Payer Update, August 2023
Payer Update Commercial Gene Therapy Options/Disrupters by Member & Community Relations Team It has been a very busy and interesting year in the Payer space. With the recent approval of Read the full article…
Alliance Update, August 2023
Alliance Update Hemophilia Alliance Crossword and Event Reminders by Marketing & Operations Team Summer is winding down, kids are going back to school, and in the blink of an eye, Read the full article…
July 2023 Newsletter
In this Issue… Notes from Joe · Gene Therapy is Here, Now What? Notes from the Community · First Hemophilia Patient to Receive Gene Therapy Outside Clinical Trials Alliance Update Read the full article…
Alliance Update, July 2023
Alliance Update Gene Therapy Update Webinar by Marketing & Operations Team The Need Assessment highlighted that our small and independent centers have more specific needs for services and that expectations Read the full article…
Payer Update, July 2023
Payer Update Hemophilia Alliance Welcomes Kollet Koulianos by Jeff Blake, Senior Vice President Member & Community Relations Because states do not have authority over ERISA plans, federal work is also Read the full article…
Notes from Joe, July 2023
Notes from Joe Gene Therapy is Here, Now What? by Joe Pugliese, President and CEO Since its inception in 1999, the Hemophilia Alliance has seen significant growth in the research Read the full article…
Notes from the Community, July 2023
Notes from the Community First Hemophilia Patient to Receive Gene Therapy Outside Clinical Trials by Hemophilia Outreach Center – Green Bay, WI In a recent press release, the Hemophilia Outreach Read the full article…
Washington Update, July 2023
Advocacy Update Washington, DC’s HOT July by Artemis Policy Group, Hemophilia Alliance Advocacy Consultants Congress has returned from its July 4th Recess with a full plate for the remainder of Read the full article…
Legal Update, July 2023
Legal Update Lawsuits on Implementation of Medicare Drug Pricing Negotiation by Elizabeth “Issie” Karan, Hemophilia Alliance Legal Counsel In recent weeks, pharmaceutical manufacturers, including Merk, Bristol-Myers Squibb, and PhRMA, and Read the full article…
June 2023 Newsletter
In this Issue… Notes from Joe · Going, Going …… Not so fast Notes from the Community · UC San Diego HTC Sponsors Course on Musculoskeletal Ultrasound · Reminder: The Read the full article…