National Hemophilia Foundation Award Winners

The Hemophilia Alliance was pleased to attend and support the recent National Hemophilia Foundation annual meeting in Washington, DC. One of the highlights was the annual award luncheon. A list of the award winners can be found below.

Awards of Excellence

Advocate of the Year
Tom Wilmarth
Mary M. Gooley Hemophilia Center
Rochester, NY

Advocate of the Year, named in honor of Joseph Early and Dr. L. Michael Kuhn, recognizes individuals for their outstanding work related to advocacy in the bleeding disorders community. U.S. Representative Joseph D. Early [1933-2012] was a high-ranking member of the House Appropriations Committee until 1993 and a champion for treatment of people with bleeding disorders. Dr. L. Michael Kuhn [1929-1974] was a dedicated treater of people with bleeding disorders in addition to being a strong advocate for the bleeding disorders community.

Genetic Counselor of the Year
Robina Ingram-Rich, RN, MS, MPH
Oregon Health & Science University
Portland, OR

Genetic Counselor of the Year acknowledges an individual who has taken a leading role, carried out with excellence, in assisting, guiding, and educating families and individuals on the genetic inheritance of bleeding disorders.

Nurse of the Year
Susan Zappa, RN, CPN
Cook Children’s Medical Center
Fort Worth, TX

Nurse of the Year honors a nurse who has demonstrated service to the bleeding disorders community beyond day-to-day responsibilities. This individual serves as a role model for others in the field and has a minimum of two years’ experience working in the bleeding disorders community.

Physical Therapist of the Year
Heidi Purrington, PT, DPT
Phoenix Children’s Hospital
Phoenix, AZ

Physical Therapist of the Year, named in honor of Donna Boone, PT, honors an individual who has demonstrated service to the bleeding disorders community above and beyond daily responsibilities. This person serves as a role model for others in the field and has a minimum of two years’ experience working with people with bleeding disorders. Donna Boone, a pioneer in the area of physical therapy and bleeding disorders, is a mentor for many professionals practicing today.

Social Worker of the Year
Margaret (Peg) Geary, MA, MBA, MPH, LCSW, CCM
New England Hemophilia Center
Worster, MA

Social Worker of the year, named in honor of Jill Solomon, honors an individual who has demonstrated outstanding service to the bleeding disorders community beyond their daily responsibilities. This person serves as a role model for others in the field and has a minimum of two years’ experience working with people with bleeding disorders. Jill Solomon was an NHF staff person who was a tireless advocate for social workers. She was beloved by the NHF Social Work Working Group, and the award was renamed in her honor following her death in 1997.

Lifetime Achievement
Patricia Dominic
Hemophilia of Georgia

Lifetime Achievement (named in honor of Dick James) recognizes an individual who has dedicated his or her life to the bleeding disorders community in order to improve the lives of those affected. This person has contributed his or her time and energy on a national and international scale to advance research, care and advocacy, and develop new leadership that will lead this organization into the future. Dick James [1951-1993], who had hemophilia and AIDS, was an advocate and leader on behalf of people with bleeding disorders and HIV.

Volunteer of the Year
Connie Lee Montgomery

Volunteer of the Year, named in honor of Robert Lee Henry, honors an individual whose volunteer work for NHF has contributed significantly to its ability to meet its mission and goals. Robert Lee Henry [1907-1987] was the founder of the National Hemophilia Foundation.

Meritorious Service Award
Loras Goedken Outstanding Leadership Award
Patrick James Lynch

The Loras Goedken Outstanding Leadership Award is presented to an individual who has made outstanding efforts to educate and bring about awareness of bleeding disorders. Loras Goedken [1944-1997] was a proactive leader. His family’s story made national news and brought awareness for the bleeding disorders community. He was a tireless advocate, served in his chapter, and was active on many local boards and support groups.

Meritorious Service Award
Ryan White Youth Award
Sean R. Noel

The Ryan White Youth Award is presented to a young person who has helped educate others both within the bleeding disorders community and among the general population by increasing awareness and understanding. Ryan White [1972-1990] had severe hemophilia and contracted AIDS in 1984 through infusion of contaminated clotting factor. He brought national attention to hemophilia and its complications, changed people’s prejudicial attitudes, educated the public and generated national compassion.

Chapter Recognition Volunteer Awards

Chapter Recognition Awards recognize volunteers who have made an outstanding contribution to their NHF chapters:

Kevin Finkle
Hemophilia Foundation of Oregon

Yasmin Pavri
NYC Hemophilia Chapter

Kasey Shade
Hemophilia of Indiana

Marta Terray

Hemophilia Foundation of Northern California

Awards of Distinction

Award of Distinction: Communications
Hemophilia Foundation of Southern California
“@BleedingForChange Instagram Page”

This award recognizes an outstanding communications vehicle (newsletter, website, video, etc.) that successfully distributes pertinent information to the bleeding disorders community.

Award of Distinction: Outreach
Hemophilia Foundation of Northern California
“Women to Women Support Groups”

This award recognizes programs that identify and reach out to unserved or underserved people with bleeding disorders, including but not limited to: model programs for racially/ethnically diverse populations and outreach to women with bleeding disorders.

Award of Distinction: Tami-Wood Lively Collaboration
Tri-State Bleeding Disorder Foundation and HTCs
“TSBDF Program Committee”

This award recognizes educational programs demonstrating outstanding efforts in collaboration between HTCs and chapters. Tami Wood-Lively was a staunch advocate for the bleeding disorders community. She was a brilliant and dedicated woman who believed in both the excellent model of care of the HTC, and the benefits of education and support that chapters can offer to those with bleeding disorders.

Award of Distinction: Health Education
Hemophilia Association of the Capital Area
“Factor Reconstitution & Infusion Review Video Series”

This award recognizes effective, creative programs in health education and prevention that target subgroups such as women, parents, families, teens and adults or young adults in the bleeding disorders community.