Alliance Update, November 2021

Alliance Update
  • Update on the Alliance HTC Growth Initiative
    by Karen Bowe

    The Hemophilia Alliance continues to explore ideas to ensure sustainability and growth of member HTC pharmacy programs. Earlier this month, we’ve launched a program focusing on HTCs that dispense less than 5M units/year. We are bringing together staff and physicians from centers across the country to discuss and share topics of mutual interest. Through an open forum format, we are seeking to identify obstacles preventing growth and potential ways to overcome these obstacles, then explore how the Hemophilia Alliance may be able to assist in growing these pharmacy programs.


    “As a participant in the Hemophilia Alliance HTC Growth Initiative, I have already gained some valuable insight after only one meeting with this esteemed group! I feel fortunate to have been asked to participate and look forward to sharing and learning about the challenges of HTCs across the nation and how to implement solutions for growth and sustainability, while keeping our patients at the center of all we do! Networking with other HTC teams is extremely important and I feel that this initiative will provide a forum for participating HTCs to share their challenges and barriers and hopefully gain some resolution. At a minimum, this initiative will set the stage for creating new acquaintances, new partnerships, and provide additional resources for members within the Hemophilia network.”
    Louise M. Baca MSN RN
    Senior Director, Oncology
    Maine Medical Center Cancer Institute

    “I am excited to network with other HTCs with similar challenges of being a small, stand alone center. I hope the group will be helpful to leverage our collective strengths to solve these challenges.”
    Alison Bartko B.S. Pharm., R.Ph.
    Director of Pharmacy
    Hemostasis and Thrombosis Center of Nevada

    The commitment for the group entails 1-hour virtual meetings once a month through April, culminating with an in-person meeting in May, where we will share outcomes of our monthly discussions and offer recommendations to help centers grow their pharmacy programs. We’ll also offer unique perspectives from physicians on barriers and opportunities to grow. If you are interested in joining our group, please reach out to your primary Hemophilia Alliance contact for more information (see map below).

    Hemophilia Alliance Primary Contact Map


  • 2022 Spring Alliance Members Meeting Schedule
    by Sean Singh

    These meetings will be in-person knowing that we might have to make changes to an alternate format.

    Event Name Date Registration Link
    Board Retreat (Board Members and HA Staff Only) January 9th to 11th
    Pharmacists CE Conference January 27th to 28th Register Here!
    New HTC Staff Meeting February 6th to 8th Register Here!
    Linda Gammage Social Worker Conference February 23rd to 25th
    Spring members Meeting April 3rd to 5th
    Hill Day TBD
    HTC Growth Initiative Meeting May 15th to 17th

Also in this Issue…

Notes from Joe
· Show Me The Data!

Legal Update
· 340B Litigation Update: Once more unto the breach, dear friends, once more

Payer Update
· Hemophilia Alliance Network Services (HANS) Update

Notes from the Community
· Monitoring the Impact of Gene Therapy in Persons with Hemophilia