by Marketing & Operations Team

The Hemophilia Alliance has successfully organized seven in-person meetings throughout the year, providing an essential platform for its members to come together, collaborate, and share invaluable insights within the hemophilia community.

We started off 2023 with the Pharmacist Meeting in January. We had 38 registrants which maxed out our in-person option, but we were able to offer the CE credits through a virtual platform. The Linda Gammage Social Worker Conference followed, where we celebrated their 25th Anniversary in San Francisco, CA. Both of these meetings allowed attendees to network with their peers, learn about innovations to their focus and gain CE credits at no cost to them.

The Spring Members meeting was held in Nashville, TN in February, and was as motivating as ever. Our group dinner took us to Broadway where we were treated to a private concert by one of our very own members! In May we hosted the New HTC Staff meeting in NYC. This meeting brought together 65 newly hired employees of HTCs (the average tenure was less than six months), providing information on the ways in which the Alliance can offer support to them in their HTC roles.

Our Hemophilia Alliance Hill Day took place in June this year. Although it was later in the year than we normally go to the Hill it was still impactful for all the HTC employees, patients and Hemophilia Alliance staff and consultants that came out to tell their stories.

The St. Anthony hotel in San Antonio was the backdrop for our Fall Members meeting. Post covid, this was the best attended meeting. Our networking reception was held outside on the rooftop where the weather was “absolutely perfect”. A highlight presentation was by Jameson Buxton and Andrea Miller who spoke about what they did to become the first Gene Therapy infusion center. And who can forget Louise Baca mentioning each of the squares on the Bingo cards to make sure someone claimed “Bingo” during her presentation! The group dinner at the Texas Ranger Museum allowed for a lot of laughs amongst the displays as well as in the shooting gallery.

Finally, our inaugural Physician and Business Administrator meeting took place in Redondo Beach, CA. In addition to the presentations, strategic plan & SWOT analysis workshops, the networking sessions extended past breaks and meals and took us to trivia night and a cooking class.

All of these meetings gave us tremendous opportunities to learn how to serve the community better. Our membership continues to ask us for more networking opportunities and more up to date information on advocacy, payer, marketing, operations, and legal issues. HTCS rely on the Alliance to fully understand and seek insights into running an HTC pharmacy. We have worked to build the library on our website which has extensive and up to date videos as well as power point presentations that are downloadable for your convenience.

We hope to see more of our members this coming year at our many scheduled meetings and we welcome comments and suggestions for future meetings, locations, and presentations that YOU want to see.