Newsletters

September 2020 Newsletter
Notes from Joe
· Continued Opportunities and Threats Facing HTCs

Legal Update
· 340B Program Developments: The Latest

Payer Update
· Know Your Patients and their Insurance Status

Alliance Update
· Alliance Seeking Board Nominations
· Join Our Growing Hemophilia Alliance Team
· 2021 Meeting Schedule

Notes from the Community
· CDC Awards Cooperative Agreements to Bleeding Disorders Organizations
· Hemophilia Alliance Foundation Poster at NHF’s BDC Shows Impact of Grants
· NHF Seeks Input for Blue Sky Strategic Plan

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August 2020 Newsletter
Notes from Joe
· Not Quite at the Finish Line Yet

Legal Update
· Protecting HTC Data Requires Reading the Fine Print

Washington Update

Payer Update
· Welcome Kimberly Lackman, the Newest Alliance Employee!
· Payer Relations Update

Alliance Update
· Alliance, NHF and HFA Launch the Harmony in Hemophilia Campaign

Notes from the Community
· Announcing Year 1 of Hemophilia Alliance Foundation Large Grant Award Winners

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Hill Day 2020 Newsletter
Notes from Joe
· Advocacy Matters!

Legal Update
· 340B Program Attacks: What You Need to Know and How to Respond

Washington Update

Payer Update
Alliance Update

Notes from the Community
· Hemophilia Alliance Foundation Offers Additional Grant Opportunities for COVID-19 Patient Assistance

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June 2020 Newsletter
Notes from Joe
· Halfway There

Legal Update
· Program Income Rules Still Apply During a Public Health Emergency

Payer Update

Alliance Update

Notes from the Community
· News from the International Community

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May 2020 Newsletter
Notes from Joe
· AC/DC

Legal Update
· 340B Program Flexibilities During COVID-19 Pandemic

Washington Update
· CMS Releases a Second Rule to Provide Flexibility During COVID Emergency
· CMS Releases Rule Reopening Door for Accumulator Adjustor Programs

Payer Update
· HANS Announces New Payer Agreement

Alliance Update
· 2020 Meeting Schedule

Notes from the Community
· All About the WAAPS-Hemo System

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April 2020 Newsletter
Notes from Joe
· Fighting Back

Legal Update
· Helping Patients Impacted by COVID-19 through Chapters

Washington Update
· Medicare Home Health Benefit Changes during COVID to Assist Bleeding Disorder Patients

Payer Update
· Coronavirus Policy Changes and Medicaid

Alliance Update
· Social Work Planning Committee Member Needed
· 2020 Meeting Schedule

Notes from the Community
· Hemophilia Alliance Foundation Provides COVID-19 Relief for Patient Assistance
· Update from Hemophilia Federation of America on its Helping Hands Program
· ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of von Willebrand Disease Open for Comment
· Coronavirus (COVID-19) and Hemophilia Summer Camp Considerations

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March 2020 Newsletter
Notes from Joe
· Coronavirus Update

Alliance Update
· Webinars on COVID 19 and Changes in Healthcare
· Alliance Meeting for New HTC Personnel is Postponed
· Contract Data Reporting
· 2020 Meeting Schedule

Legal Update
· Why and How HTCs Can Use Referral Arrangements in the 340B Program

Washington Update
· Policymakers Respond to COVID-19
· Virtual Hill Day Details

Payer Update

Notes from the Community
· Hemophilia Alliance Foundation Announces New “Large” Grant

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February 2020 Newsletter
Notes from Joe
· How Did We Get Here and Where Are We Going?

Alliance Update
· The More the Merrier: HTCs and Patients Wanted For Hill Day
May Meeting for NEW HTC Staff
Join us for an Informative Meeting at HTRS/THSNA in April
2020 Meeting Schedule

Washington Update
· Governmental Food Fight: GAO and CMS Sling 340B Related Publications Back-and-Forth?

Payer Update

Notes from the Community
· University of Michigan Launches Infusion U Program

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a style=”font-size: 22px;” href=”/january-2020-newsletter/”>January 2020 Newsletter
Notes from Joe
· 2020 Outlook
· Marketing and Operating Strategic Plan Goals for 2020
· 2020 Payer Team Goals
· 2020 Advocacy and Policy Goals

Payer Update
· A Thank You to the Hemophilia Alliance

Notes from the Community
· Hemophilia Alliance Foundations Funds Health and Fitness Videos
· Final Reminder: Deadline to Apply for the Hemophilia Alliance Foundation’s 2020 Grant is Approaching

Alliance Update
· Notes about Upcoming Alliance Meetings
· Reminder: 2020 340B Program HRSA Grantee Recertification Period Begins in January
· 2020 Meeting Schedule

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December 2019 Newsletter
Notes from Joe
2019 Recap

Payer Update

Washington Update

Legal Update
– Legal Team Update – New Contact Information
– Foundations for Grant Compliance: Rules Exist Even When Ignored

Notes from the Community
– Emergency Guides Available

Alliance Update
– Reminder: 2020 340B Program HRSA Grantee Recertification Period Begins in January
– Operations Update
– 2020 Meeting Schedule

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November 2019 Newsletter
Notes from Joe
Back to the Future

New Board Member
Regina Butler

Payer Update
Patient Data: Who Owns It, How Do You Use It, and Why Should You Care?

Washington Update

Legal Update
– Supporting Patients while Steering Clear of Fraud

Notes from the Community
– Update from the Hemophilia Alliance Foundation

Alliance Update
– Alliance Operations Update
– 2020 Meeting Schedule

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October 2019 Newsletter
Notes from Joe
The Times They Are a-changin. . .

Alliance Update
– Our Library Has a Little of Everything
– Alliance Seeking Board Nominations

Payer Update
Know Your Patients and Their Insurance

Notes from the Community
– NHF’s Bleeding Disorders Conference Brings the Community Together
– HTRS Announces Second Research Colloquium
– Update from the Hemophilia Alliance Foundation

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September 2019 Newsletter
Notes from Joe
Celebrating 20 Years of the Alliance!

Alliance Update
Alliance Seeking Board Member Nominations
Portland Didn’t Disappoint

Legal Update
Keeping and Getting Back What’s Yours

Washington Update

Payer Update
15 Key Points From Your Payer Team

Notes from the Community
HTC Patients Highly Satisfied with HTC 340B Programs Nationwide

Linda Gammage Social worker conference
Register for one of the spots for the conference in San Diego February 2020

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August 2019 Newsletter
Notes from Joe
The More Things Change…

Alliance Update
We are Growing!
Save the Date for an Alliance Session at the ASH Meeting on Making the Running of an HTC Tolerable

Legal Update
Factor Loans During Emergencies: Truth and Fiction

Operations Update
Reminder: Sharing HTC Information: Caution is the Best Policy
Save the Date for an Alliance Session at the ASH Meeting on Making the Running of an HTC Tolerable

Washington Update

Payer Update

Team Alliance Contact Information

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July 2019 Newsletter
Notes from Joe
A Penny for your Thoughts

Alliance Update
Meet our New Board Members: Laurie Reger and Chris Guelcher

Legal Update
Recordkeeping and Retention: If You Can’t Prove It; It Didn’t Happen

Payer Update
TAP, TAP, TAP: How Healthy is your Contract Pharmacy Portfolio?

Notes from the Community
VWD Connect Foundation Annual Conference Recap

Team Alliance Contact Information

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June 2019 Newsletter
Notes from Joe
· Checking in, Halfway Through the Year

Legal Update
· To Contract, or Not to Contract – It Depends

Washington Update
· Update on Alliance Advocacy Activities

Payer Update

Notes from the Community
· Update from the Hemophilia Alliance Foundation
· Reminder about 340B Conference

Team Alliance Contact Information

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May 2019 Newsletter

Notes from Joe
·Hill Day Recap

Legal Update
· External, Independent Audits of 340B Contract Pharmacies: Where do they come from? What are they? Where are they going?***

Washington Update
· CMS Releases New Policy to Limit Co-pay Accumulator Programs

Payer Update

Alliance Update
· Alliance Seeking Director of Community Relations

Notes from the Community
· CDC Division of Blood Disorders Announces Next Public Health Webinar Series on Blood Disorders

Team Alliance Contact Information

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April 2019 Newsletter

Notes from Joe
·Three Reasons to Support the HTC Network

Legal Update
· Roadmap for Compliant Expenditures of Federal Funds: Highway to the Danger Zone!

Payer Update
·Payer Update – It’s All About the Data!

Alliance Update
·Spring Into our Services

Notes from the Community
· HFA Announced Archive Project with Smithsonian Institution
Seeking Director of Community Relations

Team Alliance Contact Information

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March 2019 Newsletter

Notes from Joe
·HTCs and Chapters: Natural Partners
·Hemophilia Alliance Foundation Update

Washington Update
· HTCs Are Not Subject to Hospitals’ GPO Exclusion: Apexus FAQ 2653
· Alliance Submits Response to Senate HELP Committee Request for Policy Ideas

Payer Update
·The Covered Outpatient Drug Rule (CODR)…Two Years Later

Alliance Update
·Reminder: Please Register for the Spring Meeting!

Notes from the Community
· Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Bleeding Disorders and Blood Disorders

Team Alliance Contact Information

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February 2019 Newsletter

Notes from Joe
·Jack be Nimble, Jack be Quick

Washington Update
·The Trump Administration Wants to Put an End to PBM Rebates

Payer Update
·Lessons Learned

Alliance Update
·Reminder: Please Register for the Spring Meeting!

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January 2019 Newsletter

Notes from Joe
·New Year, New Faces, Same Commitment to Our Members

Alliance Board Update
·Featured Board Member: Dr. Stacy Croteau

Washington Update
·We Need YOU for the Alliance Hill Day!
·Telling Your Story Isn’t Always Lobbying

Alliance Update
·Reminder: Recertification Deadline Approaching!
·Please Register for the Spring Meeting!

Team Alliance Contact Information

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December 2018 Newsletter

Notes from Joe
·Happy New Year!

Washington Update
·Texas vs. United States Lawsuit and Washington Year in Review

Legal Update
·Surprise! Trump Administration Finalizes the CMP Rule and Legal Year in Review

Payer Update
·Payer Team Year in Review

Notes from the Community
·THSNA Update
·WFH Acknowledges Hemophilia Alliance Travel Grant

Alliance Update
·Operations Update

Team Alliance Contact Information

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November 2018 Newsletter

Notes from Joe
·Telling Our Stories

Washington Update
·Election Overview and Impact for the Bleeding Disorders Community

Payer Update
·BAA Humbug

Notes from the Community
·Hemophilia Patient Satisfaction Survey Released
·Updates from the Hemophilia Alliance Foundation

Alliance Update
·Operations Update

Team Alliance Contact Information

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October 2018 Newsletter

Notes from Joe

Washington Update
·Trump Administration Releases New Proposal on Medicare Part B Drug Reimbursement

Payer Update

Legal Update
·Recent HRSA Guidance on 340B Contract Pharmacies

Notes from the Community
·Maintaining Expert Care at Federally Funded Hemophilia Treatment Centers: Regional Core Center Oversight

Team Alliance Contact Information

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September 2018 Newsletter

Notes from Joe
·Collaboration, Communication and Progress

Washington Update
·Congress Close to Enacting FY 2019 Appropriations Bill that Funds Hemophilia Programs

Payer Update
·Know Your Patients and Their 2019 Insurance Plans

Notes from the Community
·Connecting with the Global Community

Team Alliance Contact Information

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August 2018 Newsletter

Notes from Joe and Marisela
·What is TAP?

Washington Update
·CMS Releases Proposed Rules on Medicare’s Physician Fee Schedule and Hospital Outpatient Prospective Payment System for 2019
·The Energy & Commerce Committee Targets Contract Pharmacies in the 340B Program with New Oversight Efforts

Payer Update
·As the Medicaid World Turns

Alliance Update
·Fall Members Meeting 2018

Team Alliance Contact Information

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July 2018 Newsletter

Notes from Joe and Marisela
·It is Getting WACky Out There!

Washington Update
·Alliance Comments on Trump Administration Drug Pricing Blueprint
·House Energy and Commerce Holds Hearing on 340B and Releases More Bills
·Government Accountability Office (GAO) Releases Report on 340B Contract Pharmacies

Legal Update
·Reminder: What Are the Rules around Grant Funds and Use of Program Income?

Payer Update

Alliance Update
·Fall Members Meeting 2018
·Have you Been to the Hemophilia Alliance Website Lately?

Notes from the Community
·Cincinnati Children’s Guidebook for the Home Treatment of Bleeding Disorders Updated

Team Alliance Contact Information

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June 2018 Newsletter

Notes from Joe and Marisela
·Impact of 340B on HTC Services Article Published

Legal Update
·Reminder: What Are the Rules around Grant Funds and Use of Program Income?

Payer Update

Alliance Update
·Save the Date for 2018 Events!

Notes from the Community
·Hemophilia Alliance Foundation Releases Dates for Upcoming Grant Cycle
·FWGBD Announces Winners of the 2018 Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Blood Disorders and Bleeding Disorders Research Awards

Team Alliance Contact Information

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May 2018 Newsletter

Notes from Joe
·A Penny For Your Thoughts

Washington Update
·Trump Administration Releases Drug Pricing Blueprint

Payer Update
·Too Much Work and Too Little Time

Alliance Update
·Alliance Recruiting for a Director, Payer Relations for the Western United States
·Information at your Fingertips
·Save the Date for 2018 Events!

Notes from the Community
·The Importance of Attending the Linda Gammage Social Work Meeting
·Social Work Planning Committee Member Needed
·Update on 2018 HTRS/NASTH Research Colloquium

Team Alliance Contact Information

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Hill Day 2018 Special Edition Newsletter

Notes from Joe
·April Snow Showers and Travels

Washington Update
·Thank you to Participants in the Alliance Hill Day!

Payer Update
·Payer Team Success Story

Legal Update
·The UGG’s Procurement Standards Get Slightly Less Arduous

Alliance Update
·Alliance Recruiting for a Director, Payer Relations for the Western United States
·Mark Plencner Awarded North Dakota Health System Pharmacist of the Year Award!
·Save the Date for 2018 Events!

Notes from the Community
·NIH State of the Science Workshop
·VWD Connect Foundation Announces the 2018 National Type 3 Von Willebrand Disease Conference: Making The Connection

Team Alliance Contact Information

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March 2018

Notes from Joe
·March Madness!

Washington Update
·We need YOU for the Alliance Hill Day!

Payer Update
·Medicaid Update
·Manufacturer Co-Pay Assistance: The Rules are Rapidly Changing

Notes from the Community
·NASTH 2018 Research Fellowship

Alliance Update
·Update on Alliance meetings
·Save the Date for 2018 Events!

Team Alliance Contact Information

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February 2018

Notes from Joe
·Welcome to Chapters!
·Litigation

Notes from Marisela
·Update from the Alliance Board Strategic Planning Meeting

Washington Update
·We need YOU for the Alliance Hill Day!

Payer Update

Notes from the Community
·Update on Disaster Relief – Together We Care

Alliance Update
·Save the Date for 2018 Events!

Community Activities
·Public Health Webinar Series on Blood Disorders

Team Alliance Contact Information