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2020 (35)

  1. 04302020 Weekly Webinar (5)
  2. 04302020 Weekly Webinar (4)
  3. June 11th Summer Series Webinar (3)
  4. August 20th Summer Series Webinar (1)

2021 (22)

  1. Staq Pharma – Desmopressin Nasal Spray 08-30-2021 (4)
  2. STAQ Pharma – Desmopressin Nasal Spray 08-30-2021 (3)
  3. Revenue Cycle Management – Kimberly Lackman 09212021 [pdf presentation] (1)
  4. Genentech – Hemlibra Breakthrough 11-16-2021 (1)

2022 (16)

  1. Implementing Medicare’s New Skilled Nursing Facility (SNF) Policy on Bleeding Disorder Treatments – Ellen Riker Pamala Truscott Amanda Wetzel 10182022 (8)
  2. Implementing Medicare’S New Skilled Nursing Facility (Snf) Policy On Bleeding Disorder Treatments – Ellen Riker Pamala Truscott Amanda Wetzel 10182022 (3)
  3. Draft Gene Therapy Single Case Agreement for sharing externally 07 21 2022 (2)
  4. Hemophilia Alliance – August Member Webinar August 10 2022 (2)

2022 Linda Gammage Social Worker Conference (3)

  1. 2022 Linda Gammage Social Worker Conference – 02-24-2022 – part 1 (11)
  2. 2022 Linda Gammage Social Worker Conference – 02-25-2022 (10)
  3. 2022 Linda Gammage Social Worker Conference – 02-24-2022 – part 2 (7)

2022 Nursing CE Webinars (7)

  1. Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (6)
  2. Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (6)
  3. Private: Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (1)
  4. Products Preferences and the Pipeline – A Nursing CE Webinar – June 30 2022 (1)

2022 Pharmacist CE Conference (23)

  1. 2022 Pharmacists CE Conference - 1st Annual Hemophilia Alliance CE Conference Agenda (pdf) (18)
  2. 2022 Pharmacists CE Conference - 1st-Annual Hemophilia Alliance Pharmacy CE Conference – Agenda and Links (pdf) (13)
  3. 2022 Pharmacists CE Conference - Sonia Nasr-Carol Johnstone Fundamentals of Motivational Interviewing for HTC Pharmacists Part 2 (mp4 video presentation) (5)
  4. 2022 Pharmacists CE Conference - How to Obtain Pharmacist CE Credits via Home Study Program (pdf) (4)

2023 (6)

  1. Factor VIII Gene Therapy Roctavian Treatment Guide – August 8 2023 (4)
  2. Implementation Of New Medicare Hemophilia SNF Policy – HTC Strategies That Worked – April 17 2023 (3)
  3. Implementation Of New Medicare Hemophilia SNF Policy – HTC Strategies That Worked – April 17 2023 (3)
  4. Factor VIII Gene Therapy Roctavian – August 8 2023 (2)

2023 Fall Members Meeting - San Antonio, TX (14)

  1. Maximizing The Pharmacy Tech Role – Amy Marquez – Fall Members Meeting 10-10-23 (3)
  2. Maintaining Control of Your HTC – Louise Baca – Fall Members Meeting 10-10-23 (3)
  3. Contract Pharmacy Arrangements – Alison Bartko – Fall Members Meeting 10-09-23 (2)
  4. Gene Therapy Payer Contracting – Jeff Blake – Fall Members Meeting 10-09-23 (2)

2023 Hill Day - Washington DC (3)

  1. Needs Assessment – Sean Singh – Hill Day 06-12-2023 (2)
  2. Hemophilia Alliance Update – Joe Pugliese – Hill Day 06-12-2023 (2)
  3. Payers HTC Pharmacy Programs and Medicaid Redetermination – Jeff Blake and Angela Blue – Hill Day 06-12-2023 (1)

2023 MD/BA Meeting - Los Angeles, CA (19)

  1. Medicare and Medicaid – Johanna Gray – BA-MD Meeting 11-10-23 (5)
  2. Building A Strategic Plan – Sean Singh – BA-MD Meeting 11-10-23 (4)
  3. Gene Therapy – Joe Pugliese – BA MD Meeting – 11-11-23 (4)
  4. Threats to your HTC – Angela B. and Zack D. – BA-MD Meeting 11-10-23 (2)

2023 New HTC Staff Meeting - New York City (19)

  1. CSL Behring HEMGENIX – New HTC Staff Meeting 05-11-2023 (3)
  2. Independent Center – Becky Burns – New HTC Staff Meeting 05-11-2023 (3)
  3. 340B Audit – Issie Karan – New HTC Staff Meeting 05-12-2023 (3)
  4. Advocacy 101 – Johanna Gray – New HTC Staff Meeting 05-11-2023 (2)

2023 Pharmacist CE Conference (26)

  1. 2023 Pharmacists CE Conference - Agenda (pdf) (10)
  2. 2023 Pharmacists CE Conference - How to obtain Pharmacist CE via Home Study program (pdf) (8)
  3. 2023 Pharmacists CE Conference - Rebecca Kruse-Jarres, MD – Acquired Hemophilia A (mp4 video presentation) (4)
  4. 2023 Pharmacists CE Conference - Desiree Hill, PharmD and Amanda Phillips, MS – Quality Improvement Efforts in the Specialty Pharmacy Setting (mp4 video presentation) (3)

2023 Spring Members Meeting - Nashville, TN (20)

  1. Glossary of 340B Terms (7)
  2. 2023 Spring Members Meeting – Agenda 2.08.2023 (5)
  3. 2023 Spring Members Meeting – Welcome Letter (3)
  4. Gene Therapy Update – Spring Members Meeting Feb 14 2023 – Joe Pugliese Jeff Blake Zack Duffy (2)

2024 (1)

  1. HANS - ETS Webinar - Roland Lamy Zack Duffy - May 14 2024 (1)

2024 New HTC Staff Orientation - New York City (19)

  1. Working with Your Institution - Louise Baca - New HTC Staff Orientation 03-27-24 (6)
  2. 340B Basics - Sean Singh - New HTC Staff Orientation 03-26-24 (5)
  3. New HTC Staff Agenda 2024 (4)
  4. Regions and Grants - Heidi Lane - New HTC Staff Orientation 03-26-24 (4)

2024 Nurses CE Conference (28)

  1. 2024 Nurses CE Conference - 5-15 yo Parent Guidelines to Promote Transition Readiness (pdf) (3)
  2. 2024 Nurses CE Conference - Agenda (pdf) (3)
  3. 2024 Nurses CE Conference - Kaylee Dollerschell - Genetics Testing for Bleeding Disorders (pdf presentation) (3)
  4. 2024 Nurses CE Conference - Parent Guidelines 9-12 (pdf) (2)

2024 Pharmacist CE Conference (24)

  1. 2024 Pharmacists CE Conference - Mark Reding, MD - Update on New and Emerging Therapies for Hemophilia (pdf presentation) (10)
  2. 2024 Pharmacists CE Conference - How to obtain 2024 Pharmacist CE via Home Study program (pdf) (7)
  3. 2024 Pharmacists CE Conference - Agenda (pdf) (6)
  4. 2024 Pharmacists CE Conference - Angela Kellum, PharmD - The Rarest of Factor Disorders Factors I, II, V, VII, X, XI, XIII (pdf presentation) (4)

2024 Physical Therapists CE Conference (17)

  1. 2024 Physical Therapists CE Conference - Patricia Tobase - To Rest Or Not To Rest (pdf presentation) (5)
  2. 2024 Physical Therapists CE Conference - Makenzie Sledd and Sarah Hanson - Orthotics (pdf presentation) (4)
  3. 2024 Physical Therapists CE Conference - Makenzie Sledd and Sarah Hanson - Orthotics (mp4 video presentation) (4)
  4. 2024 Physical Therapists CE Conference - Stacie Atkins - MSKUS (pdf presentation) (3)

2024 Spring Members Meeting & Hill Day - Washington DC (14)

  1. Managing Rebates - Sean Singh - SMM 04-17-24 (5)
  2. Program Income How To Use It - Issie Karan and Mike Glomb - SMM 04-17-24 (3)
  3. Gene Therapy Reimbursement - Lori Gillespie and Zack Duffy - SMM 04-16-24 (2)
  4. Spring Members Meeting and Hill Day 2024 - Welcome Letter (2)

2025 New HTC Staff Meeting - Orlando (15)

  1. 2025 New HTC Staff Meeting - Jeff Blake - HemoAlliance Overview (pdf presentation) (9)
  2. 2025 New HTC Staff Meeting - Susan Lattimore - Regions and Grants - How Do They Work (pdf presentation) (9)
  3. 2025 New HTC Staff Meeting - Mike Glomb - 340B Basics The Ins and Outs of 340B (pdf presentation) (9)
  4. 2025 New HTC Staff Meeting - Becky Burns Jeff Amond Angela Blue - HTCs Unpacked Exploring Various Business Models (pdf presentation) (6)

2025 Nurse CE Conference (10)

  1. 2025 Nurses CE Conference - Stefanie Dugan - Demystifying VWD Diagnosis and Testing (pdf presentation) (3)
  2. 2025 Nurses CE Conference - Stephanie Sibrel - Barriers to Care in Bleeding Disorders Strategies for Access (3)
  3. 2025 Nurses CE Conference - Regina Butler - HTC Nurses as Leaders (pdf presentation) (2)
  4. 2025 Nurses CE Conferece - Susan Lattimore - Biases and Disparities in Healthcare Sex Assigned at Birth (pdf presentation) (2)

2025 Pharmacist CE Conference (24)

  1. 2025 Pharmacists CE Conference – Mark Reding, MD – Update on New and Emerging Therapies for Hemophilia (pdf presentation) (19)
  2. 2025 Pharmacists CE Conference – Rebecca Kruse-Jarres, MD – Clinical Trial Update on Upcoming Bleeding Disorder Medications (pdf presentation) (16)
  3. 2025 Pharmacists CE Conference – Anne Greist, MD – History of Hemophilia and HIV and Product Development (pdf presentation) (15)
  4. 2025 Pharmacists CE Conference – Kim Steinbronn, RPh, BCPS and Marie Shinkle, PharmD – Pharmacokinetics and Obesity in the Bleeding Disorder Patient (pdf presentation) (15)

2025 Physical Therapist CE Conference (8)

  1. 2025 Physical Therapists CE Conference - Cindy Bailey - Kinesiology Taping (pdf presentation) (3)
  2. 2025 Physical Therapists CE Conference - Fred Loeffler - The Shoulder (pdf presentation) (2)
  3. 2025 Physical Therapists CE Conference - Heidi Lane and Jennifer Newman - Regions and Grants (pdf presentation) (2)
  4. 2025 Physical Therapists CE Conference - Laura Singer-Fox - Individuals Assigned Female at Birth (AFAB) in Clinic (pdf presentation) (2)

2025 Social Worker CE (19)

  1. 2025 Social Worker CE Conference – Mandy Davis – Trauma Informed Care – Advocating for a Culture of Harm Reduction and Healing Day 1 Part 6 (mp4 video presentation) (1)
  2. 2025 Social Worker CE Conference – Sara Berger - Artificial Intelligence and the NASW Code of Ethics Day 2 Part 1 (mp4 video presentation) (0)
  3. 2025 Social Worker CE Conference – Sara Berger - Artificial Intelligence and the NASW Code of Ethics Day 2 Part 2 (mp4 video presentation) (0)
  4. 2025 Social Worker CE Conference – Sara Berger - Artificial Intelligence and the NASW Code of Ethics Day 2 Part 3 (mp4 video presentation) (0)

340B & Program Income (5)

  1. 340B Impact Statement (16)
  2. 340B HTC Manual July 2005 (1) (14)
  3. 340B_ImpactProfileGuidebook_ (11)
  4. HTC Financial Responsibilities Regarding MCHB Federal Subaward (6)

340B Letters of Support (10)

  1. Letter of Support from Takeda Pharmaceuticals (1)
  2. Letter of Support from Pfizer (1)
  3. NHF-Specialty-Pharmacy-Position-Paper (1)
  4. Biogen-Letter-to-Hemophilia-Alliance_09302014 (1)

Agenda (1)

  1. Agenda – New HTC Staff Meeting – May 11 and 12 2023 (1)

Angela Kellum, PharmD (2)

  1. 2024 Pharmacists CE Conference - Angela Kellum, PharmD - The Rarest of Factor Disorders Factors I, II, V, VII, X, XI, XIII (pdf presentation) (4)
  2. 2024 Pharmacists CE Conference - Angela Kellum, PharmD - The Rarest of Factor Disorders Factors I, II, V, VII, X, XI, XIII (mp4 video presentation) (1)

Angela Kellum, PharmD and Nicole Reynaud, RN (1)

  1. 2022 Pharmacists CE Conference - Angela Kellum and Nicole Reynaud - Stick It to Me (mp4 video presentation) (2)

April 16th 2020 Weekly Webinar (2)

  1. Weekly Webinar April 16, 2020 (0)
  2. Weekly Webinar April 16th 2020 (0)

April 22nd 2021 (2)

  1. Hemophilia Alliance – Spring Webinar Apr 22 2021 (1)
  2. Hemophilia Alliance – Spring Webinar Apr 22 2021 (1)

April 23rd 2020 Weekly Webinar (2)

  1. Weekly Webinar April 23rd 2020 (0)
  2. Weekly Webinar April 23rd 2020 (0)

April 27th 2022 (2)

  1. Hemophilia Alliance – April Member Webinar April 27 2022 (1)
  2. Hemophilia Alliance – April Member Webinar April 27 2022 (1)

April 2nd 2020 Weekly Webinar (1)

  1. Weekly Webinar April 2nd 2020 (0)

April 30th 2020 Weekly Webinar (2)

  1. 04302020 Weekly Webinar (5)
  2. 04302020 Weekly Webinar (4)

April 9th 2020 Weekly Webinar (2)

  1. Weekly Webinar April 9th 2020 (0)
  2. Weekly Webinar April 9th 2020 (0)

Audit / Compliance (15)

  1. 340B Compliance Self Assessment: Self-Audit Process (23)
  2. 340B Policy and Procedures for HTCs rev 092617 (21)
  3. 340B Program Policy and Procedure Manual Guide In-house or Contract Pharmacy (19)
  4. "Preparing for federal audits"_WEBINAR – Stacia Davis Le Blanc, Esq. (18)

August 10th 2022 (6)

  1. Draft Gene Therapy Single Case Agreement for sharing externally 07 21 2022 (2)
  2. Hemophilia Alliance – August Member Webinar August 10 2022 (2)
  3. Final Citizens Petition for Signature 2022-07-01 20_45_19 (1)
  4. Member Survey Charts – updated – final (002) (1)

August 20th Summer Series Webinar (2)

  1. August 20th Summer Series Webinar (1)
  2. August 20th Summer Series Webinar (1)

Best Practices (31)

  1. Arizona Hemophilia and Thrombosis Center (21)
  2. Fall 2013 Best Practices (12)
  3. Fall 2012 – Best Practices – UCSF – Sophie Chang/Susan Karp (12)
  4. Fall 2011 – Billing Issues – Maria Manahan, Kathie Ammerman, Dan Dalton, Michelle Fitzwater (11)

Bobby Tran, MD (2)

  1. 2023 Pharmacists CE Conference - Bobby Tran, MD – Von Willebrand Disease- Guide for the Pharmacist (mp4 video presentation) (3)
  2. 2023 Pharmacists CE Conference - Bobby Tran, MD – Von Willebrand Disease- Guide for the Pharmacist (pdf presentation) (1)

Business Tools (46)

  1. 2023 HTC Patient Insurance and Clotting Factor Utilization Spreadsheet (23)
  2. 340B Impact Statement (16)
  3. 340B HTC Manual July 2005 (1) (14)
  4. 2023 HTC Insurance Questionnaire (14)

Cara Hannemann, PsyD (2)

  1. 2024 Pharmacists CE Conference - Cara Hannemann, PsyD - Psychosocial Considerations in Patients with Bleeding Disorders (pdf presentation) (1)
  2. 2024 Pharmacists CE Conference - Cara Hannemann, PsyD - Psychosocial Considerations in Patients with Bleeding Disorders (mp4 video presentation) (0)

CE Programs (219)

  1. 2025 Pharmacists CE Conference – Mark Reding, MD – Update on New and Emerging Therapies for Hemophilia (pdf presentation) (19)
  2. 2022 Pharmacists CE Conference - 1st Annual Hemophilia Alliance CE Conference Agenda (pdf) (18)
  3. 2025 Pharmacists CE Conference – Rebecca Kruse-Jarres, MD – Clinical Trial Update on Upcoming Bleeding Disorder Medications (pdf presentation) (16)
  4. 2025 Pharmacists CE Conference – Anne Greist, MD – History of Hemophilia and HIV and Product Development (pdf presentation) (15)

Chancellor Donald, MD (2)

  1. 2024 Pharmacists CE Conference - Chancellor Donald, MD - Introduction to Sickle Cell Disease (pdf presentation) (2)
  2. 2024 Pharmacists CE Conference - Chancellor Donald, MD - Introduction to Sickle Cell Disease (mp4 video presentation) (0)

Clinical (22)

  1. Fall 2016 – Hematologist Shortage – Drs. Ma, Kruse-Jarres, Kulkarni and Kobrinsky (9)
  2. Gene Therapy – Trent Spencer (8)
  3. HTC and Hemophilia – How to tell our story – Mark Reding, University of MN (8)
  4. Fall 2018 – Emerging Therapies – Stacy Croteau (7)

Contract Pharmacy (13)

  1. Contract Pharmacy Model – Glen Roy (16)
  2. Fall 2018 – Best Practices and Contract Pharmacy – Joe Bailey (12)
  3. Contract Pharmacy, Benefits and Hurdles – Pam Betz, Stacia Lebanc, George Oestreich (12)
  4. Contract Pharmacy Model – Renee Killian (12)

CSL Behring (10)

  1. Preparing For Hemgenix – A Gene Therapy For Hemophilia B (10)
  2. CSL Behring – A Dialogue on Elevating Patient Care for Hemophilia B Patients (3)
  3. CSL Behring – IDELVION On-Demand by Dr. Escobar (2)
  4. CSL: Field Reimbursement Managers (2)

Dana Smith, PharmD (2)

  1. 2024 Pharmacists CE Conference - Dana Smith, PharmD - A Practical Approach to Hemophilia Pharmacokinetics (pdf presentation) (2)
  2. 2024 Pharmacists CE Conference - Dana Smith, PharmD - A Practical Approach to Hemophilia Pharmacokinetics (mp4 video presentation) (0)

Data Portal Information (1)

  1. Data Portal Entry (23)

Day 1 (11)

  1. Medicare and Medicaid – Johanna Gray – BA-MD Meeting 11-10-23 (5)
  2. Building A Strategic Plan – Sean Singh – BA-MD Meeting 11-10-23 (4)
  3. Threats to your HTC – Angela B. and Zack D. – BA-MD Meeting 11-10-23 (2)
  4. Welcome and Overview – Joe Pugliese – BA-MD Meeting 11-10-23 (1)

Day 1 (8)

  1. Gene Therapy Reimbursement - Lori Gillespie and Zack Duffy - SMM 04-16-24 (2)
  2. 340B Reform Update - Issie Karan - SMM 04-16-24 (1)
  3. Alliance Update - Jeff Blake - SMM 04-16-24 (1)
  4. HTC Best Practices - Lisa Littner and Angela Blue - SMM 04-16-24 (1)

Day 1 (9)

  1. 340B Basics - Sean Singh - New HTC Staff Orientation 03-26-24 (5)
  2. Regions and Grants - Heidi Lane - New HTC Staff Orientation 03-26-24 (4)
  3. 340B HTC Audit - Jennifer Borrillo - New HTC Staff Orientation 03-26-24 (2)
  4. Advocacy - Dean Hindenlang - New HTC Staff Orientation 03-26-24 (2)

Day 1 - Thursday May 11 (10)

  1. CSL Behring HEMGENIX – New HTC Staff Meeting 05-11-2023 (3)
  2. Independent Center – Becky Burns – New HTC Staff Meeting 05-11-2023 (3)
  3. Advocacy 101 – Johanna Gray – New HTC Staff Meeting 05-11-2023 (2)
  4. Payer Services and Intro to HANS – Jeff B Jeff A and Roland L – New HTC Staff Mtg 05-11-2023 (2)

Day 1 Presentations (10)

  1. Colorado University Angie Blue (14)
  2. Becky – Hemophilia Alliance template 2022 wide (13)
  3. Alaska HTC Kyme Groller (8)
  4. Growth Initiaitve SWOT Summary (5)

Day 2 (8)

  1. Gene Therapy – Joe Pugliese – BA MD Meeting – 11-11-23 (4)
  2. Improving Workplace – Lisa Csencsits – BA MD Mtg – 11-11-23 (2)
  3. Working Styles Full Packet – Lisa Csencsits – BA MD Mtg – 11-11-23 (2)
  4. GPO Discussion – Rebecca Kruse-Jarres – BA MD Meeting – 11-11-23 (2)

Day 2 (3)

  1. Managing Rebates - Sean Singh - SMM 04-17-24 (5)
  2. Program Income How To Use It - Issie Karan and Mike Glomb - SMM 04-17-24 (3)
  3. Payer HANS Update - Jennifer Borrillo and Roland Lamy - SMM 04-17-24 (0)

Day 2 (8)

  1. Working with Your Institution - Louise Baca - New HTC Staff Orientation 03-27-24 (6)
  2. Medicare 101 - Johanna Gray - New HTC Staff Orientation 03-27-24 (3)
  3. Program Income - Jeff Blake - New HTC Staff Orientation 03-27-24 (2)
  4. The Alliance Pharmacy - Mike Fusaro - New HTC Staff Orientation 03-27-24 (2)

Day 2 - Friday May 12 (8)

  1. 340B Audit – Issie Karan – New HTC Staff Meeting 05-12-2023 (3)
  2. Medicare – Ellen Riker – New HTC Staff Meeting 05-12-2023 (2)
  3. The Alliance Pharmacy – Michael Fusaro – New HTC Staff Meeting 05-12-2023 (2)
  4. Running a Pharmacy and Rebate within an HTC – Sean Singh – New HTC Staff Meeting 05-12-2023 (2)

Dec 10th Fall Webinar Series (2)

  1. December 10th Fall Webinar Series (1)
  2. December 10th Fall Webinar Series (1)

December 1 2021 (2)

  1. Hemophilia Alliance – Fall Webinar Dec 1 2021 (1)
  2. Hemophilia Alliance – Fall Webinar Dec 1 2021 (1)

December 13 2022 (3)

  1. Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (6)
  2. Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (6)
  3. Private: Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (1)

December 14th 2022 (1)

  1. Hemophilia Alliance – December Member Webinar December 14 2022 (1)

Desi Hill, PharmD and Amanda Phillips, MS (2)

  1. 2023 Pharmacists CE Conference - Desiree Hill, PharmD and Amanda Phillips, MS – Quality Improvement Efforts in the Specialty Pharmacy Setting (mp4 video presentation) (3)
  2. 2023 Pharmacists CE Conference - Desiree Hill, PharmD and Amanda Phillips, MS – Quality Improvement Efforts in the Specialty Pharmacy Setting (pdf presentation) (2)

Duc Tran, MD (2)

  1. 2022 Pharmacists CE Conference - Duc Tran - Gene Therapy in Hemophilia (pdf presentation) (1)
  2. 2022 Pharmacists CE Conference - Duc Tran - Gene Therapy in Hemophilia (mp4 video presentation) (0)

Fall Members Meeting 2019 (2)

  1. 2019 Fall Meeting Agenda and Presentations (0)
  2. Fall 2019 -Kristina Haley HemophiliaAlliance2019_welcometoOHSU (0)

Fall Members Meeting 2020 (53)

  1. 2020 New HTC Staff Meeting Agenda (11)
  2. 2020 Fall Meeting Agenda (9)
  3. 340 Basics – Sean Singh (4)
  4. 340B Update and Program Income FAQs – Issie Karan and Mike Glomb -10-5-2020 (3)

Fall Members Meeting 2021 (26)

  1. 2021 Fall Meeting Agenda (8)
  2. Takeda Update – Tim McClatchey Heather Dean and Rebeka Carty 09212021 (2)
  3. Hemophilia and Inhibitors – Dr Robert Sidonio 09202021 (1)
  4. Alliance Update – Joe Pugliese 09202021 (1)

Fall Members Meeting 2022 (40)

  1. 2022 Fall Members Meeting Agenda 10032022 (11)
  2. 2022 Fall Members Meeting Agenda 10042022 (6)
  3. 2022 Hemophilia Alliance Retiring Board Members (3)
  4. New Therapies Update – Michael Silvey 10032022 (1)

February 15th 2022 (2)

  1. Hemophilia Alliance – February Member Webinar Feb 15 2022 (1)
  2. Hemophilia Alliance – February Member Webinar Feb 15 2022 (1)

February 18th 2021 (2)

  1. Hemophilia Alliance – Winter Webinar Feb 18 2021 (1)
  2. Hemophilia Alliance – Winter Webinar Feb 18 2021 (1)

February 24th 2022 (2)

  1. 2022 Linda Gammage Social Worker Conference – 02-24-2022 – part 1 (11)
  2. 2022 Linda Gammage Social Worker Conference – 02-24-2022 – part 2 (7)

February 25th 2022 (1)

  1. 2022 Linda Gammage Social Worker Conference – 02-25-2022 (10)

Forms & Surveys (3)

  1. FINANCIAL ASSISTANT POLICIES – SAMPLES (16)
  2. HTC 2017 Insurance Questionnaire (12)
  3. FINANCIAL ASSISTANT POLICIES – SAMPLES (11)

Friday, 03-19-2021 (16)

  1. Marketing A Guide – Karan and Glomb and Singh 03192021 (1)
  2. Medicaid and Mercer Survey – Oestreich 03192021 (1)
  3. Legal Update – Karan and Glomb 03192021 (1)
  4. Harmony in Hemophilia – Bowe and LeWalk 03192021 (1)

Gene Therapy (2)

  1. Draft Gene Therapy Single Case Agreement for sharing externally 06 28 2022 (3)
  2. Draft Gene Therapy Contract Pharmacy and Infusion Agreement for sharing externally 06 28 2022 (3)

Gene Therapy Town Hall Chicago 2022 (1)

  1. Gene Therapy Town Hall – Agenda (1)

Genentech (2)

  1. Genentech – Hemlibra Breakthrough 11-16-2021 (1)
  2. Genentech – Hemlibra Pediatric Patients 12-02-2021 (1)

General 340B (27)

  1. 340B HRSA Manual (33)
  2. 340B Programs: Compliance and Other Policies and Procedures HTCs Need – Stacia Le Blanc, Pam Betz, Sean Singh (17)
  3. Compliance and Audit Tools – Sample 340B Policy & Procedures Manual (16)
  4. 340B-101-Phoenix-AZ-1-24-2011 (14)

Genetic Testing Program (6)

  1. Hemophilia Alliance Genetic Testing Program Versiti - Sponsored Testing Forms FINAL Fillable (pdf) (62)
  2. VWD Bloodworks Hemophilia Alliance Genetic Testing Program FINAL Requisition Forms - Fillable (pdf) (42)
  3. FIX Bloodworks Hemophilia Alliance Genetic Testing Program FINAL Requisition Forms - Fillable (pdf) (39)
  4. FVIII Bloodworks Hemophilia Alliance Genetic Testing Program FINAL Requisition Forms - Fillable (pdf) (32)

Glaivy Batsuli, MD (2)

  1. 2024 Pharmacists CE Conference - Glaivy Batsuli, MD - Recognition and Management of Muscle Bleeds in Hemophilia A in the Era of Non-Factor Therapy (pdf presentation) (1)
  2. 2024 Pharmacists CE Conference - Glaivy Batsuli, MD - Recognition and Management of Muscle Bleeds in Hemophilia A in the Era of Non-Factor Therapy (mp4 video presentation) (0)

Government / Advocacy (50)

  1. CDC’s Priorities and Activities in Bleeding Disorders (14)
  2. Exchanges in 2013 – Lori Sims (10)
  3. Fall 2012 – Government Update – Pam Betz/Sean Singh (10)
  4. Fall 2012 – MCHB Update – Kathryn Mclaughlin (10)

Guy Young, MD (2)

  1. 2023 Pharmacists CE Conference - Guy Young, MD – Genetics of Bleeding Disorders (mp4 video presentation) (3)
  2. 2023 Pharmacists CE Conference - Guy Young, MD – Genetics of Bleeding Disorders (pdf presentation) (0)

HANS (2)

  1. HANS Preferred Provider Organization (PPO) Agreement 08152019 (11)
  2. HANS Preferred Provider Organization (PPO) Agreement 08152019 (5)

Harmony in Hemophilia (3)

  1. Hemophilia Alliance Overview – 340B Basics – HTC & Chapter Collaborations – 03-23-21 (11)
  2. Harmony In Hemophilia Getting To Know HFA 10-21-2020-1 (9)
  3. Harmony In Hemophilia Getting To Know NHF 11-05-2020-1 (7)

HEMA Biologics (2)

  1. HEMA Biologics – SEVENFACT® [coagulation factor VIIa (recombinant)-jncw] by Dr. Pipe (9)
  2. HEMA Biologics – SEVENFACT® [coagulation factor VIIa (recombinant)-jncw] by Dr. Pipe (0)

Hemlibra Breakthrough 11-16-2021 (1)

  1. Genentech – Hemlibra Breakthrough 11-16-2021 (1)

Hemlibra Pediatric Patients 12-02-2021 (1)

  1. Genentech – Hemlibra Pediatric Patients 12-02-2021 (1)

HTC Forms (5)

  1. 2023 HTC Patient Insurance and Clotting Factor Utilization Spreadsheet (23)
  2. 2023 HTC Insurance Questionnaire (14)
  3. Hemophilia Alliance Business Associate Agreement (BAA) (3)
  4. Hemophilia Alliance Non-Disclosure Agreement (NDA) (3)

HTC Pharmacy Tools (35)

  1. 2023 HTC Patient Insurance and Clotting Factor Utilization Spreadsheet (23)
  2. 340B Impact Statement (16)
  3. 340B HTC Manual July 2005 (1) (14)
  4. 2023 HTC Insurance Questionnaire (14)

January 21st 2021 (2)

  1. Hemophilia Alliance – Winter Webinar Jan 21 2021 (1)
  2. Hemophilia Alliance – Winter Webinar Jan 21 2021 (1)

Jennifer Maahs, RN, PNP, RN-BC (2)

  1. 2022 Pharmacists CE Conference - Jennifer Maahs - Hemophilia A and Non-factor Therapy: Where are we now? (pdf presentation) (3)
  2. 2022 Pharmacists CE Conference - Jennifer Maahs - Hemophilia A and Non-factor Therapy: Where are we now? (mp4 video presentation) (1)

July 15 2021 (2)

  1. Hemophilia Alliance – Summer Webinar Jul 15 2021 (1)
  2. Hemophilia Alliance – Summer Webinar Jul 15 2021 (1)

July 23rd Summer Series Webinar (2)

  1. July 23rd Summer Series Webinar (1)
  2. July 23rd Summer Series Webinar (1)

July 9th Summer Series Webinar (3)

  1. July 9th Summer Series Webinar (1)
  2. July 9th Summer Series Webinar (1)
  3. NHF Len Valentino, Blue Sky Presentation to the Community July 9, 2020 (1)

June 11th Summer Series Webinar (2)

  1. June 11th Summer Series Webinar (3)
  2. June 11th Summer Series Webinar (1)

June 15th 2022 (3)

  1. Hemophilia Alliance – June Member Webinar June 15 2022 (1)
  2. Hemophilia Alliance – June Member Webinar June 15 2022 – ATHN (1)
  3. Hemophilia Alliance – June Member Webinar June 15 2022 (1)

June 25th Summer Series Webinar (2)

  1. June 25th Summer Series Webinar (1)
  2. June 25th Summer Series Webinar (1)

June 30 2022 (2)

  1. Products Preferences and the Pipeline – A Nursing CE Webinar – June 30 2022 (1)
  2. Products Preferences and the Pipeline – A Nursing CE Webinar – June 30 2022 (0)

Kevin Hansen, PharmD (2)

  1. 2023 Pharmacists CE Conference - Kevin Hansen, PharmD – Sterile Compounding for Hemophilia Treatment a primer on USP 797 and 800 (mp4 video presentation) (1)
  2. 2023 Pharmacists CE Conference - Kevin Hansen, PharmD – Sterile Compounding for Hemophilia Treatment a primer on USP 797 and 800 (pdf presentation) (0)

Kevin Hansen, PharmD (2)

  1. 2024 Pharmacists CE Conference - Kevin Hansen, PharmD - Navigating USP 797 & 800 Sterile and Hazardous Drug Compounding (pdf presentation) (1)
  2. 2024 Pharmacists CE Conference - Kevin Hansen, PharmD - Navigating USP 797 & 800 Sterile and Hazardous Drug Compounding (mp4 video presentation) (0)

Kim Mauer, MD (2)

  1. 2022 Pharmacists CE Conference - Dr. Kim Mauer - Comprehensive Pain Management (mp4 video presentation) (0)
  2. 2022 Pharmacists CE Conference - Dr. Kim Mauer - Comprehensive Pain Management (pdf presentation) (0)

KIm Mauer, MD (2)

  1. 2023 Pharmacists CE Conference - Kim Mauer, MD – A Comprehensive Look at Chronic Pain Management (mp4 video presentation) (1)
  2. 2023 Pharmacists CE Conference - Kim Mauer, MD – A Comprehensive Look at Chronic Pain Management (pdf presentation) (0)

Legal (19)

  1. Government Update – Stacia Leblanc (10)
  2. Fall 2016 – Legal Update – Elizabeth Karen and Mike Glomb (9)
  3. Government Update – Stacia Leblanc (9)
  4. Final Comment Letter on FFE Letter (9)

Magdalena Lewandowska, MD (2)

  1. 2023 Pharmacists CE Conference - Magdalena Lewandowska, MD – Novel Therapies for Treatment of Hemophilia A – Real World Experience with Emicizumab (mp4 video presentation) (1)
  2. 2023 Pharmacists CE Conference - Magdalena Lewandowska, MD – Novel Therapies for Treatment of Hemophilia A – Real World Experience with Emicizumab (pdf presentation) (1)

Maissaa Janbain, MD (2)

  1. 2022 Pharmacists CE Conference - Dr Maissaa Janbain- Interpreting Lab Values (mp4 video presentation) (1)
  2. 2022 Pharmacists CE Conference - Dr Maissaa Janbain - Interpreting Lab Values (pdf presentation) (0)

Maissaa Janbain, MD (2)

  1. 2023 Pharmacists CE Conference - Maissaa Janbain, MD – Interpreting Lab Values (mp4 video presentation) (2)
  2. 2023 Pharmacists CE Conference - Maissaa Janbain, MD – Interpreting Lab Values (pdf presentation) (0)

Manufacturers (23)

  1. Preparing For Hemgenix – A Gene Therapy For Hemophilia B (10)
  2. HEMA Biologics – SEVENFACT® [coagulation factor VIIa (recombinant)-jncw] by Dr. Pipe (9)
  3. CSL Behring – A Dialogue on Elevating Patient Care for Hemophilia B Patients (3)
  4. CSL Behring – IDELVION On-Demand by Dr. Escobar (2)

March 26th 2020 Weekly Webinar (1)

  1. Weekly Webinar March 26th 2020 (0)

Mark Reding, MD (2)

  1. 2024 Pharmacists CE Conference - Mark Reding, MD - Update on New and Emerging Therapies for Hemophilia (pdf presentation) (10)
  2. 2024 Pharmacists CE Conference - Mark Reding, MD - Update on New and Emerging Therapies for Hemophilia (mp4 video presentation) (3)

Mark Reding, MD (2)

  1. 2023 Pharmacists CE Conference - Mark Reding, MD – New and Emerging Therapies for Hemophilia (mp4 video presentation) (1)
  2. 2023 Pharmacists CE Conference - Mark Reding, MD – New and Emerging Therapies for Hemophilia (pdf presentation) (1)

Marketing & Presentation Tools (9)

  1. 340B Talking Points for HTCs (14)
  2. 340 B Contract Pharmacy Guidance (12)
  3. Adequate Reimbursement for HTC’s (11)
  4. Alliance Brochure (9)

May 14th 2020 Weekly Webinar (2)

  1. 05142020 Weekly Webinar (0)
  2. 05142020 Weekly Webinar (0)

May 28th 2020 Weekly Webinar (2)

  1. 05282020 Weekly Webinar (0)
  2. 05282020 Weekly Webinar (0)

May 7th 2020 Weekly Webinar (2)

  1. 05072020 Weekly Webinar (1)
  2. 05072020 Weekly Webinar (0)

Medical Providers & Business Admins Meeting (12)

  1. 2026 MPBA 011126 Pre-Conference - HRSA, HTC 101 and 340B Discount Drug Pricing Program - Elizabeth Issie Karan (pdf presentation) (3)
  2. 2026 MPBA 011126 Pre-Conference - Establishing an In-House Special Pharmacy - Nigel Keys and Jason Wittes (pdf presentation) (3)
  3. 2026 MPBA 011226 - HTC Types and Reporting Structure- Institution-based vs. Independent (Panel Discussion) - Rebecca Kruse-Jarres, Becky Burns, Annette von Drygalski and Tyler Buckner (3)
  4. 2026 MPBA 011226 - Compliance Considerations for Patient Support Services - Elizabeth Issie Karan (pdf presentation) (3)

Meeting Materials (7)

  1. Glossary of 340B Terms (7)
  2. 2023 Spring Members Meeting – Agenda 2.08.2023 (5)
  3. 2023 Spring Members Meeting – Welcome Letter (3)
  4. Welcome to Redondo Beach, Business Administrtors and Providers CA (2)

Meeting Materials (2)

  1. New HTC Staff Agenda 2024 (4)
  2. New HTC Staff Meeting - Welcome letter (0)

Meeting Materials (3)

  1. Spring Members Meeting and Hill Day 2024 - Welcome Letter (2)
  2. Glossary of 340B Terms (1)
  3. Spring Members Meeting Agenda - Final (1)

Meetings (425)

  1. 2024 Fall Members Meeting - Draft Agenda (pdf) (125)
  2. 2024 Fall Member Meeting - Jason Wittes & Roland Lamy - Market Disruptors: Free Market Health & Implications to your HTC (pdf presentation) (13)
  3. 2020 New HTC Staff Meeting Agenda (11)
  4. 2022 Fall Members Meeting Agenda 10032022 (11)

Monday (37)

  1. 340 Basics – Sean Singh (4)
  2. 340B Basics – Issie Karan and Sean Singh (3)
  3. Payer Perspective Private Payers Medicaid Medicare – Jeff Blake (2)
  4. Payer Perspective Private Payers Medicaid Medicare – Ellen Riker (2)

Monday, 09-20-2021 (14)

  1. Hemophilia and Inhibitors – Dr Robert Sidonio 09202021 (1)
  2. Alliance Update – Joe Pugliese 09202021 (1)
  3. Welcome and Board Update – Heidi Lane 09202021 (1)
  4. Washington Update – Johanna Gray and Ellen Riker 09202021 (1)

Monday, 10-03-2022 (24)

  1. 2022 Fall Members Meeting Agenda 10032022 (11)
  2. New Therapies Update – Michael Silvey 10032022 (1)
  3. New Growth Initiaitve Status Update – Karen Bowe Mark Plencner Jeff Amond 10032022 (1)
  4. Mental Health – Jennifer Feldman 10032022 (1)

Monday, 10-5-2020 (7)

  1. 340B Update and Program Income FAQs – Issie Karan and Mike Glomb -10-5-2020 (3)
  2. Alliance Update – Joe Pugliese – 10-5-2020 (1)
  3. Washington Update – Johanna Gray and Ellen Riker – 10-5-2020 (1)
  4. Medicaid Report – George Oestreich – 10-5-2020 (1)

Monday, October 9 (8)

  1. Contract Pharmacy Arrangements – Alison Bartko – Fall Members Meeting 10-09-23 (2)
  2. Gene Therapy Payer Contracting – Jeff Blake – Fall Members Meeting 10-09-23 (2)
  3. HTC Best Practices – Jamison Buxton & Andrea Miller – Fall Members Meeting 10-09-23 (2)
  4. Value of Your Membership – Sean Singh – Fall Members Meeting 10-09-23 (1)

New HTC Staff Meeting - Fall 2020 (38)

  1. 2020 New HTC Staff Meeting Agenda (11)
  2. 340 Basics – Sean Singh (4)
  3. 340B Basics – Issie Karan and Sean Singh (3)
  4. Payer Perspective Private Payers Medicaid Medicare – Jeff Blake (2)

New HTC Staff Meeting - Fall 2022 (37)

  1. What to Know about Medicare and Medicaid – Ellen Riker New HTC Staff Meeting 10272022 (3)
  2. The Independent Center Story – Becky Burns New HTC Staff Meeting 10272022 (3)
  3. What to Know about Medicare and Medicaid – Ellen Riker New HTC Staff Meeting 10272022 (2)
  4. The Independent Center Story – Becky Burns New HTC Staff Meeting 10272022 (2)

New HTC Staff Meeting - Winter 2022 (23)

  1. 2022 New HTC Staff Meeting Agenda (2)
  2. What Can Go Wrong – Sean Singh Mark Plencner Jeff Blake (2)
  3. Medicare – Ellen Riker (2)
  4. Medicaid – George Oestreich (2)

Nov 12 2020 Fall Webinar Series (1)

  1. Hemophilia Alliance Fall Webinar Series – 11-12-2020 (1)

Novo Nordisk (7)

  1. Novo Nordisk - Alhemo Prefilled Pen Overview (pdf) (2)
  2. Novo Nordisk - Concizumab Prophylaxis in Patients with Hemophilia A or B with Inhibitors - explorer7 (pdf) (1)
  3. Novo Nordisk - explorer7-Matsushita T et al. N Engl J Med. 2023;389783-794 (pdf) (1)
  4. Novo Nordisk - Mathias M et al. Poster PO140 (explorer7- 56 week) presented at 16th European Association for Haemophilia and Allied Disorders, Feb 7-10, 2023; Manchester, UK (pdf) (1)

Octapharma (4)

  1. Octapharma Webinar 02-03-2022 – The 8-CHECK Gene Mutation Testing Service and Implications for Treatment Decision-Making (video/mp4 presentation) (1)
  2. Octapharma Webinar 06-26-2018 - Treatment of Von Willebrand Disease (video/mp4 presentation) (1)
  3. Octapharma - Letter of Support - Stop Proposed Cuts 04-25-2017 (1)
  4. Octapharma Webinar 07-22-2025 - Review The Clinical Benefits of wilate (video/mp4 presentation) (0)

OptumRx (1)

  1. Optum Infusion and 340B Contract Pharmacy Solutions for the HTC – 09-02-2021 (1)

Patient Access Barriers (8)

  1. Hemophilia Alliance Webinar - 07-11-24 - Becky B and Kollet K - Navigating Patient Assistance and Copay Assistance Schemes [Alternative Funding/AFPs] (mp4 video presentation) (15)
  2. Hemophilia Alliance Webinar - 07-11-24 - Becky B and Kollet K - Navigating Patient Assistance and Copay Assistance Schemes [Alternative Funding/AFPs](pdf presentation) (14)
  3. 2025 - Alternative Funding Programs (AFPs) 101 (pdf presentation) (3)
  4. 2025 - Protecting Patients Against Alternative Funding Programs (AFPs) (pdf) (2)

Patient Information (4)

  1. Bleeding Disorders Handbook – Non-Branded (24)
  2. Home Treatment of Bleeding Disorders – English (12)
  3. Home Treatment of Bleeding Disorders – Spanish (8)
  4. Home Treatment of Bleeding Disorders – Arabic (5)

Patient Organizations (20)

  1. Fall 2018 – CCSC and HANS – Jeff Blake and Michelle Rice (10)
  2. Fall 2016 – HFA – Wendy Owens (10)
  3. ATHN 340B Committee Update – Laurel Mckernan, Marissa Trujillo (10)
  4. National Coordinating Center/ATHN (9)

Payer (54)

  1. Billing Issues – Maria Manahan, Kathie Ammerman, Dan Dalton, Michelle Fitzwater (14)
  2. 340B Partnerships with State Medicaid – Debra Demers (11)
  3. Billing Issues – Maria Manahan, Kathie Ammerman, Dan Dalton, Michelle Fitzwater (10)
  4. Alliance Payer Options – Pam Betz (8)

PDF (10)

  1. Colorado University Angie Blue (14)
  2. Becky – Hemophilia Alliance template 2022 wide (13)
  3. Alaska HTC Kyme Groller (8)
  4. Growth Initiaitve SWOT Summary (5)

Pharmacists Conference (26)

  1. 2026 Pharmacists CE Conference - Matt DeBrine - Unpacking Free Market Health - Impacts on Bleeding Disorders Care and Access (pdf presentation) (4)
  2. 2026 Pharmacists CE Conference - Mark Reding - Update on New and Emerging Therapies in Hemophilia (pdf presentation) (3)
  3. 2026 Pharmacists CE Conference - LecturePanda Instruction (pdf presentation) (3)
  4. 2026 Pharmacists CE Conference - Agenda ACPE Final (pdf presentation) (2)

Presentations (12)

  1. Colorado University Angie Blue (14)
  2. Becky – Hemophilia Alliance template 2022 wide (13)
  3. Alaska HTC Kyme Groller (8)
  4. Growth Initiaitve SWOT Summary (5)

Product Catalog (1)

  1. Product Guide (17)

Program Income (11)

  1. Program Income Reporting (24)
  2. Fall 2018 – Program Income QA – Michael Glomb (20)
  3. Program Income – How to use it – Pam Betz/Sean Singh (17)
  4. May 2008 – Program Income and MCHB Reporting (16)

Publications-HTC Integrated Care Model (5)

  1. HTC Gold Standard Article (7)
  2. Impact of 340B on HTC Programs and Services (5)
  3. Soucie ASH 2000 (2)
  4. Soucie 2-Population based surveillance of haemophilia and patient outcomes in IN (1)

Rebecca Kruse-Jarres, MD (2)

  1. 2023 Pharmacists CE Conference - Rebecca Kruse-Jarres, MD – Acquired Hemophilia A (mp4 video presentation) (4)
  2. 2023 Pharmacists CE Conference - Rebecca Kruse-Jarres, MD – Acquired Hemophilia A (pdf presentation) (3)

Rebecca Kruse-Jarres, MD (2)

  1. 2024 Pharmacists CE Conference - Rebecca Kruse-Jarres, MD - Acquired Hemophilia A The Next Generation (pdf presentation) (3)
  2. 2024 Pharmacists CE Conference - Rebecca Kruse-Jarres, MD - Acquired Hemophilia A The Next Generation (mp4 video presentation) (2)

Regina Butler, RN (2)

  1. 2022 Pharmacists CE Conference - Regina Butler - Products Preferences and the Pipeline (pdf presentation) (2)
  2. 2022 Pharmacists CE Conference - Regina Butler - Products Preferences and the Pipeline (mp4 video presentation) (0)

Resource Articles & Presentations (11)

  1. HTC Gold Standard Article (7)
  2. Strategies To Grow Your Pharmacy Program (6)
  3. Impact of 340B on HTC Programs and Services (5)
  4. Providing HTC Program Structure (4)

Robert Sidonio, MD (2)

  1. 2024 Pharmacists CE Conference - Robert Sidonio, MD - Pitfalls in the diagnosis management of VWD and low VWF levels (pdf presentation) (1)
  2. 2024 Pharmacists CE Conference - Robert Sidonio, MD - Pitfalls in the diagnosis management of VWD and low VWF levels (mp4 video presentation) (0)

Robert Sidonio, MD (2)

  1. 2023 Pharmacists CE Conference - Robert Sidonio, MD – Hemophilia and Inhibitors- Prevention and Management Updates for the Specialty Pharmacist (mp4 video presentation) (1)
  2. 2023 Pharmacists CE Conference - Robert Sidonio, MD – Hemophilia and Inhibitors- Prevention and Management Updates for the Specialty Pharmacist (pdf presentation) (0)

Robert Sidonio, MD (2)

  1. 2022 Pharmacists CE Conference - Dr Robert Sidonio - Hemophilia and Inhibitors (mp4 video presentation) (0)
  2. 2022 Pharmacists CE Conference - Dr Robert Sidonio - Hemophilia and Inhibitors (pdf presentation) (0)

September 1 2021 (4)

  1. Hemophilia Alliance – Fall Webinar Sept 1 2021 (1)
  2. Hemophilia Alliance – Fall Webinar Sept 1 2021 (1)
  3. Hemophilia Alliance – Fall Webinar Sept 1 2021 (1)
  4. Hemophilia Alliance – Fall Webinar Sept 1 2021 (1)

September 22 2022 (2)

  1. Management vs Partnership – Characteristics of Ideal Bleeding Disorder Care – A Nursing CE Webinar – September 22 2022 (1)
  2. Management vs Partnership – Characteristics of Ideal Bleeding Disorder Care – A Nursing CE Webinar – September 22 2022 (1)

September 3rd Fall Series Webinar (2)

  1. September 3rd Fall Series (1)
  2. September 3rd Fall Series (1)

Situational Leadership (3)

  1. SLII Fitness Test LAUNCH (2)
  2. Learn the SLII Model Worksheet (1)
  3. SLII Goals Worksheet (1)

Social Worker April 27th 2020 (3)

  1. Social Worker April 27th 2020 (0)
  2. Social Worker April 27th 2020 (0)
  3. Social Worker April 27th 2020 – COVID-19 Resource List (0)

Sonia Nasr, PhD and Carol Johnstone, MA - Part 1 (2)

  1. 2022 Pharmacists CE Conference - Sonia Nasr-Carol Johnstone - Fundamentals of Motivational Interviewing for HTC Pharmacists Part 1 (mp4 video presentation) (1)
  2. 2022 Pharmacists CE Conference - Sonia Nasr-Carol Johnstone - Fundamentals of Motivational Interviewing for HTC Pharmacists Part 1 (pdf presentation) (1)

Sonia Nasr, PhD and Carol Johnstone, MA - Part 2 (2)

  1. 2022 Pharmacists CE Conference - Sonia Nasr-Carol Johnstone Fundamentals of Motivational Interviewing for HTC Pharmacists Part 2 (mp4 video presentation) (5)
  2. 2022 Pharmacists CE Conference - Sonia Nasr-Carol Johnstone - Fundamentals of Motivational Interviewing for HTC Pharmacists Part 2 (pdf presentation) (3)

Spring Member Meeting (23)

  1. 2025 Spring Member Meeting - Roland Lamy and Mike Fusaro - Market Disruptors and Free Market Health (pdf presentation) (7)
  2. 2026 Spring Members Meeting - Issie Karan - Compliance - Mastering Audit Preparedness (pdf presentation) (5)
  3. 2025 Spring Member Meeting - Susan Lattimore - Regions and HTCs (pdf presentation) (4)
  4. 2025 Spring Member Meeting - Jeff Blake and Jennifer Anders - Hemophilia Alliance Update (pdf presentation) (3)

Spring Members Meeting 2019 (17)

  1. 2018 Spring Members Meeting (8)
  2. Spring 2018 – Working with Tulane for a Win Win Scenario ss edits (0)
  3. Spring 2018 – Running a Pharmacy within an HTC 032718 (0)
  4. Spring 2018 – Payer Update Presentation for Members Meeting 03 2018 (0)

Spring Members Meeting 2021 (29)

  1. 2021-Spring-Meeting-Agenda (8)
  2. Marketing A Guide – Karan and Glomb and Singh 03192021 (1)
  3. Medicaid and Mercer Survey – Oestreich 03192021 (1)
  4. Legal Update – Karan and Glomb 03192021 (1)

Stacie Akins, PT (2)

  1. 2023 Pharmacists CE Conference - Stacie Akins, PT – Physical Therapy and Point of Care Ultrasound for Persons with Bleeding Disorders (pdf presentation) (2)
  2. 2023 Pharmacists CE Conference - Stacie Akins, PT – Physical Therapy and Point of Care Ultrasound for Persons with Bleeding Disorders (mp4 video presentation) (1)

Stacy Croteau, MD (2)

  1. 2023 Pharmacists CE Conference - Stacy Croteau MD MMS – PK-Tailored Factor Concentrate Prophylaxis in Hemophilia (mp4 video presentation) (2)
  2. 2023 Pharmacists CE Conference - Stacy Croteau MD MMS – PK-Tailored Factor Concentrate Prophylaxis in Hemophilia (pdf presentation) (1)

Stacy Croteau, MD (2)

  1. 2024 Pharmacists CE Conference - Stacy Croteau, MD - PK-Tailored Factor Concentrate Prophylaxis in Hemophilia (pdf presentation) (3)
  2. 2024 Pharmacists CE Conference - Stacy Croteau, MD - PK-Tailored Factor Concentrate Prophylaxis in Hemophilia (mp4 video presentation) (3)

STAQ Pharma (4)

  1. Staq Pharma – Desmopressin Nasal Spray 08-30-2021 (4)
  2. STAQ Pharma – Desmopressin Nasal Spray 08-30-2021 (3)
  3. STAQ Pharma – Desmopressin Nasal Spray 08-30-2021 (0)
  4. STAQ Pharma – Desmopressin Nasal Spray 08-30-2021 (0)

Stevan Mizimakoski, RPh (2)

  1. 2024 Pharmacists CE Conference - Stevan Mizimakoski, RPh - Adherence In Hemophilia (pdf presentation) (2)
  2. 2024 Pharmacists CE Conference - Stevan Mizimakoski, RPh - Adherence In Hemophilia (mp4 video presentation) (1)

Steven Pipe, MD (2)

  1. 2022 Pharmacists CE Conference - Dr Steven Pipe -Protecting Joints Protecting Patients (pdf presentation) (1)
  2. 2022 Pharmacists CE Conference - Dr Steven Pipe - Protecting Joints Protecting Patients (mp4 video presentation) (0)

Summer & Fall 2021 (8)

  1. Hemophilia Alliance – Fall Webinar Dec 1 2021 (1)
  2. Hemophilia Alliance – Fall Webinar Dec 1 2021 (1)
  3. Hemophilia Alliance – Summer Webinar Jul 15 2021 (1)
  4. Hemophilia Alliance – Summer Webinar Jul 15 2021 (1)

Summer & Fall 2022 (10)

  1. Draft Gene Therapy Single Case Agreement for sharing externally 07 21 2022 (2)
  2. Hemophilia Alliance – August Member Webinar August 10 2022 (2)
  3. Final Citizens Petition for Signature 2022-07-01 20_45_19 (1)
  4. Member Survey Charts – updated – final (002) (1)

Thursday - October 27 2022 (16)

  1. What to Know about Medicare and Medicaid – Ellen Riker New HTC Staff Meeting 10272022 (3)
  2. The Independent Center Story – Becky Burns New HTC Staff Meeting 10272022 (3)
  3. What to Know about Medicare and Medicaid – Ellen Riker New HTC Staff Meeting 10272022 (2)
  4. The Independent Center Story – Becky Burns New HTC Staff Meeting 10272022 (2)

Thursday, 03-18-2021 (11)

  1. 2021-Spring-Meeting-Agenda (8)
  2. Board Update – Heidi Lane 03182021 (1)
  3. Alliance Update – Joe Pugliese 03182021 (1)
  4. Pharmacy Operations – Running your business – Singh and Amond 03182021 (1)

Thursday, 05-20-2021 (2)

  1. May 20th member’s webinar 2021 Final (1)
  2. May 20th member's webinar 2021 recording (1)

Tuesday (22)

  1. What Can Go Wrong – Sean Singh Mark Plencner Jeff Blake (2)
  2. Medicare – Ellen Riker (2)
  3. Medicaid – George Oestreich (2)
  4. Letter of Agreement – Jeff Amond and Kimberly Lackman (2)

Tuesday, 09-21-2021 (11)

  1. Takeda Update – Tim McClatchey Heather Dean and Rebeka Carty 09212021 (2)
  2. Hemophilia 101 – Chris Guelcher 09212021 (1)
  3. HANS – Jeff Blake and Roland Lamy 09212021 (1)
  4. Revenue Cycle Management – Kimberly Lackman 09212021 (1)

Tuesday, 10-04-2022 (16)

  1. 2022 Fall Members Meeting Agenda 10042022 (6)
  2. 2022 Hemophilia Alliance Retiring Board Members (3)
  3. aVWS – Amanda Zuse 10042022 (1)
  4. HTC Best Practices – Heidi Lane 10042022 (1)

Tuesday, 10-6-2020 (7)

  1. HANS – Jeff Blake and Roland Lamy – 10-6-2020 (1)
  2. Therapies – Mark Plencner – 10-6-2020 (1)
  3. Data Reporting – Theresa Parker – 10-6-2020 (1)
  4. Takeda – 10-6-2020 (1)

Tuesday, February 14 (8)

  1. Gene Therapy Update – Spring Members Meeting Feb 14 2023 – Joe Pugliese Jeff Blake Zack Duffy (2)
  2. Audit Check-In – Spring Members Meeting Feb 14 2023 – Mike Glomb Elizabeth Karan (2)
  3. Welcome and Board Update – Spring Members Meeting Feb 14 2023 – Eric Gray (2)
  4. Medicaid Update – Spring Members Meeting Feb 14 2023 – George Oestreich (2)

Tuesday, October 10 (6)

  1. Maximizing The Pharmacy Tech Role – Amy Marquez – Fall Members Meeting 10-10-23 (3)
  2. Maintaining Control of Your HTC – Louise Baca – Fall Members Meeting 10-10-23 (3)
  3. HANS & Payer Trends Update – Roland Lamy – Fall Members Meeting 10-10-23 (2)
  4. Medicaid Update – George Oestreich – Fall Members Meeting 10-10-23 (2)

Updates (21)

  1. Express Scripts acquisition of medco tool box: Alliance Fact Sheet (8)
  2. 340B Coalition Member Letter to CMS and HRSA re Medicaid Billing (8)
  3. CMS holding Inpatient claims containing Hemophilia Clotting Factor (8)
  4. Express Scripts acquisition of medco tool box: ESI Merger MTD Decision (7)

Webinars (118)

  1. Hemophilia Alliance - Johanna Gray - Big Bill Big Insurance Impact Webinar Series Webinar 1 - Overview - August 12, 2025 (mp4/video presentation) (52)
  2. Hemophilia Alliance - Johanna Gray - Big Bill Big Insurance Impact Webinar Series Webinar 1 - Overview - August 12, 2025 (pdf presentation) (32)
  3. Hemophilia Alliance Webinar - 07-11-24 - Becky B and Kollet K - Navigating Patient Assistance and Copay Assistance Schemes [Alternative Funding/AFPs] (mp4 video presentation) (15)
  4. Hemophilia Alliance Webinar - 07-11-24 - Becky B and Kollet K - Navigating Patient Assistance and Copay Assistance Schemes [Alternative Funding/AFPs](pdf presentation) (14)

Wednesday - October 26 2022 (20)

  1. The Alliance Pharmacy Services and More – Michael Fusaro New HTC Staff Meeting 10262022 (2)
  2. Finding Success in a Large Academic Healthcare Inst – Zack Duffy New HTC Staff Mtg 10262022 (2)
  3. Program Income – Issie Karan New HTC Staff Meeting 10262022 (2)
  4. Finding Success in a Large Academic Healthcare Inst – Zack Duffy New HTC Staff Mtg 10262022 (2)

Wednesday, February 15 (5)

  1. Meeting Wrap Up – Spring Members Meeting Feb 15 2023 – Joe Pugliese (1)
  2. Program Income – Spring Members Meeting Feb 15 2023 – Elizabeth Karan Mike Glomb (1)
  3. HANS Update – Spring Members Meeting Feb 15 2023 – Jeff Blake (1)
  4. HANS at Tulane – Spring Members Meeting Feb 15 2023 – Jennifer Borrillo (1)

Winter & Spring 2021 (6)

  1. Hemophilia Alliance – Spring Webinar Apr 22 2021 (1)
  2. Hemophilia Alliance – Spring Webinar Apr 22 2021 (1)
  3. Hemophilia Alliance – Winter Webinar Feb 18 2021 (1)
  4. Hemophilia Alliance – Winter Webinar Feb 18 2021 (1)

Winter & Spring 2022 (4)

  1. Hemophilia Alliance – April Member Webinar April 27 2022 (1)
  2. Hemophilia Alliance – April Member Webinar April 27 2022 (1)
  3. Hemophilia Alliance – February Member Webinar Feb 15 2022 (1)
  4. Hemophilia Alliance – February Member Webinar Feb 15 2022 (1)