Notes from the Community, December 2021

Notes from the Community

Hemophilia Alliance Foundation Announces 2022 Project/Patient Assistance Grant

Hemophilia Alliance Foundation
Are you a nonprofit organization that serves the inherited bleeding and thrombotic disorders community?

Are you looking for additional grant funds to support your patients and community programs?

Of course you are!

The Hemophilia Alliance Foundation (HAF) is pleased to announce that the 2022 Project/Patient Assistance Grant Guidance is now available on our website. Applications are due by January 31, 2022 and must be submitted directly on the website.

Since 2009, the Alliance Foundation has awarded over $4 million to help 140+ chapters, treatment centers, and national community organizations build capacity and support and expand their missions. For 2022, the ceilings for grant applications are as follows:

  • Local applicants (e.g. chapters/member organizations, HTCs): $8,000
  • National organizations, and the eight HHS-designated federally-funded regional core coordinating centers: $10,000

Successful applications for both projects and patient assistance programs should demonstrate clear, measurable outcomes and a strong commitment to the inheritable bleeding and thrombotic disorders community. Organizations interested in submitting applications should review the 2022 Grant Guidance thoroughly before finalizing their applications.

If your organization–or an organization you know–is interested in applying but feels like it does not have the capacity or expertise to do so, please reach out to Brenda Riske, HAF Chair, at! We can direct you to additional resources that will help you submit a strong application.

Also in this Issue…

Notes from Joe
· Looking Back, Planning Ahead

Legal Update
· Not the Old, Not the New, but the Necessary: Legal Review of 2021

Washington Update
· Year in Review

Payer Update
· Payer Team Update

Alliance Board Update
· Update on New and Departing Alliance Board Members

Alliance Update
· Operations Team Update
· 2022 Spring Alliance Members Meeting Schedule

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