Notes from Joe, April 2022

Notes from Joe

Update on Strategic Planning
by Joe Pugliese, President and CEO

The Hemophilia Alliance board and staff meet for our annual but delayed strategic planning session a few weeks ago. The objective was to identify those critical things the Alliance needs to do to support our mission to ensure member Hemophilia Treatment Centers have the expertise, resources, and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders.

We are developing a strategic plan to guide our work from 2022-2027, but I’m pleased to share a few initial thoughts.

While the discussion was generally complimentary about Alliance activities to date, the Board and staff also recognize that we need to continually improve our programs and resources. For example, the revolution in novel therapies is accelerating and our HTCs – and the Alliance – will need to evolve to match it. We have been charged with reviewing our current structure and the services we offer to make sure that they best meet the needs of our members.

To help us do that, we are going to try new ways to engage our members – so we can better understand your needs and how we can assist you. For example, we are looking at forming several new committees to give our members more opportunity to be directly involved in setting our advocacy priorities and to help guide Alliance programming. We are also looking to reformat our member meetings to encourage more active participation and more time for you to network with each other. We are also hoping to engage with the regional leadership more regularly.

The point of all of this is because our mission is helping HTCs meet their mission. We know that this involves not only our excellent staff and contractors, but also the support of both our manufacturing partners and national and local patient organizations. We hope to work with you to enable HTCs to not only survive but thrive!

If you want to get more involved in Alliance activities or have ideas of how we can better help you and other members, please don’t be shy! As we say in every Newsletter and every meeting, we work for you!

Finally, I’d be remiss in not saying that our prayers go out to the brave people in the Ukraine, who continue to fight valiantly. I personally encourage everyone to support the members of the bleeding disorder community there and in neighboring countries, where the needs are significant.

Also in this Issue…

Alliance Member Highlight
· Multidisciplinary Care in the Management of Heavy Menstrual Bleeding and Blood Disorders

Legal Update
· The Do’s and Don’ts of Contract Pharmacies in 340B Discount Drug Program for HTCs

Washington Update
· Preparing for the End of the COVID-19 Public Health Emergency

Payer Update

Notes from the Community
· Announcing the Hemophilia Alliance Foundation 3rd Annual Innovation Grant