Notes from the Community, February 2024
Notes from the Community 4th Annual HTC Unite for Bleeding Disorders National Walk Challenge Launch and Registration Promotion!! by Karen Bowe-Hause, Director MCR Hemophilia Alliance is again collaborating with NBDF Read the full article…
January 2024 Newsletter
In this Issue… · Welcome 2024 Advocacy Update · Hemophilia Alliance 2024 Hill Day – The United Voices of Our Community Washington Update · Proposed Rule on Affordable Care Act Read the full article…
Advocacy Update, January 2024
Advocacy Update Hemophilia Alliance 2024 Hill Day – The United Voices of Our Community by Dean M. Hindenlang, Ph.D. Chair, Advocacy Committee and Secretary, Board of Directors Each year, scores Read the full article…
Washington Update, January 2024
Washington Update by Ellen Riker & Johanna Gray, Artemis Policy Group, Hemophilia Alliance Advocacy Consultants Proposed Rule on Affordable Care Act Provisions Published Positive developments in lawsuit about copay accumulator Read the full article…
Legal Update, January 2024
Legal Update Legal Team Update: Beware! Scammers Steal Funds from Department of Health and Human Services (HHS) Grant Recipients by Elizabeth “Issie” Karan, Karan Legal Group, Hemophilia Alliance Legal Counsel Read the full article…
MCR Update, January 2024
Member and Community Relations Update “The January Blues” by the Member and Community Relations Team As you painfully know, every January payers shift the landscape and HTCs experience many Read the full article…
Alliance Update, January 2024
Alliance Update Viva Engage! Hemophilia Alliance Virtual Networking Platform by Marketing & Operations Team
Notes from the Community, January 2024
Notes from the Community WFH 2024 World Congress taking place this April Do you want to learn about the very latest developments in our field? The WFH 2024 World Congress—taking Read the full article…
December 2023 Newsletter
In this Issue… Notes from Joe · Final Edition Advocacy and Legal Update · Future of Copay Accumulator Adjustor Programs Remain Up in the Air · Proposed Rule on Affordable Read the full article…
Notes from Joe, December 2023
Notes from Joe Final Edition by Joe Pugliese, President and CEO Dear Bleeding Disorders Community, It has been, my wife, Karen and my privilege and pleasure to be part of Read the full article…