Hill Day 2020 Newsletter

Notes from Joe
· Advocacy Matters!

Legal Update
· 340B Program Attacks: What You Need to Know and How to Respond

Washington Update

Payer Update

Alliance Update
Notes from the Community
· Hemophilia Alliance Foundation Offers Additional Grant Opportunities for COVID-19 Patient Assistance

June 2020 Newsletter

Notes from Joe
· Halfway There

Legal Update
· Program Income Rules Still Apply During a Public Health Emergency

Payer Update

Alliance Update
Notes from the Community
· News from the International Community

May 2020 Newsletter

Notes from Joe
· AC/DC

Legal Update
· 340B Program Flexibilities During COVID-19 Pandemic

Washington Update
· CMS Releases a Second Rule to Provide Flexibility During COVID Emergency
· CMS Releases Rule Reopening Door for Accumulator Adjustor Programs

Payer Update
· HANS Announces New Payer Agreement

Alliance Update
· 2020 Meeting Schedule

Notes from the Community
· All About the WAAPS-Hemo System

April 2020 Newsletter

Notes from Joe
· Fighting Back

Legal Update
· Helping Patients Impacted by COVID-19 through Chapters

Washington Update
· Medicare Home Health Benefit Changes during COVID to Assist Bleeding Disorder Patients

Payer Update
· Coronavirus Policy Changes and Medicaid

Alliance Update
· Social Work Planning Committee Member Needed
· 2020 Meeting Schedule

Notes from the Community
· Hemophilia Alliance Foundation Provides COVID-19 Relief for Patient Assistance
· Update from Hemophilia Federation of America on its Helping Hands Program
· ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of von Willebrand Disease Open for Comment
· Coronavirus (COVID-19) and Hemophilia Summer Camp Considerations

March 2020 Newsletter

Notes from Joe
· Coronavirus Update

Alliance Update
· Webinars on COVID 19 and Changes in Healthcare
· Alliance Meeting for New HTC Personnel is Postponed
· Contract Data Reporting
· 2020 Meeting Schedule

Legal Update
· Why and How HTCs Can Use Referral Arrangements in the 340B Program

Washington Update
· Policymakers Respond to COVID-19
· Virtual Hill Day Details

Payer Update

Notes from the Community
· Hemophilia Alliance Foundation Announces New “Large” Grant

February 2020 Newsletter

Notes from Joe
· How Did We Get Here and Where Are We Going?

Alliance Update
· The More the Merrier: HTCs and Patients Wanted For Hill Day
· May Meeting for NEW HTC Staff
· Join us for an Informative Meeting at HTRS/THSNA in April
· 2020 Meeting Schedule

Washington Update
· Governmental Food Fight: GAO and CMS Sling 340B Related Publications Back-and-Forth?

Payer Update

Notes from the Community
· University of Michigan Launches Infusion U Program

January 2020 Newsletter

Notes from Joe
· 2020 Outlook
· Marketing and Operating Strategic Plan Goals for 2020
· 2020 Payer Team Goals
· 2020 Advocacy and Policy Goals

Payer Update
· A Thank You to the Hemophilia Alliance

Notes from the Community
· Hemophilia Alliance Foundations Funds Health and Fitness Videos
· Final Reminder: Deadline to Apply for the Hemophilia Alliance Foundation’s 2020 Grant is Approaching

Alliance Update
· Notes about Upcoming Alliance Meetings
· Reminder: 2020 340B Program HRSA Grantee Recertification Period Begins in January
· 2020 Meeting Schedule

December 2019 Newsletter

Notes from Joe
2019 Recap

Payer Update

Washington Update

Legal Update
- Legal Team Update – New Contact Information
- Foundations for Grant Compliance: Rules Exist Even When Ignored

Notes from the Community
- Emergency Guides Available

Alliance Update
- Reminder: 2020 340B Program HRSA Grantee Recertification Period Begins in January
- Operations Update
- 2020 Meeting Schedule

November 2019 Newsletter

Notes from Joe
Back to the Future

New Board Member
Regina Butler

Payer Update
Patient Data: Who Owns It, How Do You Use It, and Why Should You Care?

Washington Update

Legal Update
- Supporting Patients while Steering Clear of Fraud

Notes from the Community
- Update from the Hemophilia Alliance Foundation

Alliance Update
- Alliance Operations Update
- 2020 Meeting Schedule

October 2019 Newsletter

Notes from Joe
The Times They Are a-changin. . .

Alliance Update
- Our Library Has a Little of Everything
- Alliance Seeking Board Nominations

Payer Update
Know Your Patients and Their Insurance

Notes from the Community
- NHF’s Bleeding Disorders Conference Brings the Community Together
- HTRS Announces Second Research Colloquium
- Update from the Hemophilia Alliance Foundation