Member and Community Relations Update
MCRs In the Community
by Karen Bowe-Hause, Director of Member and Community Relations
The Member and Community Relations (MCR) Team is comprised of Angela Blue, Jeff Amond, Karen Bowe-Hause, Mark Plencner, Zack Duffy, Roland Lamy, George Oestreich and Kollet Koulianos. Jennifer Borrillo, Senior Vice President of MCR, leads the team.
As you know, we assist our member HTCs on various issues. Frequently, we attend community events supporting the bleeding and clotting disorder community. Our goal is to get the word out so you know which meetings and events we will be attending. We plan to continue to highlight our community work in the Alliance Newsletter biannually (June & December). Let us know of any future events you’d like us to attend.
While we can’t be everywhere, we strive to meet the needs of our HTCs and Community Partners. So far in 2025, the MCR team attended over 32 state and regional events and meetings in more than 20 states. The team also attended national conferences and advocacy events sponsored by sister organizations, including NBDF, HFA, Coalition for Hem B, THSNA, ATHN, VWD Connect, The Partners in Bleeding Disorders Education programs, and Self-Insurance Institute of America (SIIA).
See below for the MCR team’s plans for the remainder of 2025. We look forward to seeing Hemophilia Alliance members at many of these events.
Future Events MCR Team Members are attending – June 2025 – December 2025
| NBDF CCSC Advisory Board Meeting | June 3-5 | Philadelphia, PA |
| BDASC HELLO Conference & Annual Meeting | June 6-7 | Greenville, SC |
| Brandywine Chapter Annual Meeting | June 14 | Wilmington, DE |
| ISTH Congress | June 21-25 | Washington, DC |
| Eastern PA BDF Annual Meeting | June 25 | King of Prussia, PA |
| Texas Bleeding Disorders Conference | June 20-22 | Dallas, TX |
| 340B Health Coalition – 29th Annual Summer Conference | July 21-23 | Washington, DC |
| PARTNERS: Basic Partners Program for Non-Clinical & Administrative | July 16-17 | Indianapolis, IN |
| VWD Connect Foundation Annual Meeting | July 18-21 | West Palm Beach, FL |
| Tennessee Hemophilia Foundation 55th Annual Meeting | July 25-27 | Pigeon Forge, TN |
| Oklahoma Bleeding Disorders Foundation Annual Meeting | Aug 8-10 | Oklahoma City, OK |
| Eastern PA BDF Unite Walk | Aug 9 | Norristown, PA |
| Arizona Bleeding Disorders Annual Meeting | Aug 15-18 | Phoenix, AZ |
| NBDF BDC | Aug 21-23 | Denver, CO |
| NBDF Colorado Chapter Unite Walk | Aug 23 | Denver, CO |
| PARTNERS: Physician Academy | Sept 14-19 | Indianapolis, IN |
| Arkansas Bleeding Disorders Foundation Annual Meeting | Sept 19-21 | Hot Springs, AK |
| New England Regional Meeting | Sept 29-30 | New York, NY |
| SIIA National Conference | Oct 12-14 | Phoenix, AZ |
| PARTNERS: Advanced Partners for Social Workers | Oct 27-29 | Indianapolis, IN |
| AMCP NEXUS | Oct 27-30 | National Harbor, MD |
| PARTNERS: Basic Partners Program for Clinical Staff | Nov 3-5 | Indianapolis, IN |
| NEHA FALLFEST | Nov 7-9 | Rockport, ME |
| Northern States Region-V West and Great Lakes Regional Meeting | Nov 9-11 | Chicago, IL |
| Mountain States Regional Meeting | Nov 12-14 | Phoenix, AZ |
| National Association of Healthcare Purchasers Coalition | Nov 17-19 | Arlington, VA |
| ASH Annual Meeting & Exhibition | Dec 7-10 | San Diego, CA |
We’d love your input on future newsletter topics
Also In This Issue…
Jeff Weighs In
Awards and Recognition
Recognizing Excellence: The 2025-2026 Joe Pugliese Educational Award Recipients
Celebrating Collaboration: Hemophilia Alliance awarded BDA of South Carolina’s 2024-2025 Appreciation and Partnership Award
Advocacy and Legal Update
- Budget Reconciliation Bill Moves to Senate – Significant Impacts to Health Coverage
- Trump Administration Releases Additional Budget Documents for FY 2026
Administration and Operations Update
- Welcoming Julie to Team Alliance!
- Get Ready for Our Fall Members Meeting & Hill Day!
- Unlocking Insights: The Data Portal
- Plan Ahead: 2026 Hemophilia Alliance Meeting Calendar is Here
Notes From The Community
- VWD Connect Foundation Holds 9th Annual Severe Von Willebrand Disease Patient Conference in July