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X-WR-CALNAME:Hemophilia Alliance
X-ORIGINAL-URL:https://hemoalliance.org
X-WR-CALDESC:Events for Hemophilia Alliance
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TZID:America/New_York
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DTSTART:20250309T070000
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DTSTART:20251102T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250219T130000
DTEND;TZID=America/New_York:20250219T140000
DTSTAMP:20260429T014253
CREATED:20250204T192346Z
LAST-MODIFIED:20250204T192346Z
UID:70040-1739970000-1739973600@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from BioMarin on ROCTAVIAN: Improving Patient Outcomes - Latest Data & Support Initiatives
DESCRIPTION:Date: Wednesday\, February 19\, 2025\nTime: 1:00pm – 2:00pm ET \n  \n \n  \n  \n \nTITLE: \nROCTAVIAN: Improving Patient Outcomes – Latest Data & Support Initiatives \nOBJECTIVE: \nJoin us for a webinar on ROCTAVIAN (valoctocogene roxaparvovec)\, the groundbreaking gene therapy for severe hemophilia A. This webinar will delve into the latest clinical data updates\, showcasing the long-term efficacy and safety of ROCTAVIAN. We’ll also hear a firsthand experience from one of the patients who has received ROCTAVIAN\, offering valuable insights into the real-world impact of this therapy. Finally\, we will explore the comprehensive support programs available to patients\, ensuring access to information\, resources\, and assistance throughout the treatment journey. \nINTENDED AUDIENCE: \nProviders\, HTC staff\, business administrators and decision makers \nSPEAKERS: \n\nPatrick Fogarty\, Executive Medical Director\, US Medical Lead\, Hemophilia\, GMAF\nNick Campbell\, Senior Director\, Patient Support Programs
URL:https://hemoalliance.org/alliance-events/a-webinar-from-biomarin-on-roctavian-improving-patient-outcomes-latest-data-support-initiatives/
CATEGORIES:Members Only,Webinar
ATTACH;FMTTYPE=image/png:https://hemoalliance.org/wp-content/uploads/2022/02/Standard-Manufacturing-Partners-Biomarin_height_191px.png
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DTSTART;TZID=America/New_York:20250226T180000
DTEND;TZID=America/New_York:20250228T140000
DTSTAMP:20260429T014253
CREATED:20240618T181218Z
LAST-MODIFIED:20250205T135322Z
UID:65969-1740592800-1740751200@hemoalliance.org
SUMMARY:🟥 Member Event : 2025 Linda Gammage Social Workers CE Conference
DESCRIPTION:Date: February 26 – 28\, 2025\nLocation: Austin\, TX \n \nPlease contact Jeff Amond with any questions regarding this registration at amond@hemoalliance.org or 608-206-3132.
URL:https://hemoalliance.org/alliance-events/2025-linda-gammage-social-worker-ce-conference/
CATEGORIES:Members Only
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