Alliance Update, December 2020

Alliance Update

Operations Update
By Sean Singh

2020 has zoomed by but I have learned a lot. Zoom seemed to be the word of the year. Prior to this year when I thought of zoom zoom, I imagined myself in a convertible Mazda Miata with the wind blowing through my hair and my left hand floating in the air outside the driver’s window as the television commercials showed us often. Now when I hear zoom, I don’t imagine myself in a car, but I actually see myself in the lower right-hand corner of someone’s kitchen, backyard, living room or home office and every once in a while, a real office.

This year we got really close to seeing you in person but canceled our Spring meeting just 10 days before it was scheduled to occur in March. This led us to our very first virtual Hill Day. It went well and was the beginning of our virtual meetings. We learned that you were very engaged as we put on over 100 webinars. Our fall member’s meeting and new HTC staff meeting was very well attended. Our manufacturing partners have been providing timely topics for their webinars and the response from you to these presentations has been very good. We continue to see you engaged.

We updated our website and our data portal to make it easier to enter your data and to help you help us to capture more information. We have seen an increase in participation in inputting the data in a timely manner and we are thankful for all your help on this.

We launched Harmony in Hemophilia this year, highlighting our efforts to increase collaboration between our member HTCs and local NHF and HFA Chapters. Our first joint webinar included overviews of HFA, Hemophilia Alliance, Hemophilia Alliance Foundation and The Alliance Pharmacy. Our second webinar focused on an update from NHF’s VP of Chapter Services, as well as presentations from two of our member HTCs. Cincinnati Children’s Hospital Medical Center and University of Colorado Hemophilia and Thrombosis Center both discussed details of programs developed through collaboration with their local Chapters. Attendance was very good for both webinars and positive feedback supports our plan to continue the series of webinars in 2021. Our first webinar of the new year will be a 340B presentation, highlighting the history of 340B, how HTCs participate, and the advantages to HTCs and the community. The audience focus for this presentation will be both NHF Chapter and HFA Member Organization members. We are currently seeking suggestions for topics you would like to see highlighted in 2021 which would assist to increase collaboration between your Center and your local patient organization.

As we close out 2020, we thank you for the support you have given us and for the feedback, comments, and recommendations on how we can do things better for you. We have implemented many of your recommendations and look forward to your continued engagement. On a personal note, I want to thank those of you who have shared your homes with us. I have seen some great holiday decorations and also gotten some great decorating ideas. While we have not been able to meet in person, I have felt that we have gotten to know you a little better. We look forward to seeing you in person soon.

Operations Team:
Sean Singh – Senior Vice President
Theresa Parker – Administrator
Karen Bowe – Director of Community Relations

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Meeting Schedule for 2021

Winter/Spring Webinar Series
January – 21st
February – 18th
April – 22nd
May – 20th

Spring Members Virtual Meeting
March – 18th, 19th

Hill Day – Virtual
May – 5th

Summer Webinar Series
June – 17th
July – 29th
August – 26th

Fall Members Meeting
September 12th to 14th

New HTC Staff Meeting
October 10th to 12th – Tentative

Also in this Issue…

Notes from Joe
· Looking Back, Planning Ahead

Legal Update
· Update and Year in Review

Washington Update
· Year in Review

Payer Update
· Year in Review

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