Newsletters
November 2019 Newsletter
Notes from Joe
Back to the Future
New Board Member
Regina Butler
Payer Update
Patient Data: Who Owns It, How Do You Use It, and Why Should You Care?
Washington Update
Legal Update
– Supporting Patients while Steering Clear of Fraud
Notes from the Community
– Update from the Hemophilia Alliance Foundation
Alliance Update
– Alliance Operations Update
– 2020 Meeting Schedule
– – –
October 2019 Newsletter
Notes from Joe
The Times They Are a-changin. . .
Alliance Update
– Our Library Has a Little of Everything
– Alliance Seeking Board Nominations
Payer Update
Know Your Patients and Their Insurance
Notes from the Community
– NHF’s Bleeding Disorders Conference Brings the Community Together
– HTRS Announces Second Research Colloquium
– Update from the Hemophilia Alliance Foundation
– – –
September 2019 Newsletter
Notes from Joe
Celebrating 20 Years of the Alliance!
Alliance Update
Alliance Seeking Board Member Nominations
Portland Didn’t Disappoint
Legal Update
Keeping and Getting Back What’s Yours
Washington Update
Payer Update
15 Key Points From Your Payer Team
Notes from the Community
HTC Patients Highly Satisfied with HTC 340B Programs Nationwide
Linda Gammage Social worker conference
Register for one of the spots for the conference in San Diego February 2020
– – –
August 2019 Newsletter
Notes from Joe
The More Things Change…
Alliance Update
We are Growing!
Save the Date for an Alliance Session at the ASH Meeting on Making the Running of an HTC Tolerable
Legal Update
Factor Loans During Emergencies: Truth and Fiction
Operations Update
Reminder: Sharing HTC Information: Caution is the Best Policy
Save the Date for an Alliance Session at the ASH Meeting on Making the Running of an HTC Tolerable
Washington Update
Payer Update
Team Alliance Contact Information
– – –
July 2019 Newsletter
Notes from Joe
A Penny for your Thoughts
Alliance Update
Meet our New Board Members: Laurie Reger and Chris Guelcher
Legal Update
Recordkeeping and Retention: If You Can’t Prove It; It Didn’t Happen
Payer Update
TAP, TAP, TAP: How Healthy is your Contract Pharmacy Portfolio?
Notes from the Community
VWD Connect Foundation Annual Conference Recap
Team Alliance Contact Information
– – –
June 2019 Newsletter
Notes from Joe
· Checking in, Halfway Through the Year
Legal Update
· To Contract, or Not to Contract – It Depends
Washington Update
· Update on Alliance Advocacy Activities
Payer Update
Notes from the Community
· Update from the Hemophilia Alliance Foundation
· Reminder about 340B Conference
Team Alliance Contact Information
– – –
Notes from Joe
·Hill Day Recap
Legal Update
· External, Independent Audits of 340B Contract Pharmacies: Where do they come from? What are they? Where are they going?***
Washington Update
· CMS Releases New Policy to Limit Co-pay Accumulator Programs
Payer Update
Alliance Update
· Alliance Seeking Director of Community Relations
Notes from the Community
· CDC Division of Blood Disorders Announces Next Public Health Webinar Series on Blood Disorders
Team Alliance Contact Information
– – –
Notes from Joe
·Three Reasons to Support the HTC Network
Legal Update
· Roadmap for Compliant Expenditures of Federal Funds: Highway to the Danger Zone!
Payer Update
·Payer Update – It’s All About the Data!
Alliance Update
·Spring Into our Services
Notes from the Community
· HFA Announced Archive Project with Smithsonian Institution
Seeking Director of Community Relations
Team Alliance Contact Information
– – –
Notes from Joe
·HTCs and Chapters: Natural Partners
·Hemophilia Alliance Foundation Update
Washington Update
· HTCs Are Not Subject to Hospitals’ GPO Exclusion: Apexus FAQ 2653
· Alliance Submits Response to Senate HELP Committee Request for Policy Ideas
Payer Update
·The Covered Outpatient Drug Rule (CODR)…Two Years Later
Alliance Update
·Reminder: Please Register for the Spring Meeting!
Notes from the Community
· Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Bleeding Disorders and Blood Disorders
Team Alliance Contact Information
– – –
Notes from Joe
·Jack be Nimble, Jack be Quick
Washington Update
·The Trump Administration Wants to Put an End to PBM Rebates
Payer Update
·Lessons Learned
Alliance Update
·Reminder: Please Register for the Spring Meeting!
– – –
Notes from Joe
·New Year, New Faces, Same Commitment to Our Members
Alliance Board Update
·Featured Board Member: Dr. Stacy Croteau
Washington Update
·We Need YOU for the Alliance Hill Day!
·Telling Your Story Isn’t Always Lobbying
Alliance Update
·Reminder: Recertification Deadline Approaching!
·Please Register for the Spring Meeting!
Team Alliance Contact Information
– – –
Notes from Joe
·Happy New Year!
Washington Update
·Texas vs. United States Lawsuit and Washington Year in Review
Legal Update
·Surprise! Trump Administration Finalizes the CMP Rule and Legal Year in Review
Payer Update
·Payer Team Year in Review
Notes from the Community
·THSNA Update
·WFH Acknowledges Hemophilia Alliance Travel Grant
Alliance Update
·Operations Update
Team Alliance Contact Information
– – –
Notes from Joe
·Telling Our Stories
Washington Update
·Election Overview and Impact for the Bleeding Disorders Community
Payer Update
·BAA Humbug
Notes from the Community
·Hemophilia Patient Satisfaction Survey Released
·Updates from the Hemophilia Alliance Foundation
Alliance Update
·Operations Update
Team Alliance Contact Information
– – –
Notes from Joe
Washington Update
·Trump Administration Releases New Proposal on Medicare Part B Drug Reimbursement
Payer Update
Legal Update
·Recent HRSA Guidance on 340B Contract Pharmacies
Notes from the Community
·Maintaining Expert Care at Federally Funded Hemophilia Treatment Centers: Regional Core Center Oversight
Team Alliance Contact Information
– – –
Notes from Joe
·Collaboration, Communication and Progress
Washington Update
·Congress Close to Enacting FY 2019 Appropriations Bill that Funds Hemophilia Programs
Payer Update
·Know Your Patients and Their 2019 Insurance Plans
Notes from the Community
·Connecting with the Global Community
Team Alliance Contact Information
– – –
Notes from Joe and Marisela
·What is TAP?
Washington Update
·CMS Releases Proposed Rules on Medicare’s Physician Fee Schedule and Hospital Outpatient Prospective Payment System for 2019
·The Energy & Commerce Committee Targets Contract Pharmacies in the 340B Program with New Oversight Efforts
Payer Update
·As the Medicaid World Turns
Alliance Update
·Fall Members Meeting 2018
Team Alliance Contact Information
– – –
Notes from Joe and Marisela
·It is Getting WACky Out There!
Washington Update
·Alliance Comments on Trump Administration Drug Pricing Blueprint
·House Energy and Commerce Holds Hearing on 340B and Releases More Bills
·Government Accountability Office (GAO) Releases Report on 340B Contract Pharmacies
Legal Update
·Reminder: What Are the Rules around Grant Funds and Use of Program Income?
Payer Update
Alliance Update
·Fall Members Meeting 2018
·Have you Been to the Hemophilia Alliance Website Lately?
Notes from the Community
·Cincinnati Children’s Guidebook for the Home Treatment of Bleeding Disorders Updated
Team Alliance Contact Information
– – –
Notes from Joe and Marisela
·Impact of 340B on HTC Services Article Published
Legal Update
·Reminder: What Are the Rules around Grant Funds and Use of Program Income?
Payer Update
Alliance Update
·Save the Date for 2018 Events!
Notes from the Community
·Hemophilia Alliance Foundation Releases Dates for Upcoming Grant Cycle
·FWGBD Announces Winners of the 2018 Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Blood Disorders and Bleeding Disorders Research Awards
Team Alliance Contact Information
– – –
Notes from Joe
·A Penny For Your Thoughts
Washington Update
·Trump Administration Releases Drug Pricing Blueprint
Payer Update
·Too Much Work and Too Little Time
Alliance Update
·Alliance Recruiting for a Director, Payer Relations for the Western United States
·Information at your Fingertips
·Save the Date for 2018 Events!
Notes from the Community
·The Importance of Attending the Linda Gammage Social Work Meeting
·Social Work Planning Committee Member Needed
·Update on 2018 HTRS/NASTH Research Colloquium
Team Alliance Contact Information
– – –
Hill Day 2018 Special Edition Newsletter
Notes from Joe
·April Snow Showers and Travels
Washington Update
·Thank you to Participants in the Alliance Hill Day!
Payer Update
·Payer Team Success Story
Legal Update
·The UGG’s Procurement Standards Get Slightly Less Arduous
Alliance Update
·Alliance Recruiting for a Director, Payer Relations for the Western United States
·Mark Plencner Awarded North Dakota Health System Pharmacist of the Year Award!
·Save the Date for 2018 Events!
Notes from the Community
·NIH State of the Science Workshop
·VWD Connect Foundation Announces the 2018 National Type 3 Von Willebrand Disease Conference: Making The Connection
Team Alliance Contact Information
– – –
Notes from Joe
·March Madness!
Washington Update
·We need YOU for the Alliance Hill Day!
Payer Update
·Medicaid Update
·Manufacturer Co-Pay Assistance: The Rules are Rapidly Changing
Notes from the Community
·NASTH 2018 Research Fellowship
Alliance Update
·Update on Alliance meetings
·Save the Date for 2018 Events!
Team Alliance Contact Information
– – –
Notes from Joe
·Welcome to Chapters!
·Litigation
Notes from Marisela
·Update from the Alliance Board Strategic Planning Meeting
Washington Update
·We need YOU for the Alliance Hill Day!
Payer Update
Notes from the Community
·Update on Disaster Relief – Together We Care
Alliance Update
·Save the Date for 2018 Events!
Community Activities
·Public Health Webinar Series on Blood Disorders
Team Alliance Contact Information