Notes from the Community, February 2020

Notes from the Community

University of Michigan Launches Infusion U Program
By Diana Mathis

Self-infusion is a critical skill for patients with severe bleeding disorders and a necessary milestone in preparing for adulthood. The advent of non-factor therapies has allowed patients with Hemophilia to treat prophylactically at home without the need for venipuncture, however infusions are still necessary for treatment of bleeds and it is important that patients learn and maintain this skill.

Learning self-infusion is one of those things that is just more fun when you are doing it with friends. The Infusion U program developed by the University of Michigan Hemophilia Treatment Center team offers an opportunity to do just that.

The program has been designed as an interactive educational program which includes learning basic concepts of bleeding disorders and training in self-infusion techniques with the ultimate goal of transferring skills to the home environment. The program provides ample opportunity for nurses to work with patients identifying and addressing individual barriers to learning. Working in a group gave children a sense of belonging, increasing their motivation to learn. Repetitive sessions supported the development of skills and provided opportunity for practice and reinforcement.

Thanks to a grant from the Hemophilia Alliance Foundation, the program has been made available in a downloadable format that can be individualized by each treatment center. The program includes lesson plans, invitation templates, graduation certificates, registration templates, take home assignments and questionnaires.

Also in this Issue…

Notes from Joe
· How Did We Get Here and Where Are We Going?

Alliance Update
· The More the Merrier: HTCs and Patients Wanted For Hill Day
· May Meeting for NEW HTC Staff
· Join us for an Informative Meeting at HTRS/THSNA in April
· 2020 Meeting Schedule

Washington Update
· Governmental Food Fight: GAO and CMS Sling 340B Related Publications Back-and-Forth?

Payer Update