Alliance Update, May/June 2022

Alliance Update

Harmony in Hemophilia
by Karen Bowe, Director Community Relations

The Hemophilia Alliance is again collaborating with NHF in support of their 2022 Unite for Bleeding Disorders National Walk campaign and is launching the 2nd annual HTC Wall of Walkers. This initiative is meant to build upon the primary goal of Harmony in Hemophilia which is to enhance or build relationships between HTCs and Chapters. The objective of our support is to increase HTC participation in the NHF Walk program. To this end, please find the 2022 Walk schedule here for your convenience. NHF has again created Walk magnets that can be distributed to your patients during routine clinic visits to encourage support for your walk. If you would like to receive magnets, please send an email with your request to karen@hemoalliance.org and I will pass along your information to NHF.

All Alliance member HTC participating teams will be acknowledged on the HTC Wall of Walkers located on the Unite Day landing page on NHFs website. The HTC team name along with photos or a logo will be featured in a scrolling fashion and the site will be continuously updated throughout the walk season. In addition, a travel grant to the 2023 NHF Bleeding Disorders Conference will be awarded to 5 member HTCs raising the most funds for their local Chapters.

The Hemophilia Alliance thanks everyone for your participation and efforts to benefit your local Chapter.


HTC Growth Initiative
by Karen Bowe, Director Community Relations

The Hemophilia Alliance continues to explore ideas which ensure sustainability and growth of our HTC pharmacy programs. With the intent of identifying potential ways to overcome obstacles preventing member HTCs from growing their pharmacy programs to the next level, the Alliance launched the HTC Growth Initiative project in late 2021.

After 6 months of virtual meetings, the final HTC Growth Initiative meeting was held May 15-17 in Denver, CO. Fifteen attendees from eleven HTCs spent 2 days networking and listening to presentations designed to help overcome obstacles preventing growth within pharmacy programs. We had very interactive group breakout sessions in which we reviewed common themes from SWOT analysis data we’ve collected from the participants over the course of the project. In each group, we discussed these themes in depth and shared experiences and outcomes from a variety of different perspectives.

The Alliance team will now begin individual Center reviews on each SWOT analysis and, with the intent of increasing member engagement, will work with each member to identify critical actions the HTC needs to take to overcome obstacles identified in the analysis and create a strategic plan for growth. The Alliance has received very positive feedback from program attendees and plans are being considered to run a second session in the second half of 2022.

Also in this Issue…

Notes from Joe
· Hang in There

Alliance Board Update
· New Board Members

Legal Update
· HTCs and Chapters: Partners in Education and Outreach

Washington Update
· Alliance Advocacy Update

Payer Update

Notes from the Community
· Reminder: Announcing the Hemophilia Alliance Foundation 3rd Annual Innovation Grant