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What We Do

What We Do

The Hemophilia Alliance is a not-for-profit organization that comprises federally funded hemophilia treatment centers (HTCs) that either have, or are seeking to have, pharmacy programs under Section 340B of the Public Health Service Act.

The purpose of “the Alliance” is to promote the common interests of our member HTCs. In addition to providing support through advocacy, we provide consultant expertise and organizational support in the
following areas:

  • Operations
  • Payer relations
  • Contract pharmacy
  • Regulatory compliance
  • Legal updates affecting practices

Overview

As a recognized leader in the bleeding disorder community, we have strong relationships with government agencies, national patient organizations and pharmaceutical manufacturers of factor product. We work on our members’ behalf to make sure they are not disadvantaged, and to promote policies and procedures that lead to successful patient outcomes.

The Alliance began in 1999, and we have been incorporated as a 501(c)(3) organization since December 2004.

Learn more about specific HTC Services or Member Benefits.

Our Mission

The Hemophilia Alliance works to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders.

Our Vision

Through the work of the Hemophilia Alliance, the clinical and pharmacy programs of the Hemophilia Treatment Centers are integrated, stable and sustainable within a changing healthcare environment. They are trusted and respected as the preferred way to provide people with hemophilia and other bleeding disorders access to the full range of care they need.

Our Timeline

  • 2004 – Hemophilia Alliance Group Purchasing Organization (HAGPO) starts as a 501(c)(3)

    • Hemophilia Alliance Group Purchasing Organization (GPO) starts as a 501(c)(3)

  • 2006 – HAGPO Board of Directors

    • HAGPO Board of Directors: Mark Plencner, Tim Brent, Ralph Woods, Sally Hartline and Trish Dominic as common as HA/HAGPO common board members
    • Joe Pugliese is hired
    • The University of Pennsylvania becomes first participating member of the GPO

  • 2007 – Hemophilia Alliance GPO get their 1st contract of note with CSL Behring

    • Hemophilia Alliance GPO get their 1st contract of note with CSL Behring

  • 2008 – The 501(c)(6) is dissolved

    • The 501(c)(6) is dissolved
    • The board of the 2 organizations are merged
    • The GPO files a d/b/a as “Hemophilia Alliance”
    • Mark Plencner is named as board Chair
    • Joe Pugliese is asked to serve as President
    • Sean Singh is hired as Vice President

  • 2009 – Hemophilia Alliance gives their first grant to the community

    • Hemophilia Alliance gives their first grant to the community a $25,000 grant to National Hemophilia Foundation
    • Stacia LeBlanc joins the Alliance
    • Roland Lamy serves as Vice President of Payer Relations

  • 2010 – Memorandum of Understanding with The Alliance Pharmacy

    • The Hemophilia Alliance signs a Memorandum of Understanding with The Alliance Pharmacy
    • The Hemophilia Alliance enters into a collaborative relationship with Apexus the Prime Vendor
    • Ellen Riker, Advocate and Lobbyist for the Bleeding Disorders Community joins the Alliance
    • Hemophilia Alliance Grants Committee is formed fulfilling a promise to support the Bleeding Disorders Community
    Over $8,000 in Funding to the Bleeding Disorders Community

  • 2011 – Managing the National Hemophilia Social Worker Conference

    • Hemophilia Alliance assumes responsibility for the Advanced Clinical Conference for Social Workers
    • Hemophilia Alliance funds ATHN Dataset Project
    • Jeff Blake from Indiana Hemophilia and Thrombosis Center becomes board Chair
    • Johanna Gray, Advocate and Lobbyist for the Bleeding Disorders Community joins the Alliance

  • 2012 – Hemophilia Alliance has their first Hill Day

    • Hemophilia Alliance has their first Hill Day in Washington D.C.
    • Bringing HTCs to Capitol Hill to advocate about the Bleeding Disorders Community
    Over $385,000 in Funding to the Bleeding Disorders Community

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