Member and Community Relations Update

TAP into Your Future – MCR Team and TAP Work Together
by Member and Community Relations Team

Last week the Directors of the Member and Community Relations team of the Hemophilia Alliance traveled to Westbury, New York, where they met for one and a half days at The Alliance Pharmacy (TAP).

The purpose of this meeting was for The Hemophilia Alliance and TAP staff to review and better understand the full scope of services and capabilities each organization offers our HTC members, to discuss payer trends, and strategize how the two can proactively collaborate for the benefit of member HTCs and the patients they serve.

The meeting began with a tour of TAP and a review of TAP operations, including wholesale distribution, contract pharmacy arrangements and single case agreement activity. TAP highlighted the current products they distribute, which HTCs leverage with Hemophilia Alliance manufacturer contracts through TAP wholesale distribution, the current number of HTCs that utilize TAP as a contract pharmacy, and the number of single case agreements currently in place with TAP as the dispensing pharmacy. 

After the TAP review, the Hemophilia Alliance Team gave a high-level overview of the roles and responsibilities of the Directors of Member and Community Relations (MCRs).  

Together, Hemophilia Alliance and The Alliance Pharmacy are focused on a strategy to strengthen our partnership and collaborative efforts on behalf of our HTC members. Hemophilia Alliance and The Alliance Pharmacy have been partners since 2010 with a focus on how to grow the business of member HTCs’ pharmacy programs.

Going forward, the MCR Directors and the TAP team plan to meet virtually each quarter to discuss areas where we can strengthen services offered to our HTC members and continue to strategize on current trends as reported by payers and brokers.

If you are not utilizing the services and capabilities of TAP, reach out to your MCR team member to learn how TAP can make your HTC stronger.

Hemophilia Alliance Genetic Testing Program Webinar Update
by Angie Blue, Director of Member and Community Relations

On August 21, the Hemophilia Alliance had a webinar going over the new Genetic Testing Program that launched on August 1, 2024. The program was created to provide access to Hemophilia A, Hemophilia B, and von Willebrand’s Disease Genetic Testing for patients of Hemophilia Alliance Member Treatment Centers. This program is for patients who do not have insurance coverage, or their out-of-pocket costs associated with testing is prohibitive. Testing will be performed by Bloodworks in Washington state or Versiti in Wisconsin.

Who will be eligible for free testing?

• Patients receiving care at a Hemophilia Alliance Member HTC who are not eligible for other available genetic testing free programs or studies AND meet one or more of the following criteria:
  • Patient does not have insurance coverage.
  • Patient does not have coverage for genetic testing under their insurance plan, i.e. not a covered benefit.
  • Patients who cannot afford the out-of-pocket expenses associated with the testing and are at, or below, 400% of the Federal Poverty Level.

Additional information for Hemophilia Alliance Members on the program including the recorded webinar and how to get started can be found here.