Notes from Joe Coming Together by Joe Pugliese, President and CEO The National Hemophilia Foundation’s, annual Bleeding Disorders Conference, (NHF, BDC) returned to pre-pandemic levels for crowds and interactions. Len Read the full article…
Washington Update Congress Seeks Input on 340B Policies and Drug Shortages by Ellen Riker, Hemophilia Alliance Advocacy Consultant Senate RFI on 340B – Last month we reported on a Request Read the full article…
Legal Update Detrimental Impact of Medicaid Unwinding by Elizabeth “Issie” Karan, Hemophilia Alliance Legal Counsel As a reminder, as part of the COVID-19 public health emergency (PHE), state Medicaid programs Read the full article…
Notes from the Community Calling All Pharmacists – Do You Have Your Global Location Number? by Michael Fusaro, Director of Regulatory Compliance, The Alliance Pharmacy The Alliance Pharmacy is working Read the full article…
Payer Update Commercial Gene Therapy Options/Disrupters by Member & Community Relations Team It has been a very busy and interesting year in the Payer space. With the recent approval of Read the full article…
Alliance Update Hemophilia Alliance Crossword and Event Reminders by Marketing & Operations Team Summer is winding down, kids are going back to school, and in the blink of an eye, Read the full article…
In this Issue… Notes from Joe · Gene Therapy is Here, Now What? Notes from the Community · First Hemophilia Patient to Receive Gene Therapy Outside Clinical Trials Alliance Update Read the full article…
Alliance Update Gene Therapy Update Webinar by Marketing & Operations Team The Need Assessment highlighted that our small and independent centers have more specific needs for services and that expectations Read the full article…
Payer Update Hemophilia Alliance Welcomes Kollet Koulianos by Jeff Blake, Senior Vice President Member & Community Relations Because states do not have authority over ERISA plans, federal work is also Read the full article…
Notes from Joe Gene Therapy is Here, Now What? by Joe Pugliese, President and CEO Since its inception in 1999, the Hemophilia Alliance has seen significant growth in the research Read the full article…
