Date: Wednesday, August 21, 2024
Time: 1:00pm – 2:00pm ET

Title:
Hemophilia Alliance Genetic Testing Program

Hemophilia Alliance has introduced a new Genetic Testing Program as of August 1, 2024. This initiative offers genetic testing for individuals with Hemophilia A, Hemophilia B, and von Willebrand’s disease. The program is specifically designed for patients receiving care at Hemophilia Alliance Member Treatment Centers who either lack insurance coverage, are ineligible for other free genetic testing programs or studies, or face prohibitive out-of-pocket costs. The testing will be conducted by Bloodworks in Washington state and Versiti in Wisconsin.

Who will be eligible for free testing?

• Patients receiving care at a Hemophilia Alliance Member HTC who are not eligible for other available genetic testing free programs or studies AND meet one or more of the following criteria:
  • Patient does not have insurance coverage.
  • Patient does not have coverage for genetic testing under their insurance plan, i.e. not a covered benefit.
  • Patients who cannot afford the out-of-pocket expenses associated with the testing and are at, or below, 400% of the Federal Poverty Level.

Additional information on the program and how to get started can be found here.