Alliance Update, October 2020

Alliance Update

Community Relations Update – October 2020
By Karen Bowe

As announced in August, we have launched our new campaign, Harmony in Hemophilia, aimed at enhancing relationships between our member HTCs, NHF Chapters and HFA Member Organizations. The goal driving our efforts is to facilitate increased awareness of all organizations and positively affect collaboration between the groups.

As a result, I wanted to make you aware of our upcoming first series of joint webinars. On October 21st, the Hemophilia Alliance and HFA held a joint webinar aimed at increasing awareness of both organizations, as well as an overview of Hemophilia Alliance Foundation and The Alliance Pharmacy. The target audience for this webinar was member HTCs, HFA leadership and HFA members.

In addition, on November 5th at 3pm EST, the Hemophilia Alliance will join with NHF to present HTC testimonials entitled “Working with your local Chapter”. Several of our member HTCs have offered to present at this webinar and I’ll be reaching out to them in the very near future to discuss further. Target audience for this joint webinar will be member HTCs, NHF and HFA leadership, as well as members of both organizations.

If you or your Center have any suggestions for future joint webinars, please reach out to me at or at 717-571-0266. I’ll be more than happy to discuss how we can make your interactions with your local Chapters more meaningful and helpful to your patients.

– – –

Join Our Growing Hemophilia Alliance Team!
By Sean Singh

As we grow and are navigating an ever-changing virtual world, the Alliance is looking to hire an IT person, who ideally also has some experience in the bleeding disorders community. The position will report to the Senior Vice President of Marketing and Operations. The job description and requirements can be found here. For questions about this position, please contact Sean Singh at or 727-388-7326.

– – –

Meeting Schedule for 2021

Spring Members Meeting – Virtual
Hill Day – Virtual
Linda Gammage Social Worker Conference – Fall
New HTC Staff Meeting – Fall
Fall Members Meeting – September 2021

Also in this Issue…

Notes from Joe
· Improving Access to Care While Lowering Costs

Legal Update
· The ABCs of Indirect Cost Rates

Washington Update

Payer Update
· Payer Trends: What You Need to Know