Notes from the Community, August 2020

Notes from the Community

News from the International Community
By Jennifer Laliberte, WFH USA National Director

The first ever #WFHVirtualSummit featured a number of inspiring medical and multidisciplinary sessions, WFH educational sessions and free papers. In case you missed it, all sessions will be available for a whole year for registered participants. It’s not too late to register!

Notable announcements included the publication of the 3rd Edition of the WFH Guidelines for the Management of Hemophilia, soon available in Haemophilia as well as on the WFH eLearning platform, an update on the development of the WFH Gene Therapy Registry, and a call to action for the global community to move from Compassion to Action.

Click here to find out how you can help the WFH support its national member organizations through the global pandemic and continue to deliver life-changing programs and services. Learn more at

Also in this Issue…

Notes from Joe
· Not Quite at the Finish Line Yet

Legal Update
· Protecting HTC Data Requires Reading the Fine Print

Washington Update

Payer Update
· Welcome Kimberly Lackman, the Newest Alliance Employee!
· Payer Relations Update

Alliance Update
· Alliance, NHF and HFA Launch the Harmony in Hemophilia Campaign