BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Hemophilia Alliance - ECPv6.3.7//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://hemoalliance.org
X-WR-CALDESC:Events for Hemophilia Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250621
DTEND;VALUE=DATE:20250626
DTSTAMP:20260501T183452
CREATED:20250424T135031Z
LAST-MODIFIED:20250424T135044Z
UID:70742-1750464000-1750895999@hemoalliance.org
SUMMARY:🟦 Non-Member Event : ISTH Congress
DESCRIPTION:Date: June 21st – 25th \nLocation: Washington\, DC
URL:https://hemoalliance.org/alliance-events/non-member-event-isth-congress/
CATEGORIES:Non Members
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250626T130000
DTEND;TZID=America/New_York:20250626T133000
DTSTAMP:20260501T183452
CREATED:20250610T183147Z
LAST-MODIFIED:20250610T183147Z
UID:70991-1750942800-1750944600@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Presents - Washington Update Webinar
DESCRIPTION:Date: Thursday\, June 26th\, 2025\nTime: 1:00pm – 2:00pm ET \n \n  \n  \n \nWEBINAR TITLE: \nWashington Update \nSESSION OBJECTIVE: \nCome to hear the latest on actions in Washington that could impact your HTC and your patients – from 340B reform and federal funding for hemophilia programs\, to Congress’ “One Big Beautiful Bill” and how it could lead to people with bleeding disorders losing their Medicaid or ACA health coverage. We’ll answer your questions and give you tools to advocate for your center and patients. \nINTENDED AUDIENCE: \nAll HTC staff \nSPEAKERS: \n\nJohanna Gray and Miriam Goldstein\, Hemophilia Alliance Federal Policy Advisors\, Artemis Policy Group\nDean Hindenlang\, PhD\, Hemophilia Alliance Vice Chair\n\n  \n \nJohanna Gray serves the Hemophilia Alliance as a federal policy advocacy consultant. She has more than a decade of experience in health policy and government relations\, working with clients to develop and implement successful advocacy strategies involving Congress and federal public health agencies. Johanna’s clients include patient advocacy groups\, physician specialty societies\, and associations of specialized treatment centers. \nJohanna’s expertise in health policy ranges from the broadly applicable private insurance market reforms included in the Affordable Care Act (ACA) to the specifics of Medicare reimbursement for particular physician services. During the ACA negotiations\, Johanna led a coalition of seventy patient advocacy groups and other supporters\, which successfully advocated for the elimination of lifetime limits on private health insurance in the law. \nHaving began her career as an intern for then-Senator Barack Obama\, Johanna held several policy analysis and advocacy positions before joining CRD. Johanna received a Master of Public Administration and Certificate in Health Services Management and Policy from the Maxwell School at Syracuse University and a B.A. in Public Policy Studies with honors from the University of Chicago. \n \nMiriam Goldstein joined the Artemis Policy Group as a Senior Policy Advisor in August 2024 after more than seven years at Hemophilia Federation of America. Miriam focuses on federal and state policies impacting patient access to coverage\, access to care\, and affordability. Over the course of her legislative and regulatory work\, Miriam has developed expertise in the Affordable Care Act and insurance reform\, Medicaid eligibility and program requirements; and other keystones of the health policy landscape. \nBefore her time at HFA\, Miriam worked as an attorney in private practice and with the US Securities and Exchange Commission. Miriam earned her J.D. degree from the University of Pennsylvania and her B.A. in history from Yale. She is admitted to practice law in D.C. Miriam lives in Arlington\, Virginia\, and in her free time can often be found cycling on local bike trails with her husband Dave. \n \nDean M. Hindenlang has served the nonprofit and government sectors for almost 30 years\, focusing on strategic planning\, administrative oversight and governance\, and coalition-building through an equity-based lens. As Director of Public Policy and Strategic Initiatives with Cascade Hemophilia Consortium\, his work focuses on coalition-building while helping ensure that individuals needing assistance are advocated for in community and government-based capacities. He is a proven leader in assisting members of marginalized and underserved communities. \nMr. Hindenlang holds a Ph.D. in Public Policy and Administration\, completing his doctoral dissertation on equity in community-based programming. He has a Master of Public Administration\, a Master of Science in Marketing and Communication\, a Master of Healthcare Administration\, and a bachelor’s degree in English. Additionally\, he serves as an adjunct professor\, doctoral faculty methodologist\, and subject matter expert at Franklin University. He also offers undergraduate instruction on social justice and cultural awareness at Southern New Hampshire University. \nAs the Director of Public Policy and Strategic Initiatives\, Dean serves Cascade HC by engaging local and state authorities\, as well as elected officials\, on matters of public policy actions\, projects\, and patient education and advocacy.
URL:https://hemoalliance.org/alliance-events/june-2025-washington-update-webinar/
CATEGORIES:Members Only
END:VEVENT
END:VCALENDAR