Alliance Update 2023 Alliance Meetings Create Forums for Education, Collaboration and Fun by Marketing & Operations Team The Hemophilia Alliance has successfully organized seven in-person meetings throughout the year, providing Read the full article…
Notes from the Community Announcing Project and Patient Assistance Grants for 2024! If your organization–or an organization you know–is interested in applying but feels like it does not have the Read the full article…
In this Issue… Notes from Joe Legal Update · Genesis Healthcare Inc. v. Becerra: District Court Invalidates HRSA’s Patient Definition and Implementation in 340B Program Advocacy Update · 2025 NBPP Read the full article…
Notes from Joe by Joe Pugliese, President and CEO “The single biggest problem in communication is the illusion that it has taken place.” George Bernard Shaw The Alliance just completed Read the full article…
Legal Update Genesis Healthcare Inc. v. Becerra: District Court Invalidates HRSA’s Patient Definition and Implementation in 340B Program by Elizabeth “Issie” Karan, Karan Legal Group, Hemophilia Alliance Legal Counsel On Read the full article…
Advocacy Update 2025 NBPP Proposed Rule Released with Positive Policies for Bleeding Disorders Community by Johanna Gray, Artemis Policy Group, Hemophilia Alliance Advocacy Consultant On November 15, the Department of Read the full article…
Member and Community Relations Update From Frustration to Opportunity – Maximizing HANS as a Resource by Jeff Amond, Director Member & Community Relations Over the last few weeks, I attended Read the full article…
Alliance Update Hemophilia Alliance Resources Available to Members by Marketing & Operations Team Over the past few months, we’ve been actively engaged in knowledge-sharing and collaboration through a series of Read the full article…
Notes from the Community 2023 Unite Walk Wall of Walkers update by Karen Bowe-Hause, Director Member and Community Relations In collaboration with the National Bleeding Disorders Foundation, the Hemophilia Alliance Read the full article…
In this Issue… Notes from Joe · Highlights from Hemophilia Alliance Fall Member Meeting Alliance Board Update · Alliance Seeking Board Nominations Alliance Update · Texas ‘HOT’ or Not? · Read the full article…
