Advocacy Update, May 2024
Advocacy and Legal Update Hill Day Alumni’s Comic Book, “What is Factor 8?”, Featured on the News by Elizabeth ‘Issie’ Karan, Legal Counsel Earlier this year, the Cordes Family participated Read the full article…
Advocacy and Legal Update Hill Day Alumni’s Comic Book, “What is Factor 8?”, Featured on the News by Elizabeth ‘Issie’ Karan, Legal Counsel Earlier this year, the Cordes Family participated Read the full article…
Member and Community Relations Team Update HANS Agreement with Emerging Therapy Solutions (ETS) for Gene Therapy Products by Angela Blue, Director Member and Community Relations The Hemophilia Alliance is Read the full article…
Washington Update by Artemis Policy Group HHS Final Rules Strengthen Protections for People with Bleeding and Clotting Disorders Earlier this month, the Office for Civil Rights, within the Department of Read the full article…
Notes from the Community Hemophilia Alliance Foundation Announces Innovation Grant Cycle Also in this Issue… Jeff Weighs In Marketing and Operations Team Update · Spring Is In The Air · Read the full article…
In this Issue… Jeff Weighs In Advocacy and Legal Update · OPA Releases Much Anticipated Alternative Dispute Resolution Rule for the 340B Program · New Leadership at the Office of Read the full article…
Jeff Weighs In by Jeff Blake, President and CEO Also in this Issue… Advocacy and Legal Update · OPA Releases Much Anticipated Alternative Dispute Resolution Rule for the 340B Program Read the full article…
Washington Update Hemophilia Alliance Hill Day Focuses on 340B and Alternative Funding Programs by Ellen Riker and Johanna Gray, Artemis Policy Group With the goal of educating Members of Congress Read the full article…
Advocacy and Legal Update by Elizabeth ‘Issie’ Karan, Legal Counsel OPA Releases Much Anticipated Alternative Dispute Resolution Rule for the 340B Program On April 18, 2024, the Health Resources and Read the full article…
Member and Community Relations Team Update Linda Gammage Social Work Conference Great Success by Member and Community Relations Team Forty-five social workers from around the country convened in New Read the full article…
Marketing and Operations Team Update Post-New HTC Staff Orientation Update by Marketing & Operations Team We were very excited to return to New York City this past March for our Read the full article…