Hemo Alliance Newsletters

Alliance Update, February 2024

Alliance Update
  • How will you be spending World Hemophilia Day this April 17th, 2024?
  • by Marketing & Operations Team

    The Alliance is inviting all our members to register for the Hemophilia Alliance 2024 Spring Member Meeting & Hill Day that will take place on April 15th – 18th in Washington DC. We are excited that this year’s Hill Day falls the day after World Hemophilia Day.

    We encourage Alliance members to invite patients to join us on Capitol Hill! More patients equal more voices to help educate Senators and Representatives about bleeding disorders, HTCs, and the importance of the 340B Program to our community. Please note that patients’ airfare, and accommodations in D.C. will be paid for by the Hemophilia Alliance.

    Additionally, on April 17th we are excited to be throwing a very special celebration for Joe Pugliese. For over 45 years, Joe diligently served the bleeding disorders community, and this will be a great opportunity to show our appreciation for all of Joe’s hard work and to wish him the best in his retirement.

    Please click here to register for the Spring Member Meeting & Hill Day because this one-of-a-kind 3-in-1 event will not be something you want to miss!


  • Upcoming Meetings
  • MEETING DATE
    Linda Gammage Social Worker CE Conference February 28 – March 1, 2024
    New HTC Staff Orientation March 25 – 27, 2024
    Spring Members Meeting and Hill Day [REGISTER NOW] April 15 – 18, 2024
    Physical Therapists CE Conference [REGISTER NOW] May 15 – 17, 2024
    Nurses CE Conference [SAVE THE DATE] June 10 – 12, 2024
    Fall Members Meeting October 9 – 11, 2024
    Physicians and Business Administrators Meeting November 14 – 17, 2024

Also in this Issue…

Jeff Weighs In

Advocacy and Legal Update
· Senators Release Draft Legislation to Reform the 340B Program: the SUSTAIN 340B Act

Member and Community Relations Update
· Gene Therapy – Hemophilia Alliance Network Services (HANS) Opportunity

Notes from the Community
· 4th Annual HTC Unite for Bleeding Disorders National Walk Challenge Launch and Registration Promotion!!

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Jeff Blake jeff@hemoalliance.org 317-657-5913
Jennifer Borrillo, MSW, LCSW, MBA borrillo@hemoalliance.org 504-376-5282
Heidi Lane, PT, DPT, PCS heidi@hemoalliance.org 435-659-1230
Jeff Amond amond@hemoalliance.org 608-206-3132
Jennifer Anders jennifer@hemoalliance.org 954-218-8509
Angela Blue, MBA angela@hemoalliance.org 651-308-3902
Karen Bowe-Hause karen@hemoalliance.org 717-571-0266
Zack Duffy zack@hemoalliance.org 503-804-2581
Michael B. Glomb MGlomb@ftlf.com 202-466-8960
Johanna Gray, MPA jgray@artemispolicygroup.com 703-304-8111
Kiet Huynh kiet@hemoalliance.org 917-362-1382
Elizabeth Karan elizabeth@karanlegalgroup.com 612-202-3240
Kollet Koulianos, MBA kollet@hemoalliance.org 309-397-8431
Roland P. Lamy, Jr. roland@hemoalliance.org 603-491-0853
Dr. George L. Oestreich, Pharm.D., MPA george@gloetal.com 573-230-7075
Theresa Parker theresa@hemoalliance.org 727-688-2568
Mark Plencner mark@hemoalliance.org 701-318-2910
Ellen Riker eriker@artemispolicygroup.com 202-257-6670