Alliance Update, March 2021

Alliance Update

Marketing and Operations Update
by Sean Singh

The spring members meeting was well attended and the interaction with our members was better than expected. In fact, we heard the same message over and over: “We can’t wait to meet in person!” Virtual meetings work but we all miss the networking and in-person interaction. We are looking forward to our next meeting and are evaluating the possibility of the fall meeting being in person. It will be some time before we make that decision but will let you know as soon as we do.

Meeting materials, including all presentations and recordings, are now available in the members section of the website. You can find them here. In addition to the members meeting we have a large library of recorded presentations and tools for you to use. If you do not have a username or password for our website, please go to our homepage then click “JOIN” in the upper right hand corner and complete the form.

We continue to enhance the data portal and will be rolling out some changes in the next few weeks. If you are not reporting your data to us on a monthly basis, we encourage you to start in April. Please contact Theresa Parker, our administrator at Theresa will walk you through the really easy and simple steps to enter your data. She has some videos available for those of you who need a refresher on how to enter your data.

In the coming months we will be sending out several surveys. One will be about your Information Technology needs. Please keep an eye out and if possible, contact me ( and let us know the best person at your center to receive the survey.

Meeting Schedule for 2021

Winter/Spring Webinar Series
April – 22nd

May – 20th

Hill Day
May – 5th (Virtual)

Summer Webinar Series
June – 17th
July – 29th
August – 26th

Fall Members Meeting
September – 12th to 14th (In-person tentative)

New HTC Staff Meeting
October – 10th to 12th (In-person tentative)

Also in this Issue…

Notes from Joe
· Imagine That

Legal Update
· Getting Out Your Message without Getting in Hot Water: HTC Marketing and the Grant Rules

Washington Update
· Please Register for the Alliance Virtual Hill Day!

Payer Update

Notes from the Community
· World Federation of Hemophilia: Global Reach. Local Impact.

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