Hemophilia Alliance Newsletters

Administration & Operations Update, April 2026

Administration and Operations Update

Unlocking Insights: Hemophilia Alliance Data Portal
by Admin & Ops Team

The Hemophilia Alliance continues to advance our resources for our member HTCs. One of the tools we are pleased to provide is the Hemophilia Alliance Data Portal. The Data Portal assists Alliance members in tracking monthly product purchases.

Benefits of tracking monthly purchases made under the Alliance GPO contracts are:

  • Improved HTC pharmacy business insights
  • Informed decision making
  • Greater potential for savings and rebates

 

This month saw the rollout of several required updates in the Data Portal, along with additional enhancements. In addition to manual entry, you may now use downloadable .csv templates to bulk upload product purchase data for multiple months or for an entire quarter in a single submission.

If you have any questions about our data portal or about who at your HTC is using the data portal, please reach out to Jennifer Anders Rose.

Data Portal FAQs:

  • Data Portal Log in: Your data portal login is separate from your Alliance member website login
  • Data Portal Password: Never share your password for the data portal

28th Annual Linda Gammage Social Work Conference – A Success!!
by Diane Bartlett, LCSW (she/her)—St. Luke’s Hemophilia Center, Boise, ID

Sixty-seven member HTC social workers from across the country gathered in Oklahoma City for the 28th Annual Linda Gammage Social Work Conference in February. This year’s conference focused on providing education and clinical skills for Solution Focused Brief Practice and Safety, Well Being and Ethical Decision Making in our personal and professional lives. Attendees found the sessions to be engaging, practical and helpful information for their practice. In addition, meaningful reflection and conversations were had by attendees against the sobering backdrop of the deadliest act of domestic terrorism in U.S. history at the Alfred P. Murrah Federal Building on April 19, 1995.

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The conference opened with a full-day training on Solution Focused Brief Practice (SFBP) led by Teri Pichot, LCSW, LAC, MAC, founder of Denver Center for Solution-Focused Brief Therapy. Using a solution-focused mindset, attendees learned techniques to use in the HTC setting to focus on what people want to achieve rather than on the problem(s) with which they are struggling. 

Day two featured Emily Bartlett, LICSW, whose clinical work focuses on behavioral health, crisis management and trauma. Working as a co-response clinician in the Boston area, she partners with law enforcement to provide immediate, on-scene crisis intervention during 911 calls. Emily provided concrete solutions for assessing crisis/high-risk situations using situational, cultural, and self-awareness frameworks. Reviewing the ethical framework of social work practice and advocacy during the current climate was value-added.

The Linda Gammage Social Work Planning Committee and conference attendees extend a heartfelt thank you to CSL Behring for its continued support since the conference’s inception in 1997. The event remains a meaningful and impactful cornerstone for HTC social workers and their clinical practice.

As we look forward to next year’s conference, the planning committee is excited to announce our newest member: Molly Lippold-Meinholz, MSW, CAPSW (she/her), a social worker and Program Manager at University of Wisconsin Health’s Comprehensive Program for Bleeding Disorders.

Spring Member Meeting Highlights: What Members Are Talking About
by Admin & Ops Team

The 2026 Spring Member Meeting generated strong engagement and meaningful discussion, with evaluation feedback highlighting standout sessions and clear priorities for the future. Across both days, members consistently rated sessions highly and shared insights reflecting the real‑world challenges and opportunities facing HTCs.

AI in Healthcare, presented by invited speaker Sara E. Berger, emerged as the top‑rated session, praised as both eye‑opening and highly relevant as technology continues to shape healthcare delivery. Members also placed found particular value in Medicare and Medicaid updates, Washington policy insights, and practical HTC Spotlights that offered real‑world examples and actionable takeaways. Opportunities to connect—particularly through MCR breakouts and networking—were another significant highlight.

We extend special thanks to the centers and speakers who shared their expertise and innovative practices during the Center Spotlight sessions:

  • Lisa LittnerCincinnati Children’s Hospital
  • Sean RansomWashington Center for Bleeding Disorders
  • Dave Groller and Tina TweedleyAlaska Bleeding Disorders Center

 

Your willingness to share experiences, lessons learned, and practical approaches continues to strengthen the Alliance and inspire peers across our community.

Looking ahead, members expressed strong interest in expanded business and operational content, with a focus on moving beyond identifying challenges to more solution‑focused conversations. Continued education on AI, a drug pipeline snapshot, and discussions related to workforce issues and advocacy were also among the most requested future topics.

Member feedback will continue to guide meeting planning as the Alliance balances technical content with interactive formats—ensuring sessions remain practical, engaging, and aligned with the evolving needs of HTCs nationwide.

2027 Alliance Meeting Calendar is Here!
by Admin Ops Team

We are excited to share the 2027 meeting calendar, giving you plenty of time to plan. As a reminder, the Hemophilia Alliance hosts 9 annual in-person meetings, 4 of which offer CEUs. You can learn more about our member meetings through our Meeting FAQs. Your input helps shape these gatherings, so please reach out to your MCR contact or theresa@hemoalliance.org if you have suggestions about topics to include, a special guest speaker to invite, or ideas for breakout sessions.

Have a story you want to share or a topic you would like us to cover?

Also In This Issue…
Jeff Weighs In
Advocacy and Legal Update
  • Washington Update
  • Protecting Medicaid Patients
Member and Community Relations Update
  • Opportunity to Contract for Home Health Nursing Services with BrightStar
  • When Formularies Fail: The Policy Breakdown Driving Hemophilia Drug Denials and How Patients and HTCs Can Fight Back

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Jeff Blake jeff@hemoalliance.org 317-657-5913
Jennifer Borrillo, MSW, LCSW, MBA borrillo@hemoalliance.org 504-376-5282
Heidi Lane, PT, DPT, PCS heidi@hemoalliance.org 435-659-1230
Angela Blue, MBA angela@hemoalliance.org 651-308-3902
Karen Bowe-Hause karen@hemoalliance.org 717-571-0266
Jazzmine Brown, MBA, MSW, LCSW jazzmine@hemoalliance.org 770-570-2649
Ashley Castello, MEd ashley@hemoalliance.org 225-266-5062
Zack Duffy zack@hemoalliance.org 503-804-2581
Michael B. Glomb MGlomb@ftlf.com 202-466-8960
Miriam Goldstein mgoldstein@artemispolicygroup.com 703-304-8111
Johanna Gray, MPA jgray@artemispolicygroup.com 703-304-8111
Kiet Huynh kiet@hemoalliance.org 917-362-1382
Elizabeth Karan elizabeth@karanlegalgroup.com 612-202-3240
Kollet Koulianos, MBA kollet@hemoalliance.org 309-397-8431
Roland P. Lamy, Jr. roland@hemoalliance.org 603-491-0853
Dr. George L. Oestreich, Pharm.D., MPA george@gloetal.com 573-230-7075
Nyla Page nyla@hemoalliance.org 603-986-0733
Theresa Parker theresa@hemoalliance.org 727-688-2568
Mike Popa popa@hemoalliance.org 614-563-7606
Jennifer Anders Rose rose@hemoalliance.org 954-218-8509
Kelly Waters, MSW, LCSW kelly@hemoalliance.org 804-317-4998