January 2021 Newsletter
In this Issue… Notes from Joe · Keep Going Legal and Washington Update · Washington Bureau Goals Payer Update · Payer Team Goals Alliance Update · Operations Team Goals · Read the full article…
January 29, 2021
In this Issue… Notes from Joe · Keep Going Legal and Washington Update · Washington Bureau Goals Payer Update · Payer Team Goals Alliance Update · Operations Team Goals · Read the full article…
Notes from Joe
· Looking Back, Planning Ahead
Legal Update
· Update and Year in Review
Washington Update
· Year in Review
Payer Update
· Year in Review
Alliance Update
· Operations Update
· 2021 Meeting Schedule
Notes from Joe
· The Light at the End of the Tunnel
Legal Update
· HHS Continues Its “Regulatory Sprint”
Washington Update
Payer Update
· Payer Update: 35 and Growing!
Notes from the Community
· Plasminogen Deficiency Foundation Launched
Alliance Update
· Announcing Our New Board Member
· 2021 Meeting Schedule
Notes from Joe
· Improving Access to Care While Lowering Costs
Legal Update
· The ABCs of Indirect Cost Rates
Washington Update
Payer Update
· Payer Trends: What You Need to Know
Alliance Update
· Community Relations Update – October 2020
· Join Our Growing Hemophilia Alliance Team
· 2021 Meeting Schedule
Notes from Joe
· Continued Opportunities and Threats Facing HTCs
Legal Update
· 340B Program Developments: The Latest
Payer Update
· Know Your Patients and their Insurance Status
Alliance Update
· Alliance Seeking Board Nominations
· Join Our Growing Hemophilia Alliance Team
· 2021 Meeting Schedule
Notes from the Community
· CDC Awards Cooperative Agreements to Bleeding Disorders Organizations
· Hemophilia Alliance Foundation Poster at NHF’s BDC Shows Impact of Grants
· NHF Seeks Input for Blue Sky Strategic Plan
Notes from Joe
· Not Quite at the Finish Line Yet
Legal Update
· Protecting HTC Data Requires Reading the Fine Print
Washington Update
Payer Update
· Welcome Kimberly Lackman, the Newest Alliance Employee!
· Payer Relations Update
Alliance Update
· Alliance, NHF and HFA Launch the Harmony in Hemophilia Campaign
Notes from the Community
· Announcing Year 1 of Hemophilia Alliance Foundation Large Grant Award Winners
Notes from Joe
· Advocacy Matters!
Legal Update
· 340B Program Attacks: What You Need to Know and How to Respond
Washington Update
Payer Update
Alliance Update
Notes from the Community
· Hemophilia Alliance Foundation Offers Additional Grant Opportunities for COVID-19 Patient Assistance
Notes from Joe
· Halfway There
Legal Update
· Program Income Rules Still Apply During a Public Health Emergency
Payer Update
Alliance Update
Notes from the Community
· News from the International Community
Notes from Joe
· AC/DC
Legal Update
· 340B Program Flexibilities During COVID-19 Pandemic
Washington Update
· CMS Releases a Second Rule to Provide Flexibility During COVID Emergency
· CMS Releases Rule Reopening Door for Accumulator Adjustor Programs
Payer Update
· HANS Announces New Payer Agreement
Alliance Update
· 2020 Meeting Schedule
Notes from the Community
· All About the WAAPS-Hemo System
Notes from Joe
· Fighting Back
Legal Update
· Helping Patients Impacted by COVID-19 through Chapters
Washington Update
· Medicare Home Health Benefit Changes during COVID to Assist Bleeding Disorder Patients
Payer Update
· Coronavirus Policy Changes and Medicaid
Alliance Update
· Social Work Planning Committee Member Needed
· 2020 Meeting Schedule
Notes from the Community
· Hemophilia Alliance Foundation Provides COVID-19 Relief for Patient Assistance
· Update from Hemophilia Federation of America on its Helping Hands Program
· ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of von Willebrand Disease Open for Comment
· Coronavirus (COVID-19) and Hemophilia Summer Camp Considerations