Alliance Update, June 2024
Administration and Operations Team Update Don’t Miss Out! Navigating Patient Assistance and Copay Assistance Schemes Webinar The Hemophilia Alliance will be presenting a special webinar on understanding the difference between Read the full article…
Advocacy Update, June 2024
Advocacy and Legal Update New Research on 340B Program Spending Highlights Differences Among Covered Entities by Elizabeth ‘Issie’ Karan, Legal Counsel In a presentation at the 13th Annual Conference of Read the full article…
MCR Update, June 2024
Member and Community Relations Team Update MCR’s In the Community – MCR Team The Member and Community Relations (MCR) Team is comprised of Angela Blue, Jeff Amond, Karen Bowe-Hause, Read the full article…
Notes from the Community, June 2024
Notes from the Community VWD Connect Foundation Annual Conference in July: REGISTRATION STILL AVAILABLE! VWD Connect Foundation (VCF) will be holding the 8th Annual National Type 3/Severe Von Willebrand Disease Read the full article…
May 2024 Newsletter
In this Issue… Jeff Weighs In Marketing and Operations Team Update · Spring Is In The Air · Upcoming Webinar and Meeting Schedules Advocacy and Legal Update · Hill Day Read the full article…
Jeff Weighs In, May 2024
Jeff Weighs In by Jeff Blake, President and CEO Also in this Issue… Marketing and Operations Team Update · Spring Is In The Air · Upcoming Webinar and Meeting Schedules Read the full article…
Alliance Update, May 2024
Marketing and Operations Team Update Spring Is In The Air by Marketing & Operations Team Last month, our annual Spring Members Meeting and Hill Day in Washington D.C. brought together Read the full article…
Advocacy Update, May 2024
Advocacy and Legal Update Hill Day Alumni’s Comic Book, “What is Factor 8?”, Featured on the News by Elizabeth ‘Issie’ Karan, Legal Counsel Earlier this year, the Cordes Family participated Read the full article…
MCR Update, May 2024
Member and Community Relations Team Update HANS Agreement with Emerging Therapy Solutions (ETS) for Gene Therapy Products by Angela Blue, Director Member and Community Relations The Hemophilia Alliance is Read the full article…
Washington Update, May 2024
Washington Update by Artemis Policy Group HHS Final Rules Strengthen Protections for People with Bleeding and Clotting Disorders Earlier this month, the Office for Civil Rights, within the Department of Read the full article…