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Hemophilia Alliance - Johanna Gray - Big Bill Big Insurance Impact Webinar Series Webinar 1 - Overview - August 12, 2025 (mp4/video presentation) (50)
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VWD Bloodworks Hemophilia Alliance Genetic Testing Program FINAL Requisition Forms - Fillable (pdf) (41)
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Hemophilia Alliance Genetic Testing Program with BloodWorks and Versiti Webinar Presentation (pdf presentation) (28)
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Hemophilia Alliance - Johanna Gray - Big Bill Big Insurance Impact Webinar Series Webinar 1 - Overview - August 12, 2025 (pdf presentation) (27)
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2022 (16)
- Implementing Medicare’s New Skilled Nursing Facility (SNF) Policy on Bleeding Disorder Treatments – Ellen Riker Pamala Truscott Amanda Wetzel 10182022 (7)
- Implementing Medicare’S New Skilled Nursing Facility (Snf) Policy On Bleeding Disorder Treatments – Ellen Riker Pamala Truscott Amanda Wetzel 10182022 (3)
- Draft Gene Therapy Single Case Agreement for sharing externally 07 21 2022 (2)
- Hemophilia Alliance – August Member Webinar August 10 2022 (2)
2022 Nursing CE Webinars (7)
- Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (6)
- Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (6)
- Private: Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (1)
- Products Preferences and the Pipeline – A Nursing CE Webinar – June 30 2022 (1)
2022 Pharmacist CE Conference (23)
- 2022 Pharmacists CE Conference - 1st Annual Hemophilia Alliance CE Conference Agenda (pdf) (18)
- 2022 Pharmacists CE Conference - 1st-Annual Hemophilia Alliance Pharmacy CE Conference – Agenda and Links (pdf) (12)
- 2022 Pharmacists CE Conference - Sonia Nasr-Carol Johnstone Fundamentals of Motivational Interviewing for HTC Pharmacists Part 2 (mp4 video presentation) (4)
- 2022 Pharmacists CE Conference - Jennifer Maahs - Hemophilia A and Non-factor Therapy: Where are we now? (pdf presentation) (3)
2023 Fall Members Meeting - San Antonio, TX (14)
- Maximizing The Pharmacy Tech Role – Amy Marquez – Fall Members Meeting 10-10-23 (3)
- Maintaining Control of Your HTC – Louise Baca – Fall Members Meeting 10-10-23 (3)
- Contract Pharmacy Arrangements – Alison Bartko – Fall Members Meeting 10-09-23 (2)
- Gene Therapy Payer Contracting – Jeff Blake – Fall Members Meeting 10-09-23 (2)
2023 Pharmacist CE Conference (26)
- 2023 Pharmacists CE Conference - Agenda (pdf) (6)
- 2023 Pharmacists CE Conference - Desiree Hill, PharmD and Amanda Phillips, MS – Quality Improvement Efforts in the Specialty Pharmacy Setting (mp4 video presentation) (3)
- 2023 Pharmacists CE Conference - Rebecca Kruse-Jarres, MD – Acquired Hemophilia A (mp4 video presentation) (3)
- 2023 Pharmacists CE Conference - Rebecca Kruse-Jarres, MD – Acquired Hemophilia A (pdf presentation) (3)
2024 Nurses CE Conference (28)
- 2024 Nurses CE Conference - 5-15 yo Parent Guidelines to Promote Transition Readiness (pdf) (3)
- 2024 Nurses CE Conference - Agenda (pdf) (3)
- 2024 Nurses CE Conference - Parent Guidelines 9-12 (pdf) (2)
- 2024 Nurses CE Conference - Felicia Munster - The Challenges of the Aging Population with Bleeding Disorders (pdf presentation) (2)
2024 Pharmacist CE Conference (24)
- 2024 Pharmacists CE Conference - Mark Reding, MD - Update on New and Emerging Therapies for Hemophilia (pdf presentation) (8)
- 2024 Pharmacists CE Conference - Agenda (pdf) (3)
- 2024 Pharmacists CE Conference - Mark Reding, MD - Update on New and Emerging Therapies for Hemophilia (mp4 video presentation) (3)
- 2024 Pharmacists CE Conference - Stacy Croteau, MD - PK-Tailored Factor Concentrate Prophylaxis in Hemophilia (pdf presentation) (2)
2024 Physical Therapists CE Conference (17)
- 2024 Physical Therapists CE Conference - Patricia Tobase - To Rest Or Not To Rest (pdf presentation) (5)
- 2024 Physical Therapists CE Conference - Makenzie Sledd and Sarah Hanson - Orthotics (pdf presentation) (4)
- 2024 Physical Therapists CE Conference - Makenzie Sledd and Sarah Hanson - Orthotics (mp4 video presentation) (4)
- 2024 Physical Therapists CE Conference - Stacie Atkins - MSKUS (pdf presentation) (3)
2025 New HTC Staff Meeting - Orlando (15)
- 2025 New HTC Staff Meeting - Mike Glomb - 340B Basics The Ins and Outs of 340B (pdf presentation) (6)
- 2025 New HTC Staff Meeting - Jeff Blake - HemoAlliance Overview (pdf presentation) (5)
- 2025 New HTC Staff Meeting - Stevan Mizimakoski - Running an HTC Pharmacy (pdf presentation) (5)
- 2025 New HTC Staff Meeting - Susan Lattimore - Regions and Grants - How Do They Work (pdf presentation) (4)
2025 Nurse CE Conference (10)
- 2025 Nurses CE Conference - Stefanie Dugan - Demystifying VWD Diagnosis and Testing (pdf presentation) (3)
- 2025 Nurses CE Conference - Stephanie Sibrel - Barriers to Care in Bleeding Disorders Strategies for Access (3)
- 2025 Nurses CE Conference - Regina Butler - HTC Nurses as Leaders (pdf presentation) (2)
- 2025 Nurses CE Conferece - Susan Lattimore - Biases and Disparities in Healthcare Sex Assigned at Birth (pdf presentation) (2)
2025 Pharmacist CE Conference (24)
- 2025 Pharmacists CE Conference – Mark Reding, MD – Update on New and Emerging Therapies for Hemophilia (pdf presentation) (18)
- 2025 Pharmacists CE Conference – Rebecca Kruse-Jarres, MD – Clinical Trial Update on Upcoming Bleeding Disorder Medications (pdf presentation) (15)
- 2025 Pharmacists CE Conference – Kim Steinbronn, RPh, BCPS and Marie Shinkle, PharmD – Pharmacokinetics and Obesity in the Bleeding Disorder Patient (pdf presentation) (14)
- 2025 Pharmacists CE Conference – Anne Greist, MD – History of Hemophilia and HIV and Product Development (pdf presentation) (13)
2025 Physical Therapist CE Conference (8)
- 2025 Physical Therapists CE Conference - Fred Loeffler - The Shoulder (pdf presentation) (2)
- 2025 Physical Therapists CE Conference - Laura Singer-Fox - Individuals Assigned Female at Birth (AFAB) in Clinic (pdf presentation) (2)
- 2025 Physical Therapists CE Conference - Cindy Bailey - Heterotopic Ossification, MM Tears and Contusions (pdf presentation) (1)
- 2025 Physical Therapists CE Conference - Cindy Bailey - Kinesiology Taping (pdf presentation) (1)
2025 Social Worker CE (19)
- 2025 Social Worker CE Conference – Sara Berger - Artificial Intelligence and the NASW Code of Ethics Day 2 Part 1 (mp4 video presentation) (0)
- 2025 Social Worker CE Conference – Sara Berger - Artificial Intelligence and the NASW Code of Ethics Day 2 Part 2 (mp4 video presentation) (0)
- 2025 Social Worker CE Conference – Sara Berger - Artificial Intelligence and the NASW Code of Ethics Day 2 Part 3 (mp4 video presentation) (0)
- 2025 Social Worker CE Conference – Sara Berger - Artificial Intelligence and the NASW Code of Ethics Day 2 Part 4 (mp4 video presentation) (0)
CE Programs (190)
- 2022 Pharmacists CE Conference - 1st Annual Hemophilia Alliance CE Conference Agenda (pdf) (18)
- 2025 Pharmacists CE Conference – Mark Reding, MD – Update on New and Emerging Therapies for Hemophilia (pdf presentation) (18)
- 2025 Pharmacists CE Conference – Rebecca Kruse-Jarres, MD – Clinical Trial Update on Upcoming Bleeding Disorder Medications (pdf presentation) (15)
- 2025 Pharmacists CE Conference – Kim Steinbronn, RPh, BCPS and Marie Shinkle, PharmD – Pharmacokinetics and Obesity in the Bleeding Disorder Patient (pdf presentation) (14)
Day 1 (9)
- 340B Basics - Sean Singh - New HTC Staff Orientation 03-26-24 (4)
- Regions and Grants - Heidi Lane - New HTC Staff Orientation 03-26-24 (3)
- 340B HTC Audit - Jennifer Borrillo - New HTC Staff Orientation 03-26-24 (2)
- Running an HTC Pharmacy - Stevan Mizimakoski - New HTC Staff Orientation 03-26-24 (2)
December 13 2022 (3)
- Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (6)
- Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (6)
- Private: Acquired Von Willebrand Syndrome Pediatric Update And Screening – A Nursing CE Webinar – December 13 2022 (1)
Desi Hill, PharmD and Amanda Phillips, MS (2)
- 2023 Pharmacists CE Conference - Desiree Hill, PharmD and Amanda Phillips, MS – Quality Improvement Efforts in the Specialty Pharmacy Setting (mp4 video presentation) (3)
- 2023 Pharmacists CE Conference - Desiree Hill, PharmD and Amanda Phillips, MS – Quality Improvement Efforts in the Specialty Pharmacy Setting (pdf presentation) (2)
Genetic Testing Program (6)
- Hemophilia Alliance Genetic Testing Program Versiti - Sponsored Testing Forms FINAL Fillable (pdf) (53)
- VWD Bloodworks Hemophilia Alliance Genetic Testing Program FINAL Requisition Forms - Fillable (pdf) (41)
- FIX Bloodworks Hemophilia Alliance Genetic Testing Program FINAL Requisition Forms - Fillable (pdf) (37)
- FVIII Bloodworks Hemophilia Alliance Genetic Testing Program FINAL Requisition Forms - Fillable (pdf) (31)
Glaivy Batsuli, MD (2)
- 2024 Pharmacists CE Conference - Glaivy Batsuli, MD - Recognition and Management of Muscle Bleeds in Hemophilia A in the Era of Non-Factor Therapy (pdf presentation) (0)
- 2024 Pharmacists CE Conference - Glaivy Batsuli, MD - Recognition and Management of Muscle Bleeds in Hemophilia A in the Era of Non-Factor Therapy (mp4 video presentation) (0)
Kevin Hansen, PharmD (2)
- 2023 Pharmacists CE Conference - Kevin Hansen, PharmD – Sterile Compounding for Hemophilia Treatment a primer on USP 797 and 800 (mp4 video presentation) (1)
- 2023 Pharmacists CE Conference - Kevin Hansen, PharmD – Sterile Compounding for Hemophilia Treatment a primer on USP 797 and 800 (pdf presentation) (0)
Magdalena Lewandowska, MD (2)
- 2023 Pharmacists CE Conference - Magdalena Lewandowska, MD – Novel Therapies for Treatment of Hemophilia A – Real World Experience with Emicizumab (mp4 video presentation) (1)
- 2023 Pharmacists CE Conference - Magdalena Lewandowska, MD – Novel Therapies for Treatment of Hemophilia A – Real World Experience with Emicizumab (pdf presentation) (1)
Meetings (388)
- 2024 Fall Members Meeting - Draft Agenda (pdf) (125)
- 2024 Fall Member Meeting - Jason Wittes & Roland Lamy - Market Disruptors: Free Market Health & Implications to your HTC (pdf presentation) (13)
- 2022 Fall Members Meeting Agenda 10032022 (11)
- 2024 Fall Member Meeting - Johanna Gray - Washington Update/Advocacy (pdf presentation) (11)
Monday, October 9 (8)
- Contract Pharmacy Arrangements – Alison Bartko – Fall Members Meeting 10-09-23 (2)
- Gene Therapy Payer Contracting – Jeff Blake – Fall Members Meeting 10-09-23 (2)
- HTC Best Practices – Jamison Buxton & Andrea Miller – Fall Members Meeting 10-09-23 (2)
- Value of Your Membership – Sean Singh – Fall Members Meeting 10-09-23 (1)
New HTC Staff Meeting - Fall 2022 (37)
- The Independent Center Story – Becky Burns New HTC Staff Meeting 10272022 (2)
- What to Know about Medicare and Medicaid – Ellen Riker New HTC Staff Meeting 10272022 (2)
- Running a Pharmacy within an HTC – Sean Singh New HTC Staff Meeting 10272022 (2)
- 340B Audit – Issie Karan New HTC Staff Meeting 10272022 (2)
Novo Nordisk (7)
- Novo Nordisk - Mathias M et al. Poster PO140 (explorer7- 56 week) presented at 16th European Association for Haemophilia and Allied Disorders, Feb 7-10, 2023; Manchester, UK (pdf) (1)
- Novo Nordisk - Alhemo Prefilled Pen Overview (pdf) (0)
- Novo Nordisk - Alhemo Prescribing Information, December 2024 (pdf) (0)
- Novo Nordisk - Concizumab Prophylaxis in Patients with Hemophilia A or B with Inhibitors - explorer7 (pdf) (0)
Octapharma (4)
- Octapharma Webinar 02-03-2022 – The 8-CHECK Gene Mutation Testing Service and Implications for Treatment Decision-Making (video/mp4 presentation) (1)
- Octapharma Webinar 06-26-2018 - Treatment of Von Willebrand Disease (video/mp4 presentation) (1)
- Octapharma - Letter of Support - Stop Proposed Cuts 04-25-2017 (1)
- Octapharma Webinar 07-22-2025 - Review The Clinical Benefits of wilate (video/mp4 presentation) (0)
Patient Access Barriers (8)
- Hemophilia Alliance Webinar - 07-11-24 - Becky B and Kollet K - Navigating Patient Assistance and Copay Assistance Schemes [Alternative Funding/AFPs] (mp4 video presentation) (14)
- Hemophilia Alliance Webinar - 07-11-24 - Becky B and Kollet K - Navigating Patient Assistance and Copay Assistance Schemes [Alternative Funding/AFPs](pdf presentation) (13)
- 2025 - Alternative Funding Programs (AFPs) 101 (pdf presentation) (0)
- 2025 - Compliance Issues with Alternative Funding Programs (AFPs) (pdf) (0)
Robert Sidonio, MD (2)
- 2023 Pharmacists CE Conference - Robert Sidonio, MD – Hemophilia and Inhibitors- Prevention and Management Updates for the Specialty Pharmacist (mp4 video presentation) (1)
- 2023 Pharmacists CE Conference - Robert Sidonio, MD – Hemophilia and Inhibitors- Prevention and Management Updates for the Specialty Pharmacist (pdf presentation) (0)
Sonia Nasr, PhD and Carol Johnstone, MA - Part 1 (2)
- 2022 Pharmacists CE Conference - Sonia Nasr-Carol Johnstone - Fundamentals of Motivational Interviewing for HTC Pharmacists Part 1 (mp4 video presentation) (0)
- 2022 Pharmacists CE Conference - Sonia Nasr-Carol Johnstone - Fundamentals of Motivational Interviewing for HTC Pharmacists Part 1 (pdf presentation) (0)
Sonia Nasr, PhD and Carol Johnstone, MA - Part 2 (2)
- 2022 Pharmacists CE Conference - Sonia Nasr-Carol Johnstone Fundamentals of Motivational Interviewing for HTC Pharmacists Part 2 (mp4 video presentation) (4)
- 2022 Pharmacists CE Conference - Sonia Nasr-Carol Johnstone - Fundamentals of Motivational Interviewing for HTC Pharmacists Part 2 (pdf presentation) (1)
Spring Member Meeting (8)
- 2025 Spring Member Meeting - Roland Lamy and Mike Fusaro - Market Disruptors and Free Market Health (pdf presentation) (7)
- 2025 Spring Member Meeting - Susan Lattimore - Regions and HTCs (pdf presentation) (4)
- 2025 Spring Member Meeting - Jeff Blake and Jennifer Anders - Hemophilia Alliance Update (pdf presentation) (3)
- 2025 Spring Member Meeting - Becky Burns - Board Update (pdf presentation) (1)
Stacie Akins, PT (2)
- 2023 Pharmacists CE Conference - Stacie Akins, PT – Physical Therapy and Point of Care Ultrasound for Persons with Bleeding Disorders (mp4 video presentation) (1)
- 2023 Pharmacists CE Conference - Stacie Akins, PT – Physical Therapy and Point of Care Ultrasound for Persons with Bleeding Disorders (pdf presentation) (1)
Thursday - October 27 2022 (16)
- The Independent Center Story – Becky Burns New HTC Staff Meeting 10272022 (2)
- What to Know about Medicare and Medicaid – Ellen Riker New HTC Staff Meeting 10272022 (2)
- Running a Pharmacy within an HTC – Sean Singh New HTC Staff Meeting 10272022 (2)
- 340B Audit – Issie Karan New HTC Staff Meeting 10272022 (2)
Tuesday, February 14 (8)
- Gene Therapy Update – Spring Members Meeting Feb 14 2023 – Joe Pugliese Jeff Blake Zack Duffy (2)
- Audit Check-In – Spring Members Meeting Feb 14 2023 – Mike Glomb Elizabeth Karan (2)
- Welcome and Board Update – Spring Members Meeting Feb 14 2023 – Eric Gray (2)
- Medicaid Update – Spring Members Meeting Feb 14 2023 – George Oestreich (2)
Tuesday, October 10 (6)
- Maximizing The Pharmacy Tech Role – Amy Marquez – Fall Members Meeting 10-10-23 (3)
- Maintaining Control of Your HTC – Louise Baca – Fall Members Meeting 10-10-23 (3)
- Medicaid Update – George Oestreich – Fall Members Meeting 10-10-23 (2)
- HANS & Payer Trends Update – Roland Lamy – Fall Members Meeting 10-10-23 (1)
Updates (21)
- CMS holding Inpatient claims containing Hemophilia Clotting Factor (8)
- Express Scripts acquisition of medco tool box: ESI Merger MTD Decision (7)
- Express Scripts acquisition of medco tool box: Alliance Fact Sheet (7)
- Express Scripts acquisition of medco tool box: Draft Letter: Proposed Merger of Express Scripts, Inc. and Medco Health Solutions (7)
Webinars (118)
- Hemophilia Alliance - Johanna Gray - Big Bill Big Insurance Impact Webinar Series Webinar 1 - Overview - August 12, 2025 (mp4/video presentation) (50)
- Hemophilia Alliance - Johanna Gray - Big Bill Big Insurance Impact Webinar Series Webinar 1 - Overview - August 12, 2025 (pdf presentation) (27)
- Hemophilia Alliance Webinar - 07-11-24 - Becky B and Kollet K - Navigating Patient Assistance and Copay Assistance Schemes [Alternative Funding/AFPs] (mp4 video presentation) (14)
- Hemophilia Alliance - Washington Updates Webinar June 26 2025 (pdf presentation) (14)
Wednesday - October 26 2022 (20)
- The Alliance Pharmacy Services and More – Michael Fusaro New HTC Staff Meeting 10262022 (2)
- Finding Success in a Large Academic Healthcare Inst – Zack Duffy New HTC Staff Mtg 10262022 (2)
- Program Income – Issie Karan New HTC Staff Meeting 10262022 (2)
- Regions and Grants – Heidi Lane New HTC Staff Meeting 10262022 (2)