Hemo Alliance Newsletters

Notes from the Community, December 2021

Notes from the Community

Hemophilia Alliance Foundation Announces 2022 Project/Patient Assistance Grant

Hemophilia Alliance Foundation
Are you a nonprofit organization that serves the inherited bleeding and thrombotic disorders community?

Are you looking for additional grant funds to support your patients and community programs?

Of course you are!

The Hemophilia Alliance Foundation (HAF) is pleased to announce that the 2022 Project/Patient Assistance Grant Guidance is now available on our website. Applications are due by January 31, 2022 and must be submitted directly on the website.

Since 2009, the Alliance Foundation has awarded over $4 million to help 140+ chapters, treatment centers, and national community organizations build capacity and support and expand their missions. For 2022, the ceilings for grant applications are as follows:

  • Local applicants (e.g. chapters/member organizations, HTCs): $8,000
  • National organizations, and the eight HHS-designated federally-funded regional core coordinating centers: $10,000

Successful applications for both projects and patient assistance programs should demonstrate clear, measurable outcomes and a strong commitment to the inheritable bleeding and thrombotic disorders community. Organizations interested in submitting applications should review the 2022 Grant Guidance thoroughly before finalizing their applications.

If your organization–or an organization you know–is interested in applying but feels like it does not have the capacity or expertise to do so, please reach out to Brenda Riske, HAF Chair, at brendariske@hemophiliaalliancefoundation.org! We can direct you to additional resources that will help you submit a strong application.

Also in this Issue…

Notes from Joe
· Looking Back, Planning Ahead

Legal Update
· Not the Old, Not the New, but the Necessary: Legal Review of 2021

Washington Update
· Year in Review

Payer Update
· Payer Team Update

Alliance Board Update
· Update on New and Departing Alliance Board Members

Alliance Update
· Operations Team Update
· 2022 Spring Alliance Members Meeting Schedule

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Jeff Blake jeff@hemoalliance.org 317-657-5913
Jennifer Borrillo, MSW, LCSW, MBA borrillo@hemoalliance.org 504-376-5282
Heidi Lane, PT, DPT, PCS heidi@hemoalliance.org 435-659-1230
Angela Blue, MBA angela@hemoalliance.org 651-308-3902
Karen Bowe-Hause karen@hemoalliance.org 717-571-0266
Jazzmine Brown, MBA, MSW, LCSW jazzmine@hemoalliance.org 770-570-2649
Ashley Castello, MEd ashley@hemoalliance.org 225-266-5062
Zack Duffy zack@hemoalliance.org 503-804-2581
Michael B. Glomb MGlomb@ftlf.com 202-466-8960
Johanna Gray, MPA jgray@artemispolicygroup.com 703-304-8111
Kiet Huynh kiet@hemoalliance.org 917-362-1382
Elizabeth Karan elizabeth@karanlegalgroup.com 612-202-3240
Kollet Koulianos, MBA kollet@hemoalliance.org 309-397-8431
Roland P. Lamy, Jr. roland@hemoalliance.org 603-491-0853
Julie Lichterman julie@hemoalliance.org 941-779-5971
Dr. George L. Oestreich, Pharm.D., MPA george@gloetal.com 573-230-7075
Theresa Parker theresa@hemoalliance.org 727-688-2568
Mark Plencner mark@hemoalliance.org 701-318-2910
Ellen Riker eriker@artemispolicygroup.com 202-257-6670