Board of Directors

Regina Butler, RN-BC

Regina Butler has been the Hemophilia Treatment Center Nurse Coordinator at the Children’s Hospital of Philadelphia (CHOP) since its inception in 1973. She has been the Clinical Manager for the Division of Hematology since 1994 and the Director of the Hemophilia Treatment Centers in the Mid-Atlantic/Region III since 2009. In her role at CHOP, Ms. Butler coordinates the care of over 450 children with bleeding disorders in collaboration with a large, multi-disciplinary team.

Ms. Butler also has served as a consultant to the Centers for Disease Control and Prevention (CDC) to assist in development of educational materials and curricula on bleeding disorders for health care providers and patients and families.

Since the late 1970s, Ms. Butler has had significant involvement in professional committees and organizations within the hemophilia community, including the National Hemophilia Foundation’s (NHF) Nursing Committee, where she served as a founding member and Chairperson, NHF’s Medical and Scientific Advisory Council, and Maternal and Child Health Bureau Executive Committee, on which she is currently co-chair. In 2015, Ms. Butler received the Lifetime Achievement Award from NHF. She is the former U.S. representative to the World Federation of Hemophilia (WFH) Nursing Committee and served as a member of its Communications Committee.

Ms. Butler has published numerous papers on hemophilia, patient/family education, nursing education, and nursing perspectives on hemophilia care and HIV risk reduction. Ms. Butler has presented locally, nationally and internationally on a variety of topics in hemophilia care.