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Alliance Meeting – Fall – September 8th – 10th, 2013 – Baltimore, MD

September 8, 2013 @ 8:00 am - September 10, 2013 @ 5:00 pm

Date: September 8th – 10th, 2013
Location: Baltimore, MD

The Fall Meeting for the members will be on September 8th to 10th in Baltimore at the Renaissance Harbor Place Hotel.

Reservations can be made by calling Marriott reservations at 1 (800) 468-3571 or (410) 547-1200. The meeting rate is $169 per night. High Speed Internet Access in your sleeping room is included in the rate. Please mention the Hemophilia Alliance to get this rate. The cut-off date is August 16th. Please remember that rooms are limited. Please make your reservations as early as possible.

Our Agenda for the meeting can be found below.

The registration form for the meeting can be accessed by clicking here.

Click here to view or download the agenda as a PDF.

Members Meeting
Fall 2013
Renaissance Baltimore
Harbor Place Hotel

Sunday, September 8th, 2013

  • 8:30 am to 1:30 pm Board Meeting
  • 3:00 pm to 3:45 pm Hemophilia Advisory Council
  • 5:30 pm to 7:30 pm Reception and Networking

Monday, September 9th, 2013

Tuesday, September 10th, 2013

Afternoon Session from 1:30 to 4:30

  • Motivational Interviewing by Bruce Berger

Motivational Interviewing: A Therapy for Behavioral Change

Description: The purpose of this program is to assist participants in developing a dialogue with patients that assesses patients’ and parents understanding of hemophilia and its treatment and their motivation to adopt behaviors necessary for changes associated with treatment adherence, lifestyle changes, nutritional support, healthy choices, and hemophilia management. A very specific and validated method for accomplishing this, motivational interviewing, will be taught and demonstrated. Motivational interviewing is a patient-centered process of interpersonal skills used to understand patients’ and caregivers’ representations of illnesses and treatment and healthy behaviors to bring patients to making a commitment to change. The basic idea behind motivational interviewing is that patients and caregivers are often ambivalent or resistant about change. Ambivalence and resistance affects motivation to change and the development of appropriate coping strategies. Motivational interviewing is extremely useful because it teaches the health care provider to explore the patient’s ambivalence, resistance, and concerns. It focuses its attention on dealing with how patients and caregivers make sense of hemophilia and its treatment and then respond to their sense-making in a caring respectful manner. Information and education is tailored to the patient’s understanding and how they are making sense of the illness and its treatment. Motivational interviewing is a patient-centered approach that uses skills to assist the patient in making the argument for change rather than having a health care professional “push” for change.

Objectives: After attending this workshop participants will be able to:

  • Differentiate between practitioner centered thinking and patient centered thinking
  • Understand sense making and practical reasoning and their impact on motivation to change
  • Explain why the principle mode of health care provider-patient communication is often ineffective.
  • Describe the three major variables that affect motivation to change.
  • Discuss and apply the principles of motivational interviewing.
  • Incorporate principles of motivational interviewing into their practices (and their daily lives).

Bruce is President of Berger Consulting, LLC and Emeritus Professor at Auburn University. He has developed comMIt (Comprehensive Motivational Interviewing Training for health care providers) and AU MITI (Auburn University Motivational Interviewing Training Institute) and AU MITI (Auburn University Motivational Training Institute. He has taught motivational interviewing in health care and methods for improving treatment adherence for over 30 years.

He was born in Cleveland, Ohio. Bruce received his BS in Pharmacy from The Ohio State University. After practicing pharmacy for two years he returned to Ohio State and received his Masters and Ph.D. in social and behavioral pharmacy. He taught at Ohio State before moving to West Virginia University in January, 1980. After two years at WVU, Bruce moved to Auburn University and taught there until his retirement from the university in September of 2009.

His research interests included health behavior change and improving treatment adherence. He has written or presented over 800 papers or seminars on these topics.

Meeting Presentation Notes and Audio Powerpoints

Revised 9/3/2013

Name Affiliation
Patricia Amerson
Audra Ames
Tom Arabia
Deborah Armbruster
Donna Arden Bell
Bryana Berry
Larissa Best
Elizabeth Billow
Marina Bischoff
Amanda Blair
Honey Blankenship
Tim Boonstra
Jennifer Borrillo
Angela Boyd
Christine Boyes
Patrice Bravo
Tim Brent
Anna Briggs
Ruth Brown
Laura Carlson
Megan Colletta
Michael Cook
Dan Dalton
Carol DeMatteis
Trish Dominic
Karen Droze
Zack Duffy
Stephanie Gustafson
Nancy Hoard
Steven Hochhauser
Tina Javeri
Amanda Kane
Suzanne Kapica
Nigel Key
Kollet Koulianos
Damian Laber
Gary Lam
Gladys Lee
Katherine Lipsky
Amy LoTurco
Maria Manahan
Raysa Marte
Susan Martin
Helen McIntyre
Debra McNamara
Deanne Miller
Donna Murray
John Myers
Nikanne Peery
Aaron Pflum
Mary Pham
Jessie Pindilli
Judy Primeauz
Carrie Reaume
Kathryn Reese
Brenda Riske
Glen Roy
Joshua Ruple
Mary Spisak
Kimo Stine
Kathy Stone
Debra Swinko
Carol Taketomo
Dezarae Tate
Jeralyn Tucker
Patricia Underland
Tamara Vogel
Jeff Wahal
Bryce Warren
Brooke Werlein
Norma Wolf
Curtis Wyffels
South Texas Hemophilia Treatment Center
The Hemophilia Alliance
Boston Hemophilia Center
Hemophilia Outreach Center
Charleston Area Medical Center
BWH BHC Factor Program
UCSF, Division of Hematology, Oncology
University of Cincinnati
Cincinnati Children’s Hospital Medical Center
South Texas Hemophilia Treatment Center
Cincinnati Children’s Hospital Medical Center
Fairview University Clinic Pharmacy
Tulane University – LA Center for Bleeding & Clotting Disorders
Children’s Hospitals and Clinics of Minnesota
Children’s Hospital Los Angeles
University of Miami
Cascade Hemophilia Consortium
Hemophilia of Georgia
Michigan State University
South Texas Hemophilia Treatment Center
Apexus/340B Prime Vendor Program
Akron Children’s Hospital
Hemophilia of Georgia
Hemophila of Georgia
The Hemophilia Center at Oregon Health & Science University
Gulf States Hemophilia and Thrombophilia Center
Indiana Hemophilia & Thrombosis Center
Adivo Assoicates
Apexus/340B Prime Vendor Program
Penn State Milton S. Hershey Medical Center
Hemophilia Foundation of Michigan
Bleeding and Clotting Disorders Institute
University of South Florida
Adivo Assoicates
Rush Hemophilia and Thrombophilia Center
UT Southwestern Medical Center
Puget Sound Blood Center
Hemophilia of Georgia
RI Hemophilia Center
Johns Hopkins Hemophilia Home Care Program
University of Minnesota Medical Center-Fairview, Center for Bleeding and Clotting Disorders
Boston Hemophilia Center
Henry Ford Health System
Cincinnati Children’s Hospital Medical Center
Puget Sound Blood Center’s Hemophilia Care Program
Spectrum Health/Helen DeVos Children’s Hospital
Center for Inherited Blood Disorders
UWHC Comprehensive Program for Bleeding Disorders
UC Hemophilia & Thrombosis Center
Hemophilia Foundation of Michigan
Region V-West/Great Lakes Hemophilia Foundation
UC Hemophilia & Thrombosis Center
Maine Hemophila and Thrombosis Center
UAMS/ACH Department of Pediatric Hematology
Puget Sound Blood Center
Arkansas Center for Bleeding Disorders
University of Oklahoma Health Science Center
Central PA Hemophilia Treatment Center
Children’s Hospital Los Angeles
South Texas Hemophilia Treatment Center
Center for Inherited Blood Disorders
Johns Hopkins University
The Hemophilia Center at Oregon Health & Science University
HTC Member
Arkansas Centers for Bleeding Disorders
Helen Devos Children’s Hospital
Kansas City Regional HTC
The Bleeding & Clotting Disorders Institute


Name Affiliation
John Barnes
Pam Betz
Val Bias
Jeff Blake
Johanna Gray
Roland Lamy
Stacia Le Blanc
Kathryn McLaughlin
J.T. Morris
George Oestreich
Joe Pugliese
Ellen Riker
Sean Singh
Apexus/340B Prime Vendor Program
The Hemophilia Alliance
National Hemophilia Foundation
Indiana Hemophilia & Thrombosis Center
CRD Associates
The Hemophilia Alliance
The Hemophilia Alliance
The Hemophilia Alliance
The Hemophilia Alliance
CRD Associates
The Hemophilia Alliance


September 8, 2013 @ 8:00 am
September 10, 2013 @ 5:00 pm