Notes from the Community, April 2022

Notes from the Community

Announcing the Hemophilia Alliance Foundation 3rd Annual Innovation Grant

The Hemophilia Alliance Foundation (HAF) is excited to offer its 3rd-annual funding opportunity for the Innovation Grant, previously known as the “Large” Grant. This new name better reflects the intent of the grant and the opportunity it provides. This funding will allow an organization to fund a larger-scope project than what they are able to do with current HAF smaller grants. This will be a one-year grant with projects completed within the year.

The Grant Guidance and online application form are available here: https://hemophiliaalliancefoundation.org/grant-information

Purpose
The goal of this grant is to encourage larger scale, unique, and innovative projects, as well as to serve the community with resources that will improve the lives of patients with inherited bleeding and thrombotic disorders. With this larger funding amount, the Innovation Grant aims to encourage projects that are larger in scope, innovative, and generate resources that can be shared with the whole community.

Requirements

  • A non-profit 501 (c) (3) organization
  • An organization that has a history and documented track record of serving the inherited bleeding and thrombotic disorders communities
  • Completion of the application with all required documents attached
  • The grantee will be responsible for a conference call meeting with HAF board members during and/or after project completion to discuss the process (e.g., what worked, what could be improved)
  • These funds may not be used in conjunction with grants from the Hemophilia Alliance.

Collaborative projects between more than one organization are encouraged and given higher priority.

Grant funds will NOT be awarded for the following costs:

  • Administrative or overhead costs may not exceed 8% of budget
  • Basic, laboratory research, or related equipment
  • Underwriting or sponsorship of fundraising events
  • Construction costs
  • Recurring costs, such as:
  • Office rent and utilities
  • Monthly phone bills for the applicant organization
  • Salaries of staff not related to the grant application

Timeline
Applications are currently being accepted through June 30, 2022. The project period will begin on September 1, 2022 and conclude by August 30, 2023.

Questions
If you have any questions about the Innovation Grant process, please contact the Hemophilia Alliance Foundation Grant Committee Co-Chairs, Amy Marquez, at amy@hemophiliaalliancefoundation.org, or Stephanie Raymond, at stephanie@hemophiliaalliancefoundation.org.

Also in this Issue…

Notes from Joe
· Update on Alliance Strategic Planning

Alliance Member Highlight
· Multidisciplinary Care in the Management of Heavy Menstrual Bleeding and Blood Disorders

Legal Update
· The Do’s and Don’ts of Contract Pharmacies in 340B Discount Drug Program for HTCs

Washington Update
· Preparing for the End of the COVID-19 Public Health Emergency

Payer Update