Alliance Update, February 2022

Alliance Update

1st Annual Hemophilia Alliance Pharmacist CE Conference
by Stevan Mizamakoski, RPh, Indiana Hemophilia and Thrombosis Center, Pharmacist Conference Committee Member

As many of you know the 1st Annual Hemophilia Alliance Pharmacist CE Conference was held in San Diego at the end of January. The program was offered to pharmacists of HTCs across the country and included an in person and virtual option for attendees. The conference was a great experience for everyone and far exceeded expectations. For those attending in person, a networking reception was held on January 26th that enabled us to meet new people and see some familiar faces. The conference consisted of ten live presentations, providing fourteen hours of live continuing education, from eleven amazing providers.

The experience was fantastic, and we are already looking forward to hosting the 2nd annual conference next year. In addition to the informative presentations the event allowed us to make connections with pharmacists from a variety of different centers, discuss concerns we are facing, and share best practices. I would strongly encourage all Alliance member pharmacists to plan on attending a future conference.

I would like to thank all of our presenters for taking the time to create and present such great and impactful information. I would also like to thank The Hemophilia Alliance for deciding to host such an ambitious event. For those of you like me that do not plan events like this, it is a pretty big undertaking to host a live and virtual event, consisting of in-person and virtual speakers, with approved ACPE credits. I would also like to thank Angela Kellum and Resham Sahijram for volunteering their time and expertise to assist in planning the event.

Further thanks:
by Mark Plencner, Committee Chair

Our thanks again to our outstanding speaker panel:
Steven Pipe, MD; Robert Sidonio, MD; Kim Mauer, MD; Sonia Nasr, PHD; Carol Johnstone, MA; Duc “Bobby” Tran, MD; Maissaa Janbain, MD; Angela Kellum, PharmD; Nicole Reynaud, RN; Jennifer Maahs, PNP; Regina Butler, RN BC

Our thanks also go to:
George Oestreich, PharmD and Angie Johnson of GLO Associates and Sean Singh and Kiet Huynh, Hemophilia Alliance technology experts

And our sponsors, Takeda and TAP

Also in this Issue…

Notes from Joe
· Harmony in Hemophilia

Legal Update
· Grants Management that Makes Sense

Washington Update
· Join us for the Alliance Hill Day!

Payer Update
· Request for Coverage of Desmopressin Acetate Nasal Spray (DDAVP)

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