The Hemophilia Alliance is a not-for-profit organization that comprises hemophilia treatment centers (HTCs) that either have, or are seeking to have, factor delivery programs under Section 340B of the Public Health Service Act. The purpose of the Alliance is to promote the common interests of these HTCs. The Alliance began in December 2004, and was incorporated as a 501(c)(3) organization in March 2005.
The Alliance’s Mission:
The Hemophilia Alliance provides member Hemophilia Treatment Center with resources and services to sustain the Comprehensive Care Model for individuals with bleeding and clotting disorders.
The Alliance’s Vision:
We are successful when our member Hemophilia Treatment Centers can effectively provide their full range of services to all patients with bleeding and clotting disorders.
Some of the Alliance’s Achievements to Date:
- A Medicaid Carve out clarification
- Proposed grant requirement changed to a grant statement.
- Various responses to Federal Register notices, letters and testimony to federal agencies and committees
- Information sharing
Some of the Alliance’s relationship building:
- Office of Pharmacy Affairs has allowed the Alliance to contribute to its report to Congress
- Maternal and Child Health Bureau consults the Alliance on all major ยง340B issues
- Manufacturers have supplied the Alliance with data and information around product supply
- The Government Accountability Office consulted with the Alliance on a recent report to Congress
Biographies:
- Joe Pugliese, President
- Sean Singh, Vice President
- Roland Lamy, Payer Consultant | HELMSCO.COM
- Stacia Le Blanc, Legal Counsel | FELDESMANTUCKER.COM and FEDERALGRANTSLAW.COM
Contacting the Alliance
To learn more about the Hemophilia Alliance, feel free to contact us at info@hemoalliance.org.
