Alliance Update, September 2019

Alliance Update

Alliance Seeking Board Nominations
By Heidi Lane, PT, DPT, PCS, Vice Chair, Hemophilia Alliance Board

The Hemophilia Alliance Board Nominating Committee is seeking applicants or suggested nominations to fill one vacancy on the board of directors, with the term beginning January 2020. The interested applicant must support the Hemophilia Alliance mission, vision and programs, be willing to share their knowledge and expertise with the Hemophilia Alliance and be able to participate in bi-monthly board meetings. The Board meets six times per year, three via conference call and three in person. Two of the in person meetings occur at the Hemophilia Alliance membership meetings and one board retreat takes place in January.

Our Mission
The Hemophilia Alliance works to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders.

Our Vision
Through the work of the Hemophilia Alliance, the clinical and pharmacy programs of the Hemophilia Treatment Centers are integrated, stable and sustainable within a changing healthcare environment. They are trusted and respected as the preferred way to provide people with hemophilia and other bleeding disorders access to the full range of care they need.

Applicants or suggested nominees must be employed by a Hemophilia Treatment Center in good standing with the Hemophilia Alliance. Terms are for a two-year period not to exceed 3 consecutive terms. We seek to broadly represent our membership and are encouraging applicants from all regions and disciplines to apply.

Applicants should submit a letter of interest and resume or CV to Heidi Lane at by October 30, 2019 for consideration by the nominating committee.

For more information about the Hemophilia Alliance visit our website

What does it cost to be on the board?
There is no cost to be on the board.

When does the board meet?
Two in person meetings occur at the Hemophilia Alliance membership meetings, one board retreat takes place in January and three conference calls take place on the fourth Thursday of the month at 2pm EST.

What are the qualifications or degrees needed to be on the board?
You must be an employee of the HTC and in good standing with the Hemophilia Alliance. No other qualifications or degrees are needed.

Do I need to hold a particular role in the HTC?

Does my program have to be a large program to be on the board?
Candidates from all types of centers from new startup centers to well established programs are encouraged to apply.

What are some of the things I should include in my letter of interest?
Your role with the factor distribution program.
Things that interest you in serving on the Hemophilia Alliance board and what you feel you will bring as a member of the board.
Include your experience with local, regional, national committees or boards related to hemophilia and related bleeding and clotting disorders.

If you have any additional questions please feel free to contact me at

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Portland Didn’t Disappoint
By Sean Singh

The fall members meeting is behind us and we are already planning the meetings for 2020. The meeting in Portland was our largest and we were excited to have such a great audience. We covered many topics at the meeting and all meeting materials will be posted in the members section of the website. We rely on your feedback and suggestions to plan the meeting and invite speakers and topics. If you attended the meeting and have not yet completed the evaluation, please click here to give us your thoughts on the meeting.

We were asked to pull together a discussion board for pharmacist who work within an HTC. The intent is to get a dialog going between pharmacists to discuss therapy management and share ideas, best practices and be a resource for each other. If you are interested in participating in this group please email

We are working on the 2020 meeting schedule. We will have the Spring members meeting in conjunction with our Hill Day. The meeting will be held at the Marriott Marquis in Washington DC on March 29th to 31st, 2020. Please save the date on your calendar. More information about registration and hotel will be coming out soon.

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23rd Annual Linda Gammage Social Worker Conference

The Hemophilia Alliance is proud to announce the 23rd Annual Linda Gammage Social Worker Conference scheduled for arrival on Wednesday February 26th to Friday February 28th in San Diego, California. This is a clinical conference specifically intended for Social Workers with direct clinical responsibility in the bleeding-disorders field. This two-day event will require a commitment of arrival on Wednesday February 26th and departing after 1 pm on Friday February 28th, 2020. Travel expenses will be paid for by the Hemophilia Alliance. The Hemophilia Alliance will underwrite each participant’s air travel, transfers to and from the hotel, conference hotel accommodations (room and tax) and the group meal expenses. Qualified applicants will be chosen from the pool of applicants*. Information about applying will be sent out at a later date.

This year’s conference will focus on Managing Opioid Addiction and Pain Management in the Bleeding Disorder Patient. Exploring alternative methods without the use of narcotics for managing joint and arthritic pain will be addressed.

Also in this Issue…

Notes from Joe
· Celebrating 20 Years of the Alliance!

Legal Update
· Keeping and Getting Back What’s Yours

Washington Update

Payer Update
· 15 Key Points From Your Payer Team

Notes from the Community
· HTC Patients Highly Satisfied with HTC 340B Programs Nationwide

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Joe Pugliese 215-439-7173
Sean Singh 727-388-7326
Jeff Blake 317-657-5913
Jeff Amond 608-206-3132
Johanna Gray, MPA 703-304-8111
Elizabeth Karan 612-202-3240
Roland P. Lamy, Jr. 603-491-0853
Dr. George L. Oestrich, Pharm.D., MPA 573-230-7075
Ellen Riker 202-257-6670
Mark Plencner 701-318-2910
Kimberly Wolverton Lackman
Michael B. Glomb 202-466-8960
Theresa Parker 727-688-2568
Karen Bowe 717-571-0266
Joel Bellucci 727-504-0491