All members have the option of attending our various HTC-centric events which include:

Two in-person member meetings a year (in spring and fall)
Regular Webinars educating our members on HTC operations & organizational management, payer relations, regulations and legal updates, and advocacy

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From BioMarin On Advancing Care with ROCTAVIAN® (valoctocogene roxaparvovec-rvox): Clinical Evidence, Patient Perspective & Contract Opportunities

September 4, 2025 @ 1:00 pm - 2:00 pm

Date: Thursday, September 4th, 2025
Time: 1:00pm – 2:00pm ET

WEBINAR TITLE:

Advancing Care with ROCTAVIAN® (valoctocogene roxaparvovec-rvox): Clinical Evidence, Patient Perspective & Contract Opportunities.

Explore updates to HEM Alliance member contract terms and the associated provider economics.
Review the latest clinical data updates, describing the long-term efficacy and safety of ROCTAVIAN.
Hear a firsthand experience from a patient who has received ROCTAVIAN, offering valuable insights into the real-world impact of this therapy.

Dawn St Amand, Associate Director, BioMarin Medical Science Liaison Hemophilia
Sophie Synder, Director, BioMarin US Value and Access
Andrew W., ROCTAVIAN Patient Experience