Administration and Operations Update
2024 Review – Celebrating Progress and Paving the Future
by Administration & Operations Team
This has been an exciting year of growth and achievement for the Alliance! We started 2024 with our new President and CEO, Jeff Blake and our new SVP Member and Community Relations, Jennifer Borrillo. In October, we welcomed Heidi Lane as our new SVP Administration & Operations. We hosted 9 in-person meetings, embraced new data tools to enhance our impact, and launched a revamped website to better serve our community. We united with patients and families to educate legislators during our impactful Spring Alliance Hill Day, celebrated Joe Pugliese’s remarkable retirement after almost 20 years of visionary leadership and marked our 25th Anniversary—reflecting on the progress we’ve made and the future ahead.
In 2024, of the 9 in-person meetings, 4 offered CEUs at no cost to members: the Pharmacist Meeting, the Linda Gammage Social Worker Conference, the inaugural Physical Therapist CE Meeting, and the first-ever Nurses CE Meeting. A special thank you to the planning committees for their dedication in ensuring engaging agendas focused on networking and best clinical practices. The New HTC Staff Meeting in New York City aimed to help new staff members acclimate to their roles, better understand HTC operations and develop lifelong connections.
Our Spring Member Meeting in Washington, DC, featured our annual Alliance Hill Day and the heartfelt retirement celebration for Joe Pugliese. The Fall Member Meeting in New Orleans was one of our most interactive to date, which included the Alliance’s 25th Anniversary celebration at the NOLA Aquarium. The year closed with the 2nd Annual MP/BA Meeting in Las Vegas, bringing together HTC Medical Providers and Business Administrators for meaningful discussions on next steps for improving their programs. The majority of attendees acknowledge being satisfied or extremely satisfied with the content at our meetings and networking continues to be one of the most important aspects.
We made significant strides in leveraging data and new tools in 2024, particularly with the expansion of manufacturer rebates. By enhancing data quality monitoring and automating communications, we’ve improved transparency and support for our members.
One of the year’s biggest milestones was the launch of our redesigned website in July. After months of planning and feedback, we modernized the platform to be more user-friendly with enhanced communication and accessibility for the community and our members. We look forward to building on this foundation in the years ahead.
As we reflect on a year of tremendous growth and achievement, we are excited to continue advancing our mission and strengthening our community.
Happy Holidays – ‘see you in the New Year!
The Administration & Operations Team
2025 MEETINGS | DATE |
|---|---|
Pharmacists CE Conference [REGISTRATION CLOSED] | January 22 – 24, 2025 (San Diego, CA) |
Linda Gammage Social Workers CE Conference [REGISTRATION CLOSED] | February 26 – 28, 2025 (Austin, TX) |
Spring Member Meeting [REGISTER TODAY] | March 9 – 11, 2025 (Salt Lake City, UT) |
Nurses CE Conference [SAVE THE DATE] | April 27 – 29, 2025 (Orlando, FL) |
New HTC Staff Orientation [SAVE THE DATE] | April 29 – May 1, 2025 (Orlando, FL) |
Physical Therapists CE Conference [SAVE THE DATE] | May 14 – 16, 2025 (Phoenix, AZ) |
Fall Member Meeting & Hill Day [SAVE THE DATE] | October 5 – 7, 2025 (Washington, DC) |
Also In This Issue…
Jeff Weighs In
Advocacy and Legal Update
- 2024 – An Eventful Year for 340B and Insurance Reforms
- Agency and Regulatory Actions on Private Insurance Reform
- Hemophilia Alliance Hill Day Focused on 340B and Alternative Funding Programs
Member and Community Relations Update
- MCR’s In the Community
Notes From The Community
- Hemophilia Alliance Foundation Seeking New Board Members
- Unite Walk Wall of Walkers Campaign
- Empowering Change: Raising Awareness for Bleeding Disorders in Women, Girls, and People with the Potential to Menstruate