director of the Kansas City Regional Hemophilia Treatment Center at Children’s Mercy Hospital in Kansas City\, Missouri. He received his medical degree from The Chicago College of Osteopathic Medicine. He completed his general pediatrics residency at the University of Texas Health Science Center-San Antonio and his pediatric hematology/oncology fellowship at Children’s Mercy Hospital in Kansas City\, Missouri. His primary clinical and research interests are hemophilia\, inherited platelet function disorders\, and the coagulation system in patients with congenital heart disease as well as patients need ECMO. Dr. Silvey serves as a primary investigator for several research studies involving both bleeding and clotting disorders. In addition to enjoying taking care of pediatric bleeding disorder patients\, he also likes to spend lots of time with his wife and two children and getting out on the golf course.
URL:https://hemoalliance.org/alliance-events/a-webinar-from-genentech-reinforcing-10-years-of-clinical-trial-experience-with-a-subcutaneous-prophylaxis-treatment/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240514T140000
DTEND;TZID=America/New_York:20240514T150000
DTSTAMP:20260403T190453
CREATED:20240410T142934Z
LAST-MODIFIED:20240410T142934Z
UID:46542-1715695200-1715698800@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Presents - Hemophilia Alliance Network Services/Emerging Therapy Solutions
DESCRIPTION:Date: Tuesday\, May 14\, 2024\nTime: 2:00pm – 3:00pm ET \n\n \nTITLE:\nHemophilia Alliance Network Services/Emerging Therapy Solutions \nA Gene Therapy Payer Contract \nWEBINAR DESCRIPTION:\nThe past twelve to eighteen months have been landmark times for gene therapy treatments for individuals with bleeding disorders.  While the third party payers\, reinsurers and prescription benefit plans have begun forming strategies for benefit plan coverage\, pricing\, patient qualifications and follow up reporting. Hemophilia Alliance Network Services (HANS) has been hard at work arranging for adequate contractual arrangements with important entities influencing Payor behavior and strategies for the use of Gene Therapy.  The HANS goal was to create relationships with entities that could offer acceptable contractual terms but importantly influence the common prior authorization process to provide a clear path for delivery of the product\, provision of the service to Hemophilia Treatment Center (HTC) patients\, and subsequent confidence in the payment for this high-cost therapy.   \nHANS is pleased to announce that it has executed an Agreement with Emerging Therapy Solutions (ETS) effective January 1\, 2024.  Emerging Therapy Solutions® (ETS)\, an industry leader in providing cutting-edge services to help payers and other risk-bearing entities prepare for the accelerating growth in cell and gene therapies and other high-cost\, complex treatments. This webinar will provide a high-level overview from HANS leadership regarding the Agreement with ETS as well as how HTCs can gain access to this Agreement.  HANS will ask the leadership from ETS to describe the business model and services they provide\, the ETS customer base and provide important information on how to HTCs can intersect with ETS to obtain necessary approvals for gene therapy treatments for qualified patients.  During this one-hour webinar you will hear important details on the authorization process\, clinical review and administrative details that provide a clearer path to benefit coverage and payment for HTC patients rather than the time-consuming process of single case agreements with payors that many HTCs have experienced thus far. \nThis webinar is available to ALL Hemophilia Treatment Centers that are members of the Hemophilia Alliance\, it is NOT restricted to participating members of the Hemophilia Alliance Network Services Agreements.  If an HTC is not a HANS member today and wishes to join HANS to access the ETS agreement \, please reach out to your Member and Community Relations Team Member who will assist you.  Administrators\, Finance team members\, Pharmacists and Physicians are ideal candidates to attend this webinar.  However\, it is open to any interested employee of member HTCs. \nSPEAKERS & BIOs:\n\nRoland Lamy\, Jr. – Vice President of Payer Relations\nRoland Lamy has held a variety of leadership positions in the healthcare industry including sales management\, underwriting\, employee benefit and rate development\, hospital and physician negotiations and contracting\, and government programs oversight and business management. Click here to learn more about Roland… \n\nZack Duffy – Director of Member & Community Relations\nMost recently\, Zack Duffy was the Program Administrator for The Hemophilia Center at Oregon Health & Science University (OHSU) overseeing the administrative and business functions of the clinic and pharmacy. He started with the Factor Program at The Hemophilia Center in 2013\, when it was a 340B physician dispense model. In 2017\, he led the transition from a physician dispense to a pharmacy dispensing model. Click here to learn more about Zack…
URL:https://hemoalliance.org/alliance-events/hemophilia-alliance-presents-hemophilia-alliance-network-services-emerging-therapy-solutions/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240515
DTEND;VALUE=DATE:20240518
DTSTAMP:20260403T190453
CREATED:20230908T175639Z
LAST-MODIFIED:20230908T175639Z
UID:65952-1715731200-1715990399@hemoalliance.org
SUMMARY:🟥 Member Event : 2024 Physical Therapists CE Conference
DESCRIPTION:Date: May 15 – 17\nLocation: Aurora\, CO \n\nPlease contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.
URL:https://hemoalliance.org/alliance-events/2024-physical-therapist-ce-conference-2/
LOCATION:Search
CATEGORIES:Members Only
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240605T130000
DTEND;TZID=America/New_York:20240605T140000
DTSTAMP:20260403T190453
CREATED:20240513T202047Z
LAST-MODIFIED:20240513T202047Z
UID:65965-1717592400-1717596000@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from Bayer - Clinical review of the Jivi® PROTECT VIII Trial and insights from HEM-POWR: A Real-World Evidence (RWE) Study of Jivi®
DESCRIPTION:Date: Wednesday\, June 5\, 2024\nTime: 1:00pm – 2:00pm ET \n\n \nTOPIC:\nClinical review of the Jivi® PROTECT VIII Trial and insights from HEM-POWR: A Real-World Evidence (RWE) Study of Jivi® \nWEBINAR OVERVIEW: \n\nThis session includes key information about Jivi including\, safety and efficacy data from the clinical trials\, step-wise dosing and Jivi RWE Data from the 4th interim analysis of HEM-POWR\, a multinational\, open-label\, prospective\, non-interventional\, multicenter cohort study of Jivi.\nThere will also be a review of the Q2 2024 340B pricing for the Bayer Hemophilia A portfolio under the Hemophilia Alliance Contract.\n\nSPEAKER:\n\nDr. Vanessa K. Salinas-Lunas\nPediatric Hematology\nCenter for Inherited Blood Disorders \nSPEAKER’S BIO:\nN/A
URL:https://hemoalliance.org/alliance-events/a-webinar-from-bayer-clinical-review-of-the-jivi-protect-viii-trial-and-insights-from-hem-powr-a-real-world-evidence-rwe-study-of-jivi/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240610
DTEND;VALUE=DATE:20240613
DTSTAMP:20260403T190453
CREATED:20230908T175404Z
LAST-MODIFIED:20240731T135554Z
UID:45495-1717977600-1718236799@hemoalliance.org
SUMMARY:🟥 Member Event : 2024 Nurses CE Conference
DESCRIPTION:Date: June 10 – 12\nLocation: Portland\, Maine
URL:https://hemoalliance.org/alliance-events/2024-nurses-ce-conference/
CATEGORIES:Members Only
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240620T140000
DTEND;TZID=America/New_York:20240620T150000
DTSTAMP:20260403T190453
CREATED:20240609T180107Z
LAST-MODIFIED:20240609T180107Z
UID:65966-1718892000-1718895600@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts – Practice Considerations for ROCTAVIAN™ (valoctocogene roxaparvovec-rvox) from BioMarin
DESCRIPTION:Date: Thursday\, June 20\, 2024\nTime: 2:00pm – 3:00pm ET \n\n \nTitle: Practice Considerations for ROCTAVIAN™ (valoctocogene roxaparvovec-rvox)  \nObjectives:   \n\n\nReview coverage and typical prior authorization criteria for ROCTAVIAN\n\nReview considerations and pricing education available for single-case agreements\n\nHemophilia Alliance’s gene therapy support for Member Hemophilia Treatment Centers\n\nSpeakers: \n\n\nJosh Sammon\, PharmD\, Senior Director\, Market Access\, Hemophilia\n\nHemophilia Alliance Team
URL:https://hemoalliance.org/alliance-events/a-webinar-on-practice-considerations-for-roctavian-from-biomarin/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240625T130000
DTEND;TZID=America/New_York:20240625T140000
DTSTAMP:20260403T190453
CREATED:20240606T185838Z
LAST-MODIFIED:20240606T185838Z
UID:47764-1719320400-1719324000@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts – Wilate Prophylaxis in VWD – Results from the WIL-31 Study from Octapharma
DESCRIPTION:Date: Tuesday\, June 25\, 2024\nTime: 1:00pm – 2:00pm ET \n\n \nTitle: Wilate Prophylaxis in VWD – Results from the WIL-31 Study \nObjectives:\n1) Understand the bleeding symptoms experienced by folks with von Willebrand disease\n2) Understand the benefits of wilate prophylaxis in von Willebrand disease across different ages and types\n3) Understand the lack of von Willebrand factor and FVIII accumulation during wilate prophylaxis  \nSpeaker:\n\nClaudio Sandoval\nSenior Director of Scientific & Medical Affairs at Octapharma \nClaudio Sandoval is the Senior Director of Scientific & Medical Affairs at Octapharma. Before his current role he was a pediatric hematologist-oncologist for 30 years caring for children with bleeding disorders\, cancer\, sickle cell disease\, and other maladies. Claudio graduated from New York Medical College and trained at Schneider Children’s Hospital in New Hyde Park\, NY and St. Jude Children’s Research Hospital in Memphis\, TN.
URL:https://hemoalliance.org/alliance-events/wilate-prophylaxis-in-vwd-results-from-the-wil-31-study-from-octapharma/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240711T130000
DTEND;TZID=America/New_York:20240711T140000
DTSTAMP:20260403T190453
CREATED:20240617T165403Z
LAST-MODIFIED:20240916T144535Z
UID:65967-1720702800-1720706400@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Presents - Navigating Patient Assistance and Copay Assistance Schemes
DESCRIPTION:Date: Thursday\, July 11\, 2024\nTime: 1:00pm – 2:00pm ET \n\n \nTitle:\nUnderstanding the difference between Copay Accumulators\, Copay Maximizers\, and Alternative Funding Programs. \nObjectives: \n\nIn this comprehensive session\, attendees will gain a deep understanding of three critical elements of the difference between patient access barriers: copay accumulators\, copay maximizers\, and alternative funding programs. This talk will demystify these concepts\, explain how each mechanism operates\, their impact on patients’ out-of-pocket costs\, and the broader implications for patients\, providers and insurers.\nBy the end of this session\, attendees will be equipped with the knowledge and tools to better understand the nuances of copay accumulators\, copay maximizers\, and alternative funding programs. They will leave with actionable strategies to support patients in managing their out-of-pocket costs while maintaining access to essential medications.\n\nSpeakers:\n\nBecky Burns\nCOO & CFO of the Bleeding and Clotting Disorders Institute\, Peoria\, IL. Click here to learn more about Becky. \n\nKollet Koulianos\nHemophilia Alliance Payer Relations Consultant. Click here to learn more about Kollet.
URL:https://hemoalliance.org/alliance-events/navigating-patient-assistance-and-copay-assistance-schemes/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240716T140000
DTEND;TZID=America/New_York:20240716T150000
DTSTAMP:20260403T190453
CREATED:20240629T004512Z
LAST-MODIFIED:20240629T004512Z
UID:65970-1721138400-1721142000@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts – An interactive discussion on VWD case-based experience from Takeda
DESCRIPTION:Date: Tuesday\, July 16\, 2024\nTime: 2:00pm – 3:00pm ET \n\n \nDiscussion Topic: VWD Case-Based Experience \nDescription:\nJoin our expert\, Dr. Maissaa Janbain\, MD\, for an interactive discussion about managing patients who are living with VWD. Dr. Janbain will guide you through a VWD case-based experience\, including reviewing treatment history and discussing how VONVENDI [von Willebrand Factor (Recombinant)] may be used for on-demand treatment of gastrointestinal (GI) bleeding. \nSpeaker:\n\nMaissaa Janbain\, MD \nMaissaa Janbain\, MD is Currently an Associate Professor of Clinical Medicine at Tulane University; and serves as the Director of the Louisiana Center for bleeding and clotting disorders. Dr. Janbain has received multiple awards and grants (including National Hemophilia Foundation Fellowship Award 2014\, Louisiana Clinical and Translational Research Roadmap Scholarship 2015\, HTRS Mentored Research Award 2017 and School of Medicine Scientist Pipeline Program 2017) that allow her to focus her research and time on taking care of patients with benign hematologic disorders\, with an emphasis on bleeding disorders such as hemophilia and von Willebrand disease but also thrombosis and platelet disorders. She has presented at several national and international meetings and her research work has been published in several journals. Dr. Janbain is a founding member of the VENUS (venous thromboembolic network of the US) network and a member of the steering committee of ADVANCE US\, co- chairing the project sub-committee.
URL:https://hemoalliance.org/alliance-events/an-interactive-discussion-on-vwd-case-based-experience-from-takeda/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240821T130000
DTEND;TZID=America/New_York:20240821T140000
DTSTAMP:20260403T190453
CREATED:20240807T200904Z
LAST-MODIFIED:20240816T140453Z
UID:67941-1724245200-1724248800@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Presents - Genetic Testing Program
DESCRIPTION:Date: Wednesday\, August 21\, 2024\nTime: 1:00pm – 2:00pm ET \n \n \n  \nTitle:\nHemophilia Alliance Genetic Testing Program \nHemophilia Alliance has introduced a new Genetic Testing Program as of August 1\, 2024. This initiative offers genetic testing for individuals with Hemophilia A\, Hemophilia B\, and von Willebrand’s disease. The program is specifically designed for patients receiving care at Hemophilia Alliance Member Treatment Centers who either lack insurance coverage\, are ineligible for other free genetic testing programs or studies\, or face prohibitive out-of-pocket costs. The testing will be conducted by Bloodworks in Washington state and Versiti in Wisconsin. \nWho will be eligible for free testing? \n\nPatients receiving care at a Hemophilia Alliance Member HTC who are not eligible for other available genetic testing free programs or studies AND meet one or more of the following criteria:\n\nPatient does not have insurance coverage.\nPatient does not have coverage for genetic testing under their insurance plan\, i.e. not a covered benefit.\nPatients who cannot afford the out-of-pocket expenses associated with the testing and are at\, or below\, 400% of the Federal Poverty Level.\n\n\n\nAdditional information on the program and how to get started can be found here.
URL:https://hemoalliance.org/alliance-events/hemophilia-alliance-genetic-testing-program/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240912
DTEND;VALUE=DATE:20240915
DTSTAMP:20260403T190453
CREATED:20240816T152754Z
LAST-MODIFIED:20240816T153134Z
UID:68243-1726099200-1726358399@hemoalliance.org
SUMMARY:🟦 Non-Member Event : 2024 NBDF BDC
DESCRIPTION:Date: September 12 – 14\, 2024 (Atlanta\, GA)\nClick here for info.
URL:https://hemoalliance.org/alliance-events/non-member-event-2024-nbdf-bdc/
CATEGORIES:Non Members
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240913
DTEND;VALUE=DATE:20240916
DTSTAMP:20260403T190453
CREATED:20240816T153430Z
LAST-MODIFIED:20240816T153430Z
UID:68248-1726185600-1726444799@hemoalliance.org
SUMMARY:🟦 Non-Member Event : 2024 Foundation for Women & Girls with Bleeding Disorders
DESCRIPTION:Date: September 13 – 15\, 2024 (Long Beach\, CA)\nClick here for info.
URL:https://hemoalliance.org/alliance-events/non-member-event-2024-foundation-for-women-girls-with-bleeding-disorders/
CATEGORIES:Non Members
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240922
DTEND;VALUE=DATE:20240925
DTSTAMP:20260403T190453
CREATED:20240816T153752Z
LAST-MODIFIED:20240816T153752Z
UID:68250-1726963200-1727222399@hemoalliance.org
SUMMARY:🟦 Non-Member Event : 2024 Self Insurance Institute of America Annual Conference
DESCRIPTION:Date: September 22 – 24\, 2024 (Phoenix\, AZ)\nClick here for info.
URL:https://hemoalliance.org/alliance-events/non-member-event-2024-self-insurance-institute-of-america-annual-conference/
CATEGORIES:Non Members
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240923
DTEND;VALUE=DATE:20240928
DTSTAMP:20260403T190453
CREATED:20231117T205255Z
LAST-MODIFIED:20240816T153146Z
UID:45993-1727049600-1727481599@hemoalliance.org
SUMMARY:🟦 Non-Member Event : 2024 Partners Physician Academy
DESCRIPTION:Date: September 23 – 27\, 2024 (Carmel\, IN)\nClick here for info.
URL:https://hemoalliance.org/alliance-events/2024-partners-physician-academy/
CATEGORIES:Non Members
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241009
DTEND;VALUE=DATE:20241012
DTSTAMP:20260403T190453
CREATED:20230616T181031Z
LAST-MODIFIED:20241004T194904Z
UID:65944-1728432000-1728691199@hemoalliance.org
SUMMARY:🟥 Member Event : 2024 Fall Members Meeting
DESCRIPTION:Date: October 9 – 11\nLocation: New Orleans\, Louisiana \n  \n \n  \n\nTo download a copy DRAFT AGENDA\, click here.\nTo download a copy GLOSSARY 340B TERMS\, click here.\n\n  \nPlease contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.
URL:https://hemoalliance.org/alliance-events/2024-fall-members-meeting/
LOCATION:New Orleans Marriott Warehouse Arts District Hotel\, 859 Convention Center Boulevard\, New Orleans\, LA\, 70130\, United States
CATEGORIES:Members Only
ATTACH;FMTTYPE=image/png:https://hemoalliance.org/wp-content/uploads/2023/06/FMMcalendaricon.png
ORGANIZER;CN="Jeff Blake":MAILTO:jeff@hemoalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241017T120000
DTEND;TZID=America/New_York:20241017T130000
DTSTAMP:20260403T190453
CREATED:20240903T193616Z
LAST-MODIFIED:20240916T145026Z
UID:68579-1729166400-1729170000@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - Shining a Spotlight: The Journey to Optimize Care in Women and Girls with Hemophilia A
DESCRIPTION:Date: Thursday\, October 17\, 2024\nTime: 12:00pm – 1:00pm ET \n\n \nTopic: \nShining a Spotlight: The Journey to Optimize Care in Women and Girls with Hemophilia A \nObjectives: \n\nShine a light on the topic of women & girls with Hemophilia A\nDiscuss the complexities in the diagnosis of women & girls with Hemophilia A\nReview real-world experiences of women & girls with Hemophilia A\n\n  \nSpeaker: \nAngela Weyand\, MD Co-director\, Hemophilia Treatment Center\, Clinical Associate Professor of Pediatrics\, University of Michigan C.S. Mott Children’s Hospital \n \nDr. Weyand is pediatric hematologist/oncologist from University of Michigan C.S. Mott Children’s Hospital where she is a clinical associate professor. She received her medical degree from U of Michigan and did her residency in Seattle Children’s Hospital\, her fellowship at U of Michigan and her post doc in Hemophilia and Bleeding Disorders with the National Hemophilia Foundation Fellowship Program. \nShe has a particular interest in adolescent girls with bleeding and clotting disorders and issues impacting their care including quality of life.
URL:https://hemoalliance.org/alliance-events/shining-a-spotlight-the-journey-to-optimize-care-in-women-and-girls-with-hemophilia-a/
CATEGORIES:Members Only,Webinar
ATTACH;FMTTYPE=image/png:https://hemoalliance.org/wp-content/uploads/2023/06/Sanofi-New-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241020
DTEND;VALUE=DATE:20241023
DTSTAMP:20260403T190453
CREATED:20240816T154743Z
LAST-MODIFIED:20240816T154743Z
UID:68256-1729382400-1729641599@hemoalliance.org
SUMMARY:🟦 Non-Member Event : 2024 Advanced Topics I Nursing
DESCRIPTION:Date: October 22 – 22\, 2024 (Indiana\, IHTC)\nClick here for info.
URL:https://hemoalliance.org/alliance-events/non-member-event-2024-advanced-topics-i-nursing/
CATEGORIES:Non Members
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241022
DTEND;VALUE=DATE:20241024
DTSTAMP:20260403T190453
CREATED:20240816T154255Z
LAST-MODIFIED:20240816T154255Z
UID:68254-1729555200-1729727999@hemoalliance.org
SUMMARY:🟦 Non-Member Event : 2024 ATHN Data Summit
DESCRIPTION:Date: October 22 – 23\, 2024 (Atlanta\, GA)\nClick here for info.
URL:https://hemoalliance.org/alliance-events/non-member-event-2024-athn-data-summit/
CATEGORIES:Non Members
END:VEVENT
END:VCALENDAR