BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Hemophilia Alliance - ECPv6.3.7//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://hemoalliance.org
X-WR-CALDESC:Events for Hemophilia Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250812T130000
DTEND;TZID=America/New_York:20250812T140000
DTSTAMP:20260501T210314
CREATED:20250804T120753Z
LAST-MODIFIED:20250804T120753Z
UID:71288-1755003600-1755007200@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Presents - Big Bill\, Big Insurance Impact Webinar
DESCRIPTION:Date: Tuesday\, August 12th\, 2025\nTime: 1:00pm – 2:00pm ET \n \n  \n  \n \nWEBINAR TITLE: \nBig Bill\, Big Insurance Impact – What do HTCs need to know now about coming health insurance changes and how to prepare? \nSESSION OBJECTIVE: \nThe One Big Beautiful Bill Act and other Washington policies are reshaping the insurance landscape for HTCs and their patients with Medicaid and ACA coverage\, starting as soon as later this month! Please join The Hemophilia Alliance for this essential new webinar series\, kicking off with a comprehensive overview of the coming policy changes. We will also provide strategies for HTCs to start to prepare and advocate to help patients maintain vital coverage. Future sessions will tackle specific policy and HTC operational challenges in detail. \nINTENDED AUDIENCE: \nAll HTC staff \nSPEAKERS: \nJohanna Gray\, Hemophilia Alliance Federal Policy Advisors\, Artemis Policy Group \n \nJohanna Gray serves the Hemophilia Alliance as a federal policy advocacy consultant. She has more than a decade of experience in health policy and government relations\, working with clients to develop and implement successful advocacy strategies involving Congress and federal public health agencies. Johanna’s clients include patient advocacy groups\, physician specialty societies\, and associations of specialized treatment centers. \nJohanna’s expertise in health policy ranges from the broadly applicable private insurance market reforms included in the Affordable Care Act (ACA) to the specifics of Medicare reimbursement for particular physician services. During the ACA negotiations\, Johanna led a coalition of seventy patient advocacy groups and other supporters\, which successfully advocated for the elimination of lifetime limits on private health insurance in the law. \nHaving began her career as an intern for then-Senator Barack Obama\, Johanna held several policy analysis and advocacy positions before joining CRD. Johanna received a Master of Public Administration and Certificate in Health Services Management and Policy from the Maxwell School at Syracuse University and a B.A. in Public Policy Studies with honors from the University of Chicago.
URL:https://hemoalliance.org/alliance-events/member-webinar-hemophilia-alliance-presents-big-bill-big-insurance-impact-webinar/
CATEGORIES:Members Only,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250821
DTEND;VALUE=DATE:20250824
DTSTAMP:20260501T210314
CREATED:20250424T135500Z
LAST-MODIFIED:20250424T135518Z
UID:70748-1755734400-1755993599@hemoalliance.org
SUMMARY:🟦 Non-Member Event : NBDF BDC
DESCRIPTION:Date: August 21st – 23rd \nLocation: Denver\, CO
URL:https://hemoalliance.org/alliance-events/non-member-event-nbdf-bdc/
CATEGORIES:Non Members
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250827T140000
DTEND;TZID=America/New_York:20250827T150000
DTSTAMP:20260501T210314
CREATED:20250811T132405Z
LAST-MODIFIED:20250811T134758Z
UID:71300-1756303200-1756306800@hemoalliance.org
SUMMARY:🟥 Member Webinar : Hemophilia Alliance Hosts - A Webinar From Pfizer On Subcutaneous HYMPAVZI (marstacimab-hncq): Learn More From a Real-World Patient Experience
DESCRIPTION:Date: Wednesday\, August 27th\, 2025\nTime: 2:00pm – 3:00pm ET \n  \n \n  \n  \n  \n  \n \nWEBINAR TITLE: \nJuggling Fall Routines Can Be Complicated. Help your patients keep their hemophilia treatment simple with subcutaneous HYMPAVZI (marstacimab-hncq): Learn More From a Real-World Patient Experience. \nOBJECTIVES: \nTo educate attendees on challenges\, shared decision making in hemophilia and introduce HYMPAVZI pen\, dosage\, administration\, and real-world patient experience with HYMPAVZI. \nAUDIENCE: \nAll HTC Staff\, Physicians\, Nurses\, Pharmacists\, etc. \nSPEAKER: \nSteven Pipe\, MD. \nDr. Steven Pipe is a Professor and the Laurence A. Boxer Research Professor of Pediatrics and Professor of Pathology at the University of Michigan\, Ann Arbor\, Michigan\, USA. He is the medical director of the Pediatric Hemophilia and Coagulation Disorders Program and medical director of the Special Coagulation Laboratory. His clinical interests include bleeding and thrombotic disorders and congenital vascular anomalies. Dr Pipe also directs a basic research lab investigating coagulation factor VIII and the molecular mechanisms of hemophilia A. He has been actively involved in clinical trials with novel therapeutics for hemophilia including gene therapy. He was the 2015 recipient of the Leadership in Research Award from the National Hemophilia Foundation. He has served on the Board of Directors for the Hemostasis and Thrombosis Research Society\, as Chair of the Board of Directors for the American Thrombosis and Hemostasis Network and most recently as Chair of the Medical and Scientific Advisory Council to the National Hemophilia Foundation.
URL:https://hemoalliance.org/alliance-events/a-webinar-from-pfizer-on-subcutaneous-hympavzi-marstacimab-hncq-learn-more-from-a-real-world-patient-experience/
CATEGORIES:Members Only,Webinar
END:VEVENT
END:VCALENDAR