June 2020 Newsletter

Notes from Joe
· Halfway There

Legal Update
· Program Income Rules Still Apply During a Public Health Emergency

Payer Update

Alliance Update
Notes from the Community
· News from the International Community

May 2020 Newsletter

Notes from Joe
· AC/DC

Legal Update
· 340B Program Flexibilities During COVID-19 Pandemic

Washington Update
· CMS Releases a Second Rule to Provide Flexibility During COVID Emergency
· CMS Releases Rule Reopening Door for Accumulator Adjustor Programs

Payer Update
· HANS Announces New Payer Agreement

Alliance Update
· 2020 Meeting Schedule

Notes from the Community
· All About the WAAPS-Hemo System

April 2020 Newsletter

Notes from Joe
· Fighting Back

Legal Update
· Helping Patients Impacted by COVID-19 through Chapters

Washington Update
· Medicare Home Health Benefit Changes during COVID to Assist Bleeding Disorder Patients

Payer Update
· Coronavirus Policy Changes and Medicaid

Alliance Update
· Social Work Planning Committee Member Needed
· 2020 Meeting Schedule

Notes from the Community
· Hemophilia Alliance Foundation Provides COVID-19 Relief for Patient Assistance
· Update from Hemophilia Federation of America on its Helping Hands Program
· ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of von Willebrand Disease Open for Comment
· Coronavirus (COVID-19) and Hemophilia Summer Camp Considerations

March 2020 Newsletter

Notes from Joe
· Coronavirus Update

Alliance Update
· Webinars on COVID 19 and Changes in Healthcare
· Alliance Meeting for New HTC Personnel is Postponed
· Contract Data Reporting
· 2020 Meeting Schedule

Legal Update
· Why and How HTCs Can Use Referral Arrangements in the 340B Program

Washington Update
· Policymakers Respond to COVID-19
· Virtual Hill Day Details

Payer Update

Notes from the Community
· Hemophilia Alliance Foundation Announces New “Large” Grant

February 2020 Newsletter

Notes from Joe
· How Did We Get Here and Where Are We Going?

Alliance Update
· The More the Merrier: HTCs and Patients Wanted For Hill Day
· May Meeting for NEW HTC Staff
· Join us for an Informative Meeting at HTRS/THSNA in April
· 2020 Meeting Schedule

Washington Update
· Governmental Food Fight: GAO and CMS Sling 340B Related Publications Back-and-Forth?

Payer Update

Notes from the Community
· University of Michigan Launches Infusion U Program

January 2020 Newsletter

Notes from Joe
· 2020 Outlook
· Marketing and Operating Strategic Plan Goals for 2020
· 2020 Payer Team Goals
· 2020 Advocacy and Policy Goals

Payer Update
· A Thank You to the Hemophilia Alliance

Notes from the Community
· Hemophilia Alliance Foundations Funds Health and Fitness Videos
· Final Reminder: Deadline to Apply for the Hemophilia Alliance Foundation’s 2020 Grant is Approaching

Alliance Update
· Notes about Upcoming Alliance Meetings
· Reminder: 2020 340B Program HRSA Grantee Recertification Period Begins in January
· 2020 Meeting Schedule

December 2019 Newsletter

Notes from Joe
2019 Recap

Payer Update

Washington Update

Legal Update
- Legal Team Update – New Contact Information
- Foundations for Grant Compliance: Rules Exist Even When Ignored

Notes from the Community
- Emergency Guides Available

Alliance Update
- Reminder: 2020 340B Program HRSA Grantee Recertification Period Begins in January
- Operations Update
- 2020 Meeting Schedule

November 2019 Newsletter

Notes from Joe
Back to the Future

New Board Member
Regina Butler

Payer Update
Patient Data: Who Owns It, How Do You Use It, and Why Should You Care?

Washington Update

Legal Update
- Supporting Patients while Steering Clear of Fraud

Notes from the Community
- Update from the Hemophilia Alliance Foundation

Alliance Update
- Alliance Operations Update
- 2020 Meeting Schedule

October 2019 Newsletter

Notes from Joe
The Times They Are a-changin. . .

Alliance Update
- Our Library Has a Little of Everything
- Alliance Seeking Board Nominations

Payer Update
Know Your Patients and Their Insurance

Notes from the Community
- NHF’s Bleeding Disorders Conference Brings the Community Together
- HTRS Announces Second Research Colloquium
- Update from the Hemophilia Alliance Foundation

Fall Members Meeting Edition 2019

Notes from Joe
Celebrating 20 Years of the Alliance!

Alliance Update
Alliance Seeking Board Member Nominations
Portland Didn’t Disappoint

Legal Update
Keeping and Getting Back What’s Yours

Washington Update

Payer Update
15 Key Points From Your Payer Team

Notes from the Community
HTC Patients Highly Satisfied with HTC 340B Programs Nationwide

Linda Gammage Social worker conference
Register for one of the spots for the conference in San Diego February 2020