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PRODID:-//Hemophilia Alliance - ECPv6.3.7//NONSGML v1.0//EN
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METHOD:PUBLISH
X-ORIGINAL-URL:https://hemoalliance.org
X-WR-CALDESC:Events for Hemophilia Alliance
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TZID:America/New_York
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
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TZOFFSETTO:-0500
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DTSTART:20251102T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250429T183000
DTEND;TZID=America/New_York:20250501T153000
DTSTAMP:20260501T172210
CREATED:20240906T192120Z
LAST-MODIFIED:20250416T225146Z
UID:68668-1745951400-1746113400@hemoalliance.org
SUMMARY:🟥 Member Event : 2025 New HTC Staff Meeting
DESCRIPTION:Date: April 29 – May 1\, 2025\nLocation: Orlando\, FL \n\nPlease contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.
URL:https://hemoalliance.org/alliance-events/2025-new-htc-staff-meeting/
CATEGORIES:Members Only
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250506T140000
DTEND;TZID=America/New_York:20250506T150000
DTSTAMP:20260501T172210
CREATED:20250418T140148Z
LAST-MODIFIED:20250421T115523Z
UID:70627-1746540000-1746543600@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from Pfizer on Complications and challenges associated with hemophilia and a rebalancing approach with HYMPAVZI™ (marstacimab-hncq)
DESCRIPTION:Date: Tuesday\, May 6th\, 2025\nTime: 2:00pm – 3:00pm ET \n \n  \n  \n  \n  \n \nWEBINAR TOPIC: \nComplications and challenges associated with hemophilia and a rebalancing approach with HYMPAVZI™ (marstacimab-hncq) \nOBJECTIVES: \n\nEducate attendees on complications and challenges associated with hemophilia\, the novel mechanism of action of HYMPAVZI\, the BASIS Ph3 clinical trial results and dosage and administration of HYMPAVZI\nDiscuss hypothetical patients who may benefit from HYMPAVZI along with a Q&A session.\n\nSPEAKER: \n \nDr. Robert Sidonio\, Jr.\, MD\, MSc \n\n\n\n\n\n\n\nMedical Director of Hemophilia\, Medical Director of the Clinical Research Office Aflac Cancer & Blood Disorders Center Children’s Healthcare of Atlanta\nAssociate Professor of Pediatrics\, Emory University School of Medicine
URL:https://hemoalliance.org/alliance-events/a-webinar-from-pfizer-on-complications-and-challenges-associated-with-hemophilia-and-a-rebalancing-approach-with-hympavzi-marstacimab-hncq/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250507T130000
DTEND;TZID=America/New_York:20250507T140000
DTSTAMP:20260501T172210
CREATED:20250429T011328Z
LAST-MODIFIED:20250429T012225Z
UID:70761-1746622800-1746626400@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from Sanofi - Exploring data and expert perspectives on Qfitlia™ (fitusiran)
DESCRIPTION:Date: Wednesday\, May 7th\, 2025\nTime: 1:00pm – 2:00pm ET \n \n  \n  \n  \n \nWEBINAR TOPIC: \nExploring data and expert perspectives on Qfitlia™ (fitusiran) \nOBJECTIVE: \nDuring this program\, we will explore data and expert perspectives on Qfitlia™ (fitusiran)\, a newly approved prophylactic treatment for patients with hemophilia A and B\, with or without inhibitors. \nSPEAKER: \nVanessa Salinas\, MD – Center for Inherited Blood Disorders Orange\, CA \nDr. Vanessa Salinas is board certified in pediatric hematology-oncology and in general pediatrics. She completed her pediatric hematology-oncology fellowship at CHLA and completed a Coagulation and Bleeding Disorders fellowship at CHLA. She specializes in all areas of hematology with special focus in hemophilia and rare bleeding disorders\, and red cell disorders\, including sickle cell disease and thalassemia. \nDr. Salinas is interested in helping our hemophilia community and empowering our patients and families\, through education and participation. She works closely with the Hemophilia Foundation of Southern California and was awarded as the Medical Professional of the Year in 2019. Dr. Salinas participates in clinical research studies as principal investigator as well as co-investigator. Dr. Salinas advocates for children’s education\, and she enjoys nature and outdoor sports.
URL:https://hemoalliance.org/alliance-events/a-webinar-from-sanofi-exploring-data-and-expert-perspectives-on-qfitlia-fitusiran/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250513T130000
DTEND;TZID=America/New_York:20250513T140000
DTSTAMP:20260501T172210
CREATED:20250418T141315Z
LAST-MODIFIED:20250509T143152Z
UID:70714-1747141200-1747144800@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A webinar from BioMarin - A Collaborative Journey - ROCTAVIAN Patient & Provider Perspectives
DESCRIPTION:Date: Tuesday\, May 13th\, 2025\nTime: 1:00pm – 2:00pm ET \n  \n \n  \n  \n \nWEBINAR TOPIC: \nA Collaborative Journey – ROCTAVIAN Patient & Provider Perspectives \nOBJECTIVE: \nJoin us for an insightful webinar exploring the real-world experiences of patients and providers with ROCTAVIAN. Hear firsthand accounts of the treatment journey\, from initial consultations and administration to outcomes and quality of life changes. Discover how collaborative partnerships between patients and healthcare professionals are shaping the future of Hemophilia A patients. Learn about practical considerations\, clinical insights\, and the empowering potential of ROCTAVIAN. \nAUDIENCE: \nProviders and decision makers \nSPEAKERS: \n\nAndrea Buxton\, APNP\, Family Nurse Practitioner\nA patient with severe hemophilia A who has been treated with ROCTAVIAN\n\nAndrea began working as a Nurse Coordinator at the Hemophilia Outreach Center (HOC) in 2014\, and in January 2023\, she began serving as HOC’s first Family Nurse Practitioner. Since starting at HOC\, she has led several initiatives including the administration of gene therapy (both Hemgenix and Roctavian). She currently sits on the Region V-West Regional Council and Regional Gene Therapy Working Group and has served as the ATHN Community of Practice Regional Chair. Prior to her time at HOC\, she worked as an ICU nurse and hospital supervisor at St. Mary’s Hospital in Green Bay\, WI.
URL:https://hemoalliance.org/alliance-events/a-webinar-from-biomarin-a-collaborative-journey-roctavian-patient-provider-perspectives/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250514
DTEND;VALUE=DATE:20250517
DTSTAMP:20260501T172210
CREATED:20240816T142802Z
LAST-MODIFIED:20250123T220249Z
UID:68229-1747180800-1747439999@hemoalliance.org
SUMMARY:🟥 Member Event : 2025 Physical Therapists CE Conference
DESCRIPTION:Date: May 14 – 16\, 2025\nLocation: Phoenix\, AZ \n \nPlease contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.
URL:https://hemoalliance.org/alliance-events/member-event-2025-physical-therapists-ce-conference/
CATEGORIES:Members Only
ATTACH;FMTTYPE=image/jpeg:https://hemoalliance.org/wp-content/uploads/2024/07/previous-meetings-012.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250519
DTEND;VALUE=DATE:20250522
DTSTAMP:20260501T172210
CREATED:20250424T134725Z
LAST-MODIFIED:20250424T134740Z
UID:70739-1747612800-1747871999@hemoalliance.org
SUMMARY:🟦 Non-Member Event : PARTNERS - Basic Partners Program for Social Workers
DESCRIPTION:Date: May 19th – 21st \nLocation: Indianapolis\, IN
URL:https://hemoalliance.org/alliance-events/non-member-event-partners-basic-partners-program-for-social-workers/
CATEGORIES:Non Members
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