Alliance Update, January 2021

Alliance Update

Operations Team Goals
by Sean Singh

Webinars: We plan to continue our webinar series throughout the year and offer even more updates to Alliance members. We also plan to work with our manufacturing partners to offer CE credits for some webinars later in the year. We have been told that we should focus on Nursing, Pharmacy and Physical Therapy. If there are more areas you would like us to consider, please let us know.

Website: We plan to streamline the website to make it easier to access the information you need on the website. For example, our members section of the website has a tremendous amount of information that goes back several years, much of which is still relevant but infrequently accessed. We will archive dated meeting presentations based on the frequency of visits to the files. We also plan to update the home page with information on webinars and meetings on a more frequent basis. Several members are having trouble receiving our email campaigns on meetings because of firewalls. With the change to the website, you will be able to access this information directly on the website.

Newsletter: We are going to reformat our newsletter for a fresh new look that will be more mobile device friendly. As more and more people utilize mobile devices to read our newsletter, we hope this will make it easier for you to get this information.

Harmony in Hemophilia: As we look to foster better relationships and more collaboration between Chapters and our members we will continue to move ahead with this program and offer our support as requested. We will continue our quarterly webinar highlighting collaboration efforts and addressing specific needs of community. We also plan to identify ways to communicate the great things happening in our community and will be looking for stories we can share through our newsletter. We also seek to enhance our relationship with NHF and HFA chapter leadership teams to ensure our efforts are aligned. Finally, we hope to relaunch Harmony in Hemophilia at in-person Chapter events Q3-Q4, 2021 if we are able to meet in person.

Data Reporting: We will continue to enhance our data reporting capabilities to build on the updates we made in 2020. Our goal is for more members to report data monthly. We are always looking for feedback where we can incorporate your ideas to make things more streamlined.

Kiet HuynhNew Team member: Finally, I am pleased to introduce our newest team member! Kiet Huynh (hwin) has just joined us as our Manager of IT Solutions. He is excited to continue his career in the non-profit arena. He will be responsible for the daily IT operations and support, interactions with HA team members, member centers and external partners. Prior to joining The Alliance, Kiet was the IT Manager at the Rockefeller Philanthropy Advisors, IT Manager for Historic Hudson Valley and spent seven years at the National Hemophilia Foundation as their IT Manager. Kiet graduated from Baruch College in NY in 1996 in Computer Information Systems. In his spare time, he likes to take photos, travel, and plays table-tennis competitively. We cannot wait to get a company game going when we can get together in person.

Operations Team:
Sean Singh – Senior Vice President
Theresa Parker – Administrator
Karen Bowe – Director of Community Relations
Kiet Huynh – Manager of IT Solutions


Meeting Schedule for 2021

Winter/Spring Webinar Series
January – 21st
February – 18th
April – 22nd
May – 20th

Spring Members Meeting
March – 18th & 19th (Virtual)

Hill Day
May – 5th (Virtual)

Summer Webinar Series
June – 17th
July – 29th
August – 26th

Fall Members Meeting
September – 12th to 14th (In-person tentative)

New HTC Staff Meeting
October – 10th to 12th (In-person tentative)


Also in this Issue…

Notes from Joe
· Keep Going

Legal and Washington Update
· Washington Bureau Goals

Payer Update
· Payer Team Goals for 2021