July 2023 Newsletter
In this Issue… Notes from Joe · Gene Therapy is Here, Now What? Notes from the Community · First Hemophilia Patient to Receive Gene Therapy Outside Clinical Trials Alliance Update Read the full article…
July 19, 2023
In this Issue… Notes from Joe · Gene Therapy is Here, Now What? Notes from the Community · First Hemophilia Patient to Receive Gene Therapy Outside Clinical Trials Alliance Update Read the full article…
Alliance Update Gene Therapy Update Webinar by Marketing & Operations Team The Need Assessment highlighted that our small and independent centers have more specific needs for services and that expectations Read the full article…
Payer Update Hemophilia Alliance Welcomes Kollet Koulianos by Jeff Blake, Senior Vice President Member & Community Relations Because states do not have authority over ERISA plans, federal work is also Read the full article…
Notes from Joe Gene Therapy is Here, Now What? by Joe Pugliese, President and CEO Since its inception in 1999, the Hemophilia Alliance has seen significant growth in the research Read the full article…
Notes from the Community First Hemophilia Patient to Receive Gene Therapy Outside Clinical Trials by Hemophilia Outreach Center – Green Bay, WI In a recent press release, the Hemophilia Outreach Read the full article…
Advocacy Update Washington, DC’s HOT July by Artemis Policy Group, Hemophilia Alliance Advocacy Consultants Congress has returned from its July 4th Recess with a full plate for the remainder of Read the full article…
Legal Update Lawsuits on Implementation of Medicare Drug Pricing Negotiation by Elizabeth “Issie” Karan, Hemophilia Alliance Legal Counsel In recent weeks, pharmaceutical manufacturers, including Merk, Bristol-Myers Squibb, and PhRMA, and Read the full article…
In this Issue… Notes from Joe · Going, Going …… Not so fast Notes from the Community · UC San Diego HTC Sponsors Course on Musculoskeletal Ultrasound · Reminder: The Read the full article…
Notes from Joe Going, Going …… Not so fast by Joe Pugliese, President and CEO I have been working with the Executive Committee of the Hemophilia Alliance Board for the Read the full article…
Notes from the Community UC San Diego HTC Sponsors Course on Musculoskeletal Ultrasound by Marlene Zepeda, UC San Diego The UC San Diego Hemophilia and Thrombosis Treatment Center is offering Read the full article…