Alliance Update, Hill Day 2020

Alliance Update

By Sean Singh

I’m happy to provide quick updates about a number of Alliance activities this summer and fall. As always, remember WE WORK FOR YOU and please contact me with any ideas or concerns.

Summer Webinar Series

We hope that you will join us this summer for our popular webinar series. We’ve moved it to every other week and we will continue to update you on changes in healthcare that affect HTCs and the bleeding disorders community. We continue to look at solutions for every aspect of your program from manufacturers issues to helping you with payors to providing updates from our team in Washington DC about changes that might affect you from a legal or regulatory perspective. We encourage you to let us know what might be affecting you and how we can help.

The dates for the summer series are:

July 9th – with special guest speaker, Dr. Leonard Valentino, President and CEO of NHF who will present on their Blue Sky initiative; July 23rd; and August 20th.

Fall Members Meeting and New HTC Staff Meeting

Due to uncertainty over the COVID situation this fall, the Alliance has made the sad but necessary decision to cancel the fall members meeting and the new HTC staff meeting.  We look forward to seeing everyone in person in 2021 and virtually via webinars this year.  

Virtual Meetings

We will be participating in both NHF and HFA annual meetings virtually. We are looking for ways to support our members and to help tell their story at the meetings. This can include stories about your center and the work you have been doing, or how you are preparing for the future. The meetings are rapidly approaching. If you are interested in helping us share your story, please contact Sean Singh at

Website Additions

Recorded Webinars – We have been recording our webinars this spring and you can find the slides and recordings in the member section of the website. The summer series is also being uploaded to the website. Please let us know if you are unable to access these presentations. The webinars are the proprietary and are for Alliance members only.

Contact Form – A new Center Contact Update form has been added to the website. The form is a way for you to update us on changes to personnel within your HTC at your convenience. The form is located in the members section of our website. Once you have logged in, click on the Alliance Members tab, then select Center Contact Update.

Email Notification – An email notification recently went out regarding entering in your purchase data. In an effort to help you, help us we will send out reminder emails on the 1st, 6th and 9th of the month. If you did not receive a reminder email and you are the person entering data, please contact

Primary Contact Map – A Contact Map has just been added. You can find it under Alliance Members/Alliance Contact Map. This will show you what team member is your main person of contact for your center.

Also in this Issue…

Notes from Joe
· Advocacy Matters!

Legal Update
· 340B Program Attacks: What You Need to Know and How to Respond

Washington Update

Payer Update
· HANS PPO Agreement: 32 signed, 75 to go!

Notes from the Community
· Hemophilia Alliance Foundation Offers Additional Grant Opportunities for COVID-19 Patient Assistance