Hemophilia Alliance

🟥 Member Webinar : Hemophilia Alliance Hosts - A Clinical Overview and Update from Sanofi for Efanesoctocog Alfa, A High Sustained Factor VIII Therapy
2023-10-24 14:00 - 15:00 (America/New_York)
Date: Tuesday, October 24, 2023
Time: 2:00pm – 3:00pm ET

TITLE:
A Clinical Overview and Update from Sanofi for Efanesoctocog Alfa, A High Sustained Factor VIII Therapy
OBJECTIVES:

Highlighting both Efanesoctocog Alfa’s pediatric study, the XTEND-Kids data that were presented at ISTH 2023, as well as an observational study of patients who switched from current therapy to Efanesoctocog Alfa prophylaxis.
Highlighting available lab monitoring program available to your centers.

TARGET AUDIENCE:
All HTC Staff
SPEAKER:

Nancy Epp, PharmD, BCACP
Nancy Epp is a Senior Medical Science Liaison with Sanofi. She supports the Sanofi hemophilia A and B portfolio to provide up-to-date scientific data to healthcare providers. Nancy is based in Houston, Texas, and can be reached by email at Nancy.Epp@sanofi.com.

🟦 Non-Member Event : ATHN Data Summit
2023-10-18 - 2023-10-20
Date: October 18th – 20th (Atlanta, GA)
Click here for info.

🟥 Member Webinar : Hemophilia Alliance Hosts - A Clinical Overview from Novo Nordisk - A Label Update on Rebinyn, (Coagulation Factor IX (Recombinant), GlycoPEGylated: FDA Approval for a Prophylaxis Indication for Persons with Hemophilia B
2023-10-12 13:00 - 14:00
Date: Thursday, October 12, 2023
Time: 1:00pm – 2:00pm ET

TITLE:
A Label Update on Rebinyn, (Coagulation Factor IX (Recombinant), GlycoPEGylated: FDA Approval for a Prophylaxis Indication for Persons with Hemophilia B
OBJECTIVE:
Provide a clinical review of Rebinyn that supports prophylaxis, on-demand and perioperative indication in adults and children
TARGET AUDIENCE:
All HTC Staff
SPEAKER:

Parin Chikani, PharmD, MBA
Medical Account Director, Novo Nordisk Inc
Parin Chikani, lives in the Chicagoland area and earned his Doctorate of Pharmacy degree from the University of Illinois at Chicago, College of Pharmacy and his MBA from Kellstadt Graduate School of Business. Before joining Novo Nordisk, Parin had been in the Pharmacy/Managed Care setting for over 15 years where he held many different roles and leadership positions within Pharmacy and Medical areas of the business. At Novo Nordisk, one of his roles and responsibilities is to ensure payors and clinicians are up-to-date on evidence based clinical and scientific information in the areas of Rare Diseases to help assist them with patient care.

🟥 Member Event : Fall Members Meeting
2023-10-08 - 2023-10-10 | The St. Anthony Hotel, San Antonio, 300 East Travis Street, San Antonio, TX, 78205, United States
Venue: The St. Anthony Hotel
Location: San Antonio, Texas

Please contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.

DRAFT AGENDA:

Oct. 8th – Welcome Reception @ 6pm
Oct. 9th – Breakfast @ 7:30am; Meeeting: 8:30am – 5:00pm; Group Dinner @ 6:30 pm
Oct. 10th – Breakfast @ 7:30am; Meeeting: 8:30am – 3:30pm

🟥 Member Webinar : Hemophilia Alliance Hosts - A Clinical Overview from Novo Nordisk - An injectable, extended half-life recombinant, glycopegylated factor VIII concentrate for Hemophilia A
2023-10-04 13:00 - 14:00
Date: Wednesday, October 4, 2023
Time: 1:00pm – 2:00pm ET

TITLE:
An injectable, extended half-life recombinant, glycopegylated factor VIII concentrate for Hemophilia A
OBJECTIVE:
Provide a clinical overview of Esperoct that supports prophylactic, on-demand and perioperative management indications in adults and children.
TARGET AUDIENCE:
All HTC Staff
SPEAKER:

Parin Chikani, PharmD, MBA
Medical Account Director, Novo Nordisk Inc
Parin Chikani, lives in the Chicagoland area and earned his Doctorate of Pharmacy degree from the University of Illinois at Chicago, College of Pharmacy and his MBA from Kellstadt Graduate School of Business. Before joining Novo Nordisk, Parin had been in the Pharmacy/Managed Care setting for over 15 years where he held many different roles and leadership positions within Pharmacy and Medical areas of the business. At Novo Nordisk, one of his roles and responsibilities is to ensure payors and clinicians are up-to-date on evidence based clinical and scientific information in the areas of Rare Diseases to help assist them with patient care.

🟥 Member Webinar : Hemophilia Alliance Hosts - A Case Discussion from Takeda on Adult Severe Type 3 von Willebrand Disease Patient
2023-09-20 13:00 - 14:00
Date: Wednesday, September 20, 2023
Time: 1:00pm – 2:00pm ET

TITLE:
Case Discussion: Adult Severe Type 3 von Willebrand Disease Patient
OBJECTIVE:
In case you missed it at the National Bleeding Disorders Foundation conference, join expert Dr. Jonathan Roberts, MD for an interactive discussion about managing patients who are living with von Willebrand Disease (VWD). Dr. Roberts will guide you through a VWD case-based experience, including reviewing treatment history and a treatment option for prophylaxis.
TARGET AUDIENCE:
Hematologists, nurses, pharmacists, and other stakeholders with medical credentials
SPEAKER:

Dr. Jonathan C. Roberts, MD
Dr. Roberts is the Associate Medical Director/Associate Research Director of Bleeding and Clotting Disorders Institute in Peoria IL. Dr. Roberts is also an Associate Professor of Pediatrics and Medicine at the University of Illinois College of Medicine.
His research areas of interest are in advancing novel laboratory assay development to improve the diagnosis of von Willebrand Disease (VWD) and enhancing individualized clinical management of hemophilia, VWD, and other rare bleeding and classical hematologic disorders.

🟦 Non-Member Event : 2023 Partners Physician Academy
2023-09-18 - 2023-09-22
Date: September 18th – 22nd
Click here for info.

🟥 Member Webinar : Hemophilia Alliance Hosts - Simplifi 797 for Hemophilia Alliance member HTC pharmacies
2023-08-22 14:00 - 15:00
Date: Tuesday, August 22, 2023
Time: 2:00pm – 3:00pm ET

The webinar will review how to stay compliant with USP 797

SOP’s
Training
Competencies
Task Management
Reporting
Alerting
Elimination of Blind Spots

Please contact Mark Plencner at mark@hemoalliance.org with questions.

🟦 Non-Member Event : NHF BDC 2023
2023-08-17 - 2023-08-19
Date: August 17th – 19th (National Harbor, MD)
Click here for info.

🟥 Member Webinar : Hemophilia Alliance Hosts - HTC Preparation for ROCTAVIAN™ (valoctocogene roxaparvovec-rvox) from BioMarin
2023-08-08 13:00 - 14:00
Date: Tuesday, August 8, 2023
Time: 1:00pm – 2:00pm ET

TITLE:
HTC preparation for ROCTAVIAN ™ (valoctocogene roxaparvovec-rvox)
OBJECTIVE:
Learn about eligibility testing, ordering, storing, handling and administering ROCTAVIAN
TARGET AUDIENCE:
HTC staff interested in learning about ROCTAVIAN’s clinical and logistical requirements
SPEAKER:

Henry Mead PhD, MBA, MPA
Senior Director, BioMarin Hemophilia North America Medical Affairs
Henry Mead has worked in medical affairs for over two decades in North America and globally. Over the last 15 years it has been his privilege to work closely with hemophilia researchers, clinical investigators, patient advocates, and hemophilia nurses. His experience includes leading medical affairs team’s ensuring they adhere to the principles of credible, accurate and balanced scientific dissemination of data to external customers. Additionally, identifying, vetting, and supporting investigator-initiated research and publishing relevant findings has been an important component of knowledge transfer activities.

🟥 Member Webinar : Hemophilia Alliance Presents - Gene Therapy Update
2023-07-13 14:00 - 15:00
Date: Thursday, July 13, 2023
Time: 2:00pm – 3:00pm ET

TOPIC:
Gene Therapy Update
OBJECTIVES:

Review the status of Roctavian and Hemgenix, gene therapy products and the Alliance contracts with the Biomarin and CSL.
Provide information on how to obtain the products and ensure they are infusion ready.
Examine the rationale behind Biomarin’s decision to use Specialty Pharmacies and TAP for distribution and discuss how using TAP would benefit Hemophilia Treatment Centers (HTCs).
Conduct a comprehensive review of the Alliance Contract with CSL and Biomarin.
Compare and analyze the pricing model and rebate program offered by Biomarin and CSL, specifically in relation to gene therapy products.

We encourage you to submit questions ahead of time you would like to be answered or are just curious about.
SPEAKER:

Joe Pugliese, President & CEO Hemophilia Alliance

🟦 Non-Member Event : 340B Coalition Summer Conference
2023-07-10 - 2023-07-12
Date: July 10th – 12th (Washington, DC)
Click here for info.

🟥 Member Webinar : Hemophilia Alliance Hosts - Value Based Agreements with Payers from Takeda
2023-06-29 14:00 - 15:00
Date: Thursday, June 29, 2023
Time: 2:00pm – 3:00pm ET

TOPIC:
Value Based Agreements with Payers
OBJECTIVES:
Takeda is excited to share more information about the transition from transactional relationships with payers to value based agreements in a real world example. Mark will provide an overview of how these agreements work, the metrics used, and how that fits with hematology. Takeda’s goal is to provide additional perspective on a complicated payer landscape.
SPEAKER:

Mark Gimbert, VP Specialty Pharmacy and Channel Management at Takeda
Mark started at Takeda in 1999 as a sales representative and has held various roles of increasing responsibility. He pioneered a Strategic Partnerships Function within Takeda, focused on accelerating Partner for Access imperatives, construct value-based contracts, and identify tools and resources to assist patients with access to medications. In his current role, Mark has full accountability for leadership and management of all U.S. Managed Markets Specialty Pharmacy relationships, strategic direction, and access.

🟦 Non-Member Event : ISTH 2023 Congress
2023-06-24 - 2023-06-28
Date: June 24th – 28th (Montreal, Canada)
Click here for info.

🟦 Non-Member Event : Texas Bleeding Disorders Conference
2023-06-16 - 2023-06-18
Date: June 16th – 18th (San Antonio, TX)
Click here for info.

🟥 Member Webinar : Hemophilia Alliance Hosts - Discover ALTUVIIIO™, A New Treatment Option for Your Patients from Sanofi
2023-06-15 13:30 - 14:30
Date: Thursday, June 15, 2023
Time: 1:30pm – 2:30pm ET

TOPIC:
Discover ALTUVIIIO™, A New Treatment Option for Your Patients, and the Customized Support Services Designed to Assist You
OBJECTIVES:

Provide background and education on the science behind ALTUVIIIO™ and how to apply it to your clinical practice
Understand the roles and resources that Sanofi’s Patient Support Services Team has to support patients throughout their treatment journey

SPEAKER:

Vivek Sharma, MD, FACP
Associate Professor
Division of Hematology/Oncology
University of Louisville
Vivek R Sharma, MD, FACP is an Associate Professor at the University of Louisville at the Division of Hematology/Oncology. He completed his medical school in India and his Internal Medicine Residency as well as Heme/Onc Fellowship at the University of Louisville. He is the Medical Director of the Adult Hemophilia program in Louisville and also has interest in other rare hematological diseases.

🟥 Member Event : Hemophilia Alliance Hill Day
2023-06-12 - 2023-06-13
Location: Washington, DC

Please contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727.688.2568.

🟦 Non-Member Event : WFH 2023 Comprehensive Care Summit
2023-05-10 - 2023-05-12
Date: May 10th – 12th (Buenos Aires, Argentina)
Click here for info.

🟥 Member Event : New HTC Staff Meeting
2023-05-10 - 2023-05-12 | The Westin New York Grand Central, 212 East 42nd Street, New York, NY, 10017, United States
Location: New York City, NY
Please confirm that you can commit to attend the entire meeting before registering.

If you have questions regarding this registration please contact Sean Singh at sean@hemoalliance.org / 813-748-7226 or Theresa Parker at theresa@hemoalliance.org / 727-688-2568.

🟥 Member Event : 25th Annual Linda Gammage Social Worker Conference
2023-04-26 - 2023-04-29 | San Mateo Marriott San Francisco Airport, 1770 South Amphlett Blvd, San Mateo, CA, 94402, United States
Date: April 26th – 29th
Location: San Mateo, California
Venue: San Mateo Marriott San Francisco Airport

Please contact Jeff Amond with any questions regarding this registration at amond@hemoalliance.org or 608-206-3132.

🟥 Member Webinar : Hemophilia Alliance Presents - Implementation of New Medicare Hemophilia SNF Policy – HTC Strategies That Worked
2023-04-17 13:00 - 14:00
Date: Monday, April 17, 2023
Time: 1:00pm – 2:00pm ET
Click here to register

🟦 Non-Member Event : HFA Annual Symposium
2023-04-13 - 2023-04-16
Date: April 13th – 16th (Orlando, FL)
Click here for info.

🟥 Member Webinar : Hemophilia Alliance Hosts - Considerations for Jivi as the next rFVIII product from Bayer
2023-04-05 13:00 - 14:00
Date: Wednesday, April 5, 2023
Time: 1:00pm – 2:00pm ET
Click here to register

🟦 Non-Member Event : 340B Coalition Winter Conference
2023-03-27 - 2023-03-29
Date: March 27th – 29th (San Diego, CA)
Click here for info.

🟦 Non-Member Event : The Coalition for Hemophilia B 2023 Annual Hybrid Symposium
2023-03-16 - 2023-03-19
Date: March 16th – 19th (Orlando, FL & Virtual)
Click here for info.

🟦 Non-Member Event : HTRS Scientific Symposium
2023-03-10 - 2023-03-12
Date: March 10th – 12th (Orlando, FL)
Click here for info.

🟦 Non-Member Event : NHF Washington Days
2023-03-08 - 2023-03-10
Date: March 8th – 10th (Washington, DC)
Click here for info.

🟥 Member Webinar : Hemophilia Alliance Hosts - Preparing for HEMGENIX - A gene therapy for hemophilia B
2023-03-06 13:30 - 15:00
Date: Monday, March 6th, 2023
Time: 1:30pm – 3:00pm ET
Click here to register

🟥 Member Webinar : Hemophilia Alliance Hosts - VONVENDI Program from Takeda
2023-03-02 13:00 - 14:00
Date: Thursday, March 2nd, 2023
Time: 1:00pm – 2:00pm ET
Click here to register

🟥 Member Event : Hemophilia Alliance 2023 Spring Members Meeting
2023-02-13 - 2023-02-15 | Sheraton Grand Nashville Downtown, 623 Union Street, Nashville, TN, 37219, United States
Date: February 13th – 15th
Location: Nashville, TN
Venue: Sheraton Grand Nashville Downtown
Deadline to book your hotel room is Thursday, January 26th!
Room rate: $229 + taxes/per night
